New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/7/2009 9:03 PM (GMT -7)   
Hi all!
I have een flaring for what seems like forever now. I saw my rheumy on Set. 11 and on the 13th I went into a flare! I went home sick that day and have been home ever since thank God for an awesome boss. I am in the worse pain ever and nothing seems to relieve the pain,I have had flares but a typical flare last maybe a week and I feel better,this is the 1st time since my diagnosis 4 yrs ago that I have had one this long. I am sad most days,it takes so much energy to even cry so I don't bother and with the Sjogrens the tears don't come easy. Last night at my sons football game he was injured so I had to run him to the emergency room where of course there were 50 plus people with coughing and flu symptoms so with masks on we waited only to not be seen. I can't tell you how frustrating that is so my 13 yr old spent the night in pain,thank God for his ped. he goes see the ortho in the morning. I filed for disability which seems to be moving along prety fast,they are sending me to see one of their docs,I amnot sure if that is a good thing or bad,I pray it works out I really need some finanical help my poor husband is working his buns off. Love him dearly. I guess I complained enough thanks for reading.
 
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


Raven1954
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted 10/8/2009 4:11 AM (GMT -7)   
It's not complaining to me,just telling it like it is. I have found thru this forum that just getting it out really helps,all the frustrations and fears,just letting them out and not stuffing them down,trying to be a good sport hurts you more then telling it like it is.Hope you feel better soon,if not please call your doc.,that's what he is there for.God Bless, Namaste Raven1954
sle since 1986, cerebritis,pre diabetic, peripheral neuropathy,mvp cataracts,degenerative disc dx. liver failure due to tylenol for to long,Meds: prednisone,inderal. synthroid,tegretol,nasonex,phenergan,dalmane,valium for fibromyl. dilaudid q8 for pain,cytoxin iv every 6 months,asa daily,albuteral inhaler,frequent antibiotics. Learning to live a differant life now, cpap for sleep apnea.Life is not a journey to the grave with the intention of arriving safely,in a pretty and well preserved body,but rather to skid in broadside,thoroughly used up,totally worn out and loudly proclaiming-WOW,what a ride!!!


Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/8/2009 6:50 AM (GMT -7)   
Thank you Raven1954. m
My family putside if my house don't get it, they seem to think that like most who are not familiar with our problemns that I am not as sick because I do not look sick. Mostly I just come on and read but posting feelings is a real outlet.I have called my doctor he seems to think it's just a normal flare so we are going to adjust the prednisone and change the pain medication. I pray it works.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


Lori2203
New Member


Date Joined Oct 2009
Total Posts : 18
   Posted 10/8/2009 11:24 AM (GMT -7)   
Hi.. .. What pain meds have u tried?..

Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/9/2009 6:57 PM (GMT -7)   
Lori2203 I take prednisone,plaquneil,hctz,lisnopril,imuran,tramadol,loratab prn,azathioprine and iron.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/9/2009 6:58 PM (GMT -7)   
I was taking methatrexate and piroxicam my rheumy took me off those sept.11 i have een in a flare since sept. 13th unable to go to work since I left early on the 13th of sept.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 10/10/2009 5:11 PM (GMT -7)   
Jenks.... I was just thinking... I know that you have had a lot of rain in your area... My body is affected by humidity and heat... do you think this maybe a problem for you?

Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/10/2009 7:55 PM (GMT -7)   
Weleetka I am pretty sure the rain and humidity has a lot to do with the way things are going,but ven on the sunny days I hurt,maye not as bad but still hurts the same :( today my husband actually took me out to dinner and to play the nickle slots at the casino(smiling) I haven't been out of the house in almost a month except to go pick my son up from practice so it was reall nice to be out among the living. Thank god I have an awesome boss who totally understands my situation,I have been off work for a month and I just put in for fmla. TOday was a good day and I pray it continues on for a very long time to get back to some normalcy.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 11:24 PM (GMT -7)
There are a total of 2,732,416 posts in 301,016 threads.
View Active Threads


Who's Online
This forum has 151181 registered members. Please welcome our newest member, carol9.
219 Guest(s), 6 Registered Member(s) are currently online.  Details
bluelyme, carol9, ggfgfgfdgfgdd98, gdftggfdgfdgf21, TreasureTomorrow2904, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer