first dose of prednisone

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jesimae
Regular Member


Date Joined Oct 2009
Total Posts : 109
   Posted 10/8/2009 7:08 AM (GMT -7)   
I got up this morning excited with the hope of relief. Ate breakfast and took my prednisone. An hour later now and I'm so nauseated! Does this go away or can I expect this to be a part of my life? Any suggestions?
Jessica, diagnosis: unsure


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 10/8/2009 9:12 AM (GMT -7)   
Wow, nauseasnes on Prednisone, I had not heard of that one. Maybe you could take it when you first get up and give yourself an hour or 2 before you eat breakfast! I would think this is something that would go away! I am sorry you are having nausea, I know that it is a pain. What is your dosage?

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


jesimae
Regular Member


Date Joined Oct 2009
Total Posts : 109
   Posted 10/8/2009 10:53 AM (GMT -7)   
Basically I'm just on a dose pack. My doctor, who thinks I'm a hypochondriac, prescribed it to "see" if it would help. She also drew a lupus panel because I insisted. My nausea has already subsided. I'm feeling better too-I'm actually getting off the couch some today! Wish I could do something about the pain...

Jessica, diagnosis: unsure


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 10/8/2009 11:10 AM (GMT -7)   
First of all if your doctor isnt taking you seriously maybe its time to move on to another. I know several of us had to move around before we found the right doctor! My first one took a look at me and my age and decided right away I was ok but diagnosed me with Lupus a few weeks later and said it was a very mild form. That it would stay that way. Welp it kept getting worse and worse until my joints got 3 times their size, thats when I switched to a new rhuemy and my 2nd visit with her we discoverd I was in Kindey Failure due to Lupus...and it happened about a month ago again. Ha, dont think I have a mild form of it. But my new one is awsome and she actually cares about helping me feel better and getting this thing under control! Keep looking, you will find a good doc :-)
 
The pain should get better really soon! I know when I was put on a starter pack of it I felt so much better the next day and within the next few days I felt like a new person! So there is still hope! Don't get to frusterated. Give the prednisone a little more time to work. It really is a miracle drug when you don't have to take it all the time! Keep me updated on how the pred works for you! I sure hope you can get some relief from it.

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


jesimae
Regular Member


Date Joined Oct 2009
Total Posts : 109
   Posted 10/8/2009 11:33 AM (GMT -7)   
Thanks Amy! My "doctor" is a general nurse practitioner. We just moved here and I don't yet have a doctor. She doesn't have all my health records and has nothing to go on but what I'm telling her. I can understand things from her view point-a little, but in nursing school they taught us that the patient is the best source of info about their condition. Just hoping I can find something out and get a referral to a rheumy or immunologist. Which is better/more suited?
Jessica, diagnosis: unsure


jesimae
Regular Member


Date Joined Oct 2009
Total Posts : 109
   Posted 10/8/2009 11:38 AM (GMT -7)   
Oh yeah! I meant to ask you, since you've had kidney involvement, Did you have protein in your urine before you got the diagnosis? I've had protein in my urine since childhood, but doctors just seem to brush it off. I've also had several kidney infections in the last 2 years. Not bladder-kidney.
Jessica, diagnosis: unsure


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 10/8/2009 11:39 AM (GMT -7)   
I have never been to a immunologist so I can't honestly say which one would be better. I do know if it is Lupus or MCTD/UCTD I would go to a rheumy because they are trained in those areas! I am sure someone else will come along that has a more knowledge on this!!!!

about the protein....All the urinalsys I had done before my kidney involvement had no protein or blood in my urine. I would be sure to let your doc (when you get one) know its always been there. Now I have over 2 grams of protein and over 20000 red blood cells in my urine! I think they will go alot on the BUN and GFI (glomeration filtration rate) and if those are abnormal will probably do a kidney biopsy to see if it is kidney related and what kind of damage there is.


Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 

Post Edited (aimsgirl16) : 10/8/2009 12:42:57 PM (GMT-6)


jesimae
Regular Member


Date Joined Oct 2009
Total Posts : 109
   Posted 10/8/2009 11:48 AM (GMT -7)   
Ouch! Not what I wanted to hear-hehe. Oh well, I will do what I must. Thanks for your help and support!
Jessica, diagnosis: unsure


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 10/8/2009 11:53 AM (GMT -7)   
correction...if it is Lupus related note Kidney related!!!! LOL, of course it would be kidney related...haha

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 10/9/2009 3:41 PM (GMT -7)   
Protein in your urine is called proteinuria and can be caused by lupus.  It is usally treated with an ace inhibitor like lisinopril and is not a condition that should be ignored because it indicates you have kidney dysfunction.
 
 
Find a doctor that will take you seriously to get a diagnosis of what is causing your kidney problems.
 
Bill
 
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/9/2009 6:50 PM (GMT -7)   
Please find you a new Dr. there are wonderful rheumy that care about you as a person not just a patient. I started prednisone on Sept.11 10 mg then 20 mg then back down to 10 mg and I don't seem to be getting better thank God I go to see my rheumy next week so we can finally fix this problem. I hope you feel better soon.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/10/2009 6:34 PM (GMT -7)   
I agree with all the others about finding a good doctor. When I started taking prednisone, I needed something for my stomach. My stomach got so bad I felt like it was being ripped apart and scraped raw. I have tried both prevacid and prilosec and they both work well and I no longer have stomach problems associated with prednisone.
dx: UCTD (lupus), sjogrens, reynauds,
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 10/11/2009 5:55 AM (GMT -7)   
 Hi , I agree , I stuck it out with my pc for years and just got worse , a rumey is the best thing u can do for your self . As for the prednisone , it does that to me a first to usally goes away quickly , good thing I 'm not a big morning eater , I take zantac , think it has more to do with giving me heart burn , that can cause nausa to . Hope u find your self a good rumey soon tc hagd .
                                      Crystal
Dx : Lupus , fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril , vicodin , as needed .

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