update- rheumy visit today

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Monalisa <3
New Member


Date Joined Oct 2009
Total Posts : 11
   Posted 10/14/2009 7:54 PM (GMT -7)   
so today i went and saw my rheumy cuz i've been feeling really sick and in tons of pain. she said that i'm showing signs of fibromyalgia and reynauds so they want me to try some new meds. first off...OMGoodness??? what is fibromyalgia?? well i guess i know what it is but from my understanding it means that your brain thinks you're in pain when you're not. so does that mean that when i'm feeling pain in my joints its all in my head?? i totally dont get it. and aparently it can make me feel tired and weak and sick??? this is strange....if you feel sick, doesn't that mean you're sick?? and why would my brain trick me into feel dizzy and nauseated if i'm not??? i'm totally confused and it makes no sense...AT ALL. please give me some input......

Post Edited (Monalisa <3) : 10/14/2009 8:58:45 PM (GMT-6)


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 10/14/2009 8:26 PM (GMT -7)   
Monalisa <3 said...
so today i went and saw my rheumy cuz i've been feeling really sick and in tons of pain. she said that i'm showing signs of fibromyalgia and reynauds so they want me to try some new meds. first off...OMGoodness??? what is fibromyalgia?? well i guess i know what it is but from my understanding it means that your brain thinks you're in pain when you're not. so does that mean that when i'm feeling pain in my joints its all in my head?? i totally dont get it. and aparently it can make me feel tired and weak and sick??? this is strange....if you feel sick, doesn't that mean you're sick?? and why would my brain trick me into feel dizzy and nauseated if i'm not??? i'm totally confused and it makes no sense...AT ALL. please give me some input......


Hi Monalisa < 3,

I'm so so sorry to hear that you may have fibro....I have fibro and it really sucks! Fibromyalgis is NOT all in your head. For some unknown reason, pain is amplified in fibro. Something that should hurt only a little suddenly hurts A LOT! The pressure of a blood pressure cuff can send me through the roof on a bad day!

From the Mayo Clinic (www.mayoclinic.com/health/fibromyalgia/DS00079):

Fibromyalgia is a chronic condition characterized by widespread pain in your muscles, ligaments and tendons, as well as fatigue and multiple tender points — places on your body where slight pressure causes pain.

Fibromyalgia occurs in about 2 percent of the population in the United States. Women are much more likely to develop the disorder than are men, and the risk of fibromyalgia increases with age. Fibromyalgia symptoms often begin after a physical or emotional trauma, but in many cases there appears to be no triggering event.


I've always heard that it affects the soft tissues in your body, such as those listed above: muscles, ligaments, and tendons. It doesn't cause pain in your joints...the American College of Rheumatology classifies it as a type of Soft Tissue Rheumatism:

www.health24.com/medical/Condition_centres/777-792-816-1785,15671.asp

But you say that your joints hurt? You may have something other than fibro, or you may have fibro plus another condition like rheumatoid arthritis. You probably want to discuss this further with your doctor.

Of course, there are lots of other fibro symptoms besides pain, such as brain fog, fatigue, vertigo, peripheral neuropathy, muscle spasms....well, it's a long list.

There is a fibro forum on this site....please go over there and read Fibro 101 (www.healingwell.com/community/default.aspx?f=24&m=1609914); it's very helpful. And please feel free to post any questions at all on that forum; they're a great bunch of people!

(((very gentle hugs))))
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com

Post Edited (nasalady) : 10/14/2009 9:29:59 PM (GMT-6)


Monalisa <3
New Member


Date Joined Oct 2009
Total Posts : 11
   Posted 10/14/2009 9:27 PM (GMT -7)   
well, i also have Lupus (SLE) so i have joint pain a lot and sometimes the medicines give me icky side effects...

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/14/2009 9:33 PM (GMT -7)   
Monalisa <3 said...
well, i also have Lupus (SLE) so i have joint pain a lot and sometimes the medicines give me icky side effects...


I know how that works! It's really hard to separate the side effects of the meds from the symptoms of the illnesses, isn't it!
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/14/2009 9:45 PM (GMT -7)   
Hi Monalisa, well it sounds like you got some really good advice from nasalady. There are a lot of people here that have fibro. Yes it's true that doctors are just getting to accept the fact that it is a real disease. They used to say it wwas all in your head. You might read through some of the posts in the fibro section here. I have no answers for you. I am fortunate not to suffer from it. Just don't beat yourself up. It's not in your head. I hope the meds the rheumy gave you start working for you real soon and you get some releif.
hugs
carol

systemic sclerosis sine scleroderma,sleep apnea,Megaloblastic anemia
what ever that is.
 
 


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 10/15/2009 7:11 AM (GMT -7)   
Hi Monalisa, Nasalady gave you great advice. Okie is right about not beating yourself up.

I also am a fibromite. Just wanted to give you a big gentle hug. I post here and the fibro
forum. Both forums have wonderful, caring and supportive people. Take Care.

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/15/2009 5:52 PM (GMT -7)   
Hi Monalisa,

I don't have fibro but wanted to let you know I can relate to the "dizzy and nauseated" feeling :( I've had the unsteady feeling when I walk for over a month now and nauseated for 7 days straight, not just a little nausea either.... severe..... like I was ready to go to the ER! I've been out of work all week. My neuro ordered an MRI which I had today (with a bonus phenergen shot) to see if lupus is attacking my brain or if it's another bad flare!!!!!!

I do hope the meds work for you and that you feel better soon! Sending gentle hugs your way.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

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