I have SLE and Sjorgrens since 1994, 3 yrs ago I started getting really bad rash on arms and face, not unusual. Well my rheumatologist kept treating it as Lupus rash for 3 yrs. I complained about the pain and not healing with the med he prescribed. He kept blowing it off and saying stay out of the sun. Well I finally got mad and had another dr biopsy. Came back as Squamous cell carcinoma. Had the surgery, been removed from arm.
At the same time I developed a sore on the hard palate of my mouth, it kept getting worse. I went in after 2 mnths and had biopsy. The result was keracanthoma. I was told it was benign but had to be removed. I had it removed.
Well went for a followup with the ENT and found out it was squamous cell carcinoma in my mouth. Ok so now I’ve had cancer on my arm and in my mouth. Needless to say I still have sores on my nose and on my arms but dermatologist doesn’t see a reason to biopsy. The sore on my nose has been there for over 4 yrs and only gets worse.
So all this and no one sees a reason to do further test or radiation or chemo, not even refer me to an oncologist.
I am 35 yrs old, I’ve had SLE & Sjorgrens since 1994. I have a Protein S Defiecency which I take coumadin for. I’ve had to have 3-4 colonoscopys for bleeding, benign polyps were removed. My mother had Hodgkins 10 yrs ago. I have not had 1 blood test since all this began. My Rheumatologist tested every 6 mnths but my white blood cell was always 2.-2.5 for 3 yrs. He seems to think it is from my Lupus (SLE). Which it could be but could it also be some kind of warning of something else going on. This is only a part of my history. I am concerned that dr’s are not taking this serious enough because it is just a skin and mouth cancer. Where should I turn, should I be concerned. Do you have any suggestions.