questions about Pred

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jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 10/17/2009 7:56 AM (GMT -7)   
Most of you know that pred is not a part of my daily meds and I've only taken it one other time but the dose and time was much smaller. I am starting off on 20mg for 3 days and decrease by 2.5 every 3 days.

I know this is not a high dose like some of you take, but what should I expect? Should I watch my sugar intake, will I get the moon face or gain weight? Any other suggestions?

Thank you!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 10/17/2009 8:21 AM (GMT -7)   
Stacie!!! I know you are going to start feeling so much better pretty quick!!! bout the pred, when I was first put on a dose pack I gained a few pds but I lost it a few days after it ran out. I would watch you sugar/carb intake because if you get cravings, that is what you will crave...of couse you won't crave the foods that are good for you. I would make sure to stock up on fruits and vegies like carrots, brocolli...snack things. The moon face varies...in january when I was on high doses I got a massive moon face but now i have been on the same dose for 2 months with very little weight gain. You might have mood changes so prepare the people you are around for that!!!! I sure hope this works for you and gets your flair under contol :)!!! Keep us posted.

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril, hydrochlorothiazide, Midrin, Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/17/2009 8:23 AM (GMT -7)   
You might want to be careful about eating simple carbs, pred does give us urges to eat these & this is what the weight gain/round face is often about -- but a short dose like you describe shouldn't be a puffy or weight issue anyway.

You may have trouble sleeping! It's okay to take something to help with sleep -- sleep is so very important to our healing process. There are lots of over-the-counter options, just check with the pharmacist, the dr, or a rug interaction checker like www.drugstore.com/pharmacy/drugchecker/default.asp to make sure you are safe.

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/17/2009 9:27 AM (GMT -7)   
Thank you Amy & Lynnwood for the info and suggestions. I do feel better just after one dose! My hubby could tell a difference as soon as he walked in the door last night. I have some strength back so that is a good sign.

I will stay away from sweets and limit my carbs. I am already on a gluten free diet but the only think I've been able to eat are gluten free bagels, but at this point I'm pretty tired of them. My mom made me some GF chicken n dumplings and brought them to me last night... oh they were so good, really hit the spot! I am also taking the pred with lunch instead of dinner, hopefully I can avoid the sleeping problem! If not I will take a look at the links you gave me Lynnwood (thank you).

I will be sure to warn people of mood swings ;) I forgot about that nasty side effect! ;)

Thank you again!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/17/2009 9:49 AM (GMT -7)   
I don't know what the results will be as far as weight gain, etc., but I do hope it makes you feel much, much better. You really need this help at this point. Good luck with it, Stacie.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/17/2009 10:18 AM (GMT -7)   
I wanted to echo Lynnwood. I seem to have insomnia even on small doses which can be so frustrating and compromise your well being. I don't take a "sleeping pill" but sometimes I use benadryl or tylenol pm to help get some rest. I'm glad you are feeling better. The stuff is amazing! Judy

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/17/2009 12:20 PM (GMT -7)   
Thank you Pat & Judy,

I am feeling better with the pred so far, I know it's a med that is hated but is necessary. I am hoping I will be able to sleep with no problems!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 10/18/2009 10:16 AM (GMT -7)   
20mg is a moderate dose only 1/3 what is considered a maximum dose.  Most of the bad side effects come from long term use and you should not anticipate side effects like weight gain, moon face, etc.  As has been suggested you might become irritable or have trouble sleeping but maybe not...it has never affected me that way and I have been on pred for over 4 years.
 
I did not gain weight (a lot of that has to do with your diet) but had a moon face and prednisone belly (that is a redistribution of fat caused by pred, not weight gain) that eventually went away as the dose was lowered.  The worst side effect I had was hypertension so I was lucky because that was treatable.  It is a good idea to stay away from simple carbs...for lots of reasons other than pred.
 
 
You will probably be ok as most short term treatments do not produce the dreaded long term side effects.  My grand daughter has to take it for another AI disease occasionally and she gets a moon face within a few weeks which goes away almost as fast.
 
Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/19/2009 12:53 PM (GMT -7)   
jhmom said...
Thank you Pat & Judy,

I am feeling better with the pred so far, I know it's a med that is hated but is necessary. I am hoping I will be able to sleep with no problems!


Stacie, I'm so glad to hear you're feeling better!! I had a little trouble at first with sleep when I started pred but adjusted quickly.

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/19/2009 3:10 PM (GMT -7)   
Thank you Bill and JoAnn,

I seem to be having a little trouble getting to sleep but hopefully it will pass. The nausea still creeps up here and there but nothing compared to what it was like last week and of course the floaty feeling has come back :-(

But the good news is, my MRI was clear! So I am following up with my rheumy to see what she wants me to do next. THanks again everyone!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/19/2009 3:23 PM (GMT -7)   
Wonderful news about the MRI!! Keep us posted!

Praying that you feel even better very soon,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 10/19/2009 4:35 PM (GMT -7)   
So happy to hear that your MRI was clear - that, at least, is one load off!  Good luck on the pred.  Let us know what your rheumy thinks, and try not to overdo it when you feel better while on the pred....that has gotten me into trouble before.....
take care,
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 

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