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1granny
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/29/2009 1:45 PM (GMT -7)   
Hi Everyone-
I wanted to introduce myself. My name is Rose and I live in Las Vegas, Nevada. Today is the last triple digit heat day, for which I am grateful. We will now go down to the 90's and 80's. I have recently been diagnosed with lupus mctd. I am still very symptomatic, I think I have been in a continuous flare. It seems anything I do wipes me out and I can't seem to get better. It is very frustrating. I am taking plaquenil400mg daily, prednisone 40mg daily, nuerontin 1800mg daily, methotrexate 7.5mg weekly, folic acid 1mg daily. Thank you all for being here and I will post more again soon.
                                                                                          Rose

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/3/2009 10:46 PM (GMT -7)   
Hi Rose,

Welcome to the forum! Sorry about the circumstances that bring you here, though.

I'm new here too....still waiting for a firm diagnosis, although my rheumatologist has started me on Plaquenil because he's pretty sure I have lupus, possibly MCTD. I also take prednisone and Imuran for autoimmune hepatitis.

I'm in Southern CA, and it has cooled down a bit here too. We had a day in the 70s today, instead of the 90s.

In any case, I hope that you start feeling better soon!

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Reynaud's syndrome. Possible lupus and/or Sjogren's Syndrome - diagnoses pending.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/4/2009 2:48 PM (GMT -7)   
Hi Rose, welcome!

Sorry to hear of your diagnosis but it looks like you are on a pretty good treatment plan. I don't know how long you've been on your meds but it does take a while for them to get in your system, especially the Plaq and Mtx. I hope you find some relief soon! Take care and ask more questions that you may have.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Raven1954
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted 10/6/2009 4:09 AM (GMT -7)   
Hi,Rose,I am new to this forum too.It is the best thing I have done for myself,and hope you find the same.The people here really participate,and have alot to offer. Welcome from another newbie.
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, cpap for sleep apnea.Life is not a journey to the grave with the intention of arriving safely,in a pretty and well preserved body,but rather to skid in broadside,thoroughly used up,totally worn out and loudly proclaiming-WOW,what a ride!!!


bird lady
New Member


Date Joined Sep 2009
Total Posts : 18
   Posted 10/6/2009 8:43 PM (GMT -7)   
Hello ladies, I too am new here. the posts are a blessing. I hope all goes well for you Rose. Keep the faith and know that you are not alone.

bird lady
New Member


Date Joined Sep 2009
Total Posts : 18
   Posted 10/6/2009 8:43 PM (GMT -7)   
Hello ladies, I too am new here. the posts are a blessing. I hope all goes well for you Rose. Keep the faith and know that you are not alone.
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