hair falling out

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kimberlyrenee
Regular Member


Date Joined Aug 2009
Total Posts : 43
   Posted 10/8/2009 8:38 PM (GMT -7)   
i'm taking plaquenil and i know it's a side effect, but i used to have a full, thick head of hair and now it's thin and scraggly-looking. i have a small patch underneath where there is no hair at all. will this keep happening until i lose all of my hair? someone please tell me that's not the case. is there something i can take or put on my scalp to make it stop happening? it's worst after i take a shower... and hair is all over everything, it's gross.
kimberly~

SLE, raynaud's, CFS


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 10/9/2009 3:50 AM (GMT -7)   
I was told by my doc that you can loose hair just by begin sick.
I am not taking any meds that make me loose my hair but it is falling out anyway.
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 10/9/2009 4:26 AM (GMT -7)   
Biotin is good for hair and nails....I've lost a lot of hair also... and have not been on plaquneil....

Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/9/2009 12:12 PM (GMT -7)   
I am taking plaquneil now,before I started taking it I as losing my hair also after about 4 months on it I notices my hair stopped falling out and it was actually getting thicker kinda strange to me but I will take it. How long have you been on plaq?
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


kimberlyrenee
Regular Member


Date Joined Aug 2009
Total Posts : 43
   Posted 10/9/2009 4:15 PM (GMT -7)   
about 6 weeks or so. i noticed hair falling out before i started taking it, but it's gotten a lot worse in the last 2-3 weeks. my scalp is also really tender. feels like i had it in a really tight hairstyle for a long time and just took it out? so weird.
kimberly~

SLE, raynaud's, CFS


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 10/9/2009 5:57 PM (GMT -7)   
my hair falls out pretty profusely when i start to flare, with or without meds . . . the only thing that stops my hair from falling out is rest and lots of it! my bathroom floor, sinks and shower usually look like a hair bomb exploded in them after i am done showering and drying my hair . . . it is really gross . . . we just keep a steady stock of draino on hand and the vacuum handy. it usually stops falling out when i cut back on my stress/commitments and get the rest i so desperately need.
Anne

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy


Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/9/2009 6:41 PM (GMT -7)   
kimberlyrenee
give it some time it will stop. Stress plays a huge factor as hard as it is try and stop stressing funny that I should say that I hear it all the time lol. I know the feeling of a tender scalp,I washed my hair the other day and it was very sore so I got out the hooded dryer and hot oil treatment wrapped my hair in a towel I microwaver for 15 secs and sat under the dryer for 30 mins. not only did it help soften my dry hair but the heat from the dryer relaxed my stiff neck and I read tons of The Shack. I know I kinda strayed a little lol,but try and be as stress free as possible,rest and drink lots of water,let your hair rest no hand dryer or flat irons things that get hot are not good for out hair (lupies). I am 33 and I love my hair so I know how you feel about losing it.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 10/11/2009 5:32 AM (GMT -7)   
                 Hi , I use folic acid , it works wonder , swear hair is thicker than it was before , I take a super vitiam B with folic acid twice a day . Both are good for u anyway , my step mom who has sjorgians told me about it , she uses it to . tc hagd
                                                      Crystal
Dx : Lupus , fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril , vicodin , as needed .

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