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Raven1954
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted 10/7/2009 2:33 AM (GMT -7)   
Going to hospital for I.V. chemo(cytoxin) in few hours. Dreading it,but also know will feel alot better in couple of weeks.Family getting everything ready for me,so I just have to concentrate on getting there.God Bless them,they have their own things to do,and they put it all on hold.My husband always puts fresh sheets on the bed for when I come home,I give thanks for them all the time.
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, cpap for sleep apnea.Life is not a journey to the grave with the intention of arriving safely,in a pretty and well preserved body,but rather to skid in broadside,thoroughly used up,totally worn out and loudly proclaiming-WOW,what a ride!!!


jesimae
Regular Member


Date Joined Oct 2009
Total Posts : 109
   Posted 10/7/2009 9:56 AM (GMT -7)   
It's great that you have a wonderful support system. Hope all goes well and wish you very few side effects! smilewinkgrin
Jessica, diagnosis: unsure


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 10/7/2009 3:21 PM (GMT -7)   
Hey Raven! How did the cytoxan go? I hope this will help you feel better. i know it usually helps me with my joint pain within a few days. I sure can tell I am needing another treatment...which thankfully I go on Friday to get it. How long does yours last? Do you know how many milligrams you get? On Friday it will be my 3rd treatment and I will have 3-4 more to get once a month. When I get mine it takes about 6-7 hrs...is that what yours does? They check my blood count and Kindey function and then I have fluids IV the whole time with Zofran, Mesna, Cytoxan, iV of pred, Mesna and then another hour of fluids...I also am on 1800 mg of Cytoxan. I was just curious as to different people's doses. How do you respond during and after the treatment! Have you had any hair loss? So far i have just had pretty good thinning of my hair but so far no bald spots, which I hear with my dose I am very lucky for that...I sure hope you did ok today! will be praying for ya :)

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/7/2009 5:19 PM (GMT -7)   
Hi Raven, what a wonderful family you have, you are blessed! I pray the treatment works well for you, update us when you can. Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Raven1954
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted 10/8/2009 5:21 AM (GMT -7)   
Thank you all for your support.My dose changes every 6 months with whatever my weight is.It only took 3 hours to get in,my veins were behaving.Nausea was bad,but they were right on top of that,plud one hour before I get a pre-med of Zolfran,and decadron ivp. Really helps,plus zolfran iv as needed during infusion,and after.Was home by 6pm.The first 6 months with monthly tx. was really hard,and yes I lost most of my hair,my husband called it my Billy-Bob Thorton look. Now on the every 6 month schedule,forever.Lose very little hair with that,but made mistake of coloring my grey once,and lost most of it again.I have a couple wigs,great chemo scarves,I use when start feeling better and going out a little.It is very empowering to feel you look you best when going out.If don't feel uo to it I just go the way I am,and if someone stares,Oh well,their problem. Hope all goes well for you.p.s.Stay in for 2 weeks after iv tx. because of no immune system,if have to go out during this period, I wear a mask.and am ocd about hand washing. God Bless, Namaste Raven1954
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, cpap for sleep apnea.Life is not a journey to the grave with the intention of arriving safely,in a pretty and well preserved body,but rather to skid in broadside,thoroughly used up,totally worn out and loudly proclaiming-WOW,what a ride!!!

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