new to the site, need help!

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Monalisa <3
New Member


Date Joined Oct 2009
Total Posts : 11
   Posted 10/10/2009 1:11 PM (GMT -7)   
hello,
so i just got "diagnosed" last year and I've been on plaquenil ever since. They just started me on meloxicam cuz i'm scared of the prednisone. I'm in pain everyday and pretty weak and tired. My muscles hurt just from touching my face sometimes. I try not to complain at my job because i'm sure ppl are tired of hearing it. But sometimes I wish i could talk to someone about the pain i'm in and they understand what i'm going through. sometimes i can't move and i work in med records and so its hard to push through everyday. I'm getting depressed because i'll get a cold or the flu like 6 times a year and the doctors just say, sorry you have sle this is part of it. right now i feeli like i have the flu and i had to go to urgent care yesterday...it was a waste of time and money. it just sucks. i hate the way i feel and all the pain i'm in.
is this really part of having lupus?
 
 

Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/10/2009 1:22 PM (GMT -7)   
MonaLisa I am sorry you are hurting right now,just try and stay as positive as you possily can. Do you have a support system at home? I knwo how you feel I have beenin a flare for about a month now and yes it is miserable but this to shall pass it does get better,I know it is hard to see that right now but you will have totally awesome days. Unfortunately all you are going through is part of Lupus there are medications that your rheumy can give you that will help with the amount of times you may flare but you need to work real close with him or her in order to find the right combo for you. Hang in there. If you need to talk or just want to vent im here to talk with you or just listen. Email ablakey@yahoo.com anytime or just reach out on HW we all welcome you with open arms. Big hug!!
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/10/2009 6:28 PM (GMT -7)   
Hi and welcome. I'm sorry you are feeling so miserable and that you aren't getting any relief. Some people with lupus do tend to get sick more often than healthy people, but I don't think you should settle for feeling as miserable as you do right now. Like Jenks said, your doc needs to find the right combination of meds to effectively treat you. Your doctor should strive to give you the best quality if life possible. If he is not doing this, it might be time to look for another doctor. Hang in there.
dx: UCTD (lupus), sjogrens, reynauds,
meds: prednisone, plaquenil, methotrexate, tramadol, neurontin,
doxepin, folic acid   


Monalisa <3
New Member


Date Joined Oct 2009
Total Posts : 11
   Posted 10/11/2009 5:05 PM (GMT -7)   
thank you so much. i dont really have much support at home. my husband doesn't always understand and my mom usually just gets freaked out. i think as time goes on maybe i'll get used to everything. but right now, its hard. thanks for the encouragement and advice. :)

Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/12/2009 9:21 AM (GMT -7)   
Monalisa I hope you are feeling better today. Just remember when you are feeling like you need to talk or vent just log on and let it out here,we all know what you are going through and are here to support and encourage one another. Big Hugs! My mom freaks out to :) thats just moms for you.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.

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