What should i eat??

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fragileheart22
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/12/2009 10:07 PM (GMT -7)   
So i was recently told i have lupus and i was wondering what should i eat?? I 22 years old and i can tell you now im not healthy but since im kinda stuck with this dis-ease i want to work with it. Any suggestions??
 
What ever you have would be really helpful!!!
 
Fragile heart22

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/13/2009 12:44 AM (GMT -7)   
Hi fragileheart22,

I'm no expert on the best diet for lupus per se, but I've read so many articles and papers recently that seem to point towards a more "primitive" diet as being healthier in general for many different medical issues, especially autoimmune diseases. By primitive I mean closer to the basic hunter-gatherer diet; there are a lot of variations out there but basically they boil down to two slightly different approaches:

1. the SCD diet (Elaine Gottschall) - unprocessed foods, low carb (meat, fish, chicken, veggies, fruit, nuts), includes dairy products.

http://www.scdiet.org/

2. Paleo Diet - unprocessed foods, low carb, similar to SCD but no dairy.

http://www.paleodiet.com/

Best wishes....take care!

JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/13/2009 9:23 AM (GMT -7)   
On the other hand, I've never seen any diet "prescribed" for lupus -- we need to avoid alcohol & illegal drugs, as they interfere with our meds. Some of our meds are hard on liver & kidneys, so it's good to do things to keep those organs as healthy as possible.

I eat anything I think of and some things I'd rather not think of --- sometimes what I eat corresponds to how I feel, sometimes it seems to have nothing to do with it.

A general healthy diet should be fine - 40% protein, 30% fruits/vegetables, 30% complex carbs.

Anything else you want to try ia always interesting! :-)
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 10/13/2009 11:38 AM (GMT -7)   
Some people also recommend a gluten free diet. I've never heard that from an MD, although have heard stories from other lupies and from a naturopath that a gluten allergy can manifest in many ways, including ai diseases. This is not a recommendation from me, just sharing what I have heard. I personally feel better when on a gluten-free diet.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 10/13/2009 7:23 PM (GMT -7)   

I'm going to chime in here on the gluten free diet.  I've recently been diagnosed with Celiac and have been attending classes on how various foods impact our health (beyond gluten free).  There is quite a link between celiac and other autoimmune diseases, including lupus and MS.  Celiac disease can create quite an overlap of symptoms that show up similarly to the symptoms we all experience here.  I ignored it for years because I thought the main symptoms were GI related, but that is often not the case.  Muscle aches and pains, joint pain, brain fog, fatigue, headaches, .....the old familiars...are among the common ones, along with thyroid problems and osteoporosis.  The malabsorption it causes creates numerous issues.   Undetected Celiac can often progress to AI problems as well as cancer.   According to my doctor, medical students spend about 20 minutes on Celiac, and then long careers missing or ignoring the signs and symptoms.

Along with a gluten free diet, it's important to eat fresh, locally, and seasonally whenever possible, eating as few processed foods as you can manage.  Omega 3 eggs - lots of fish, very little in the way of vegetable oils, and not as much poultry as is generally advised.  Because of the way it breaks down the corn diet - it is loaded with Omega 6.  Which is another whole subject.  We are overloaded with Omega 6's in our diet and need to reduce them and increase Omega 3.  Avoid artificial sweeteners as well as the "natural" ones like Stevia.  Flax seed has lots of Omega 3, but we don't break it down advantageously, so it's better to eat the Omega 3 eggs (flax seed fed chickens).  The hardest for me has been giving up nuts, seeds and garbanzo beans (i.e. hummus).  All of this is because of the high amount of Omega 6 they contain.

http://efaeducation.nih.gov for Omega 3 vs. Omega 6 info and guidelines.  Good luck - starting while you are still young is the best thing you can do.

Lucy

 


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/13/2009 7:24 PM (GMT -7)   
PattyLatty said...
Some people also recommend a gluten free diet. I've never heard that from an MD, although have heard stories from other lupies and from a naturopath that a gluten allergy can manifest in many ways, including ai diseases. This is not a recommendation from me, just sharing what I have heard. I personally feel better when on a gluten-free diet.


Absolutely!! FYI, both the Paleo Diet and the SCD diet are gluten free. I think that anyone with an autoimmune disease should at least try going gluten free, to see if it helps!

JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Monalisa <3
New Member


Date Joined Oct 2009
Total Posts : 11
   Posted 10/13/2009 7:34 PM (GMT -7)   
OMG my mom kept telling me about this and i never listened. lol. well maybe mom was right! i have to try this :)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/13/2009 7:37 PM (GMT -7)   
Well, I'm feeling pretty well these days WITHOUT trying gluten free, I think it would make me very very cross. (Or crosser.)
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/14/2009 7:38 PM (GMT -7)   
I think its a good idea to get tested for celiac before going gluten free because I think it doesn't show up positive on the test if you are abstaining. Its very important to know if you have this problem because there can be organ damage, like brain damage from it possibly.

And for me, like Lynnwood, not eating gluten would probably be the straw that broke the camels back. I already have a bunch of other restrictions. I might as well live on ensure or something.

I do think its important to follow some guidelines on limiting estrogenic foods, avoiding toxins like pesticides by washing food well, and to get a lot of antioxidants. Get good food and cook it healthfully at any rate.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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