Sick yet again

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/18/2009 6:24 PM (GMT -7)   
Hi all:

Sorry I've not been posting to much as of late. I've been reading about everyone and saying prayers for you all. I've been feeling very poorly for the past three weeks. I caught a flu bug from my daughter on Friday. I ended up in the ER with a temp of 103.5 and yes I did feel really crummy. The doctors decided instead of admitting me this time, they chose to put me on Tamiflu and Avelox. The tamiflu is to cover me in case we've got swine flu in my home, and the other is to care for me to avoid pneumonia or anything like it.

Well when I got home from the hospital, I had to take Nikita out to find shoes for homecoming dance. I took the tamiflu on an empty stomach and wouldn't you know I started vomiting like crazy. I was so sick I had to have my daughter drive us home. Now why is this a big deal? Nikita is just learning to drive and she had to drive in the dark, at night, with the rain falling and me puking in a bag in the front seat of the car. Needless, to say she's not been happy with me nono nono nono Mom's driving her nuts.

Nikita is the one who had this first, and now Bill has it in addition to me. Hopefully we'll all recover quickly. I'm still feeling quite sick but I think my fever has broken. Nikita managed to find some shoes she liked yesterday and then poof she was gone LOL smhair it's amazing how quickly they grow up and want to leave the nest. I know she still has two years to graduate exactly, but I'm sure her Junior year will fly bye and she'll only have her senior year to do.

I spoke with Okie (Carol two days ago and she's back in the hospital for her lung issues) I'm sorry I'm late getting this out, but like I said I'm pretty wiped out over this dumb flu. As of this afternoon Carol was still in the hospital. So please keep Carol in your prayers. Well, I need to run starting to feel sicker by the minute. Hope you all are doing better than me and feeling even better than I do. Please keep in touch and I'll send you a personal email if you'd like. Just let me know if you need to reach me by email.

Have a good evening and please, please take care. Hugs to you all and sleep well my friends.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Post Edited (Barbara Lee) : 10/18/2009 7:27:00 PM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 10/18/2009 7:01 PM (GMT -7)   
Nikita...what is she thinking? Most kids would *love* the chance to drive!

Ah, well, we know they are all different.

Hope you, Bill, and Carol all feel better soonest!
Lynnwood, Lupus & Sjogren's Moderator
Life is far too important to be taken seriously. - Oscar Wilde, 1882


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/18/2009 7:35 PM (GMT -7)   
Gosh Barbara, tis the season... I take this really good cancer nausea med, medicare will only pay for 26 of them a month, I have to brek them in half sometimes,but they don't have the side effects and my liver likes em. I forget the name, they are oval and pale yellow and there is no generic.

It is really scary having your kids drive, my son had to drive me home from Savannah to west of Brunswick after my neurosurgery and it was very sobering. He'd never driven on highway before, let alone 95, and I couldn't move much, just kept praying and giving it to God. There wasn't enough morphine to make that trip comfortable, and he did a great job. Its just that you've seen the past mistakes.

I managed to get the regular flu shot, but I don't knowwhat they are doing about the H1N1. Hygiene isn't big in many households where I live, and the people tend to just bring their sick kids everywhere, figuring everyones gonna getit anyway. Handwashing is supposed to be key. I feel bad for the kids though, its not their fault. I hope you get to feeling better soon. I hate throwing up. Its good to hear you posting and getting around and being home. I bet you are gearing up for fall and all the celebrations and holidays. I have been praying for you and really pushing for you to be well ehough to be home, and to do some things you want to do. I've also been praying for your family and its good to hear they are doing good, except for the flu. Its just so good to hear from you and please know I care and I"m thinking of you and sending lots of love and positive thoughts to you, and Carol too. You two are foremost, somethings got to give so you guys have some positive medical treatment tht actually fixes stuff and improves your life more. I keep waiting and have faith that it will happen. (((((hugs)))))
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/18/2009 8:25 PM (GMT -7)   
Oh Barb, I'm so sorry. I guess your immune system is so weak that it's inevitable that you would have gotten the flu. I know this is hard on Nikkita, and she probably projects a lot of her own fears about her health on herself. Please take care and get over this flu real soon.

I didn't know Carol was back in the hospital. We talked just a few days ago. Do you know where she is? I'll try to give her a call tomorrow. Call me when you're up to it.

Hugs,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


python
Regular Member


Date Joined Apr 2003
Total Posts : 104
   Posted 10/20/2009 3:38 PM (GMT -7)   
Barb, I'm so sorry to hear you've been battling the flu. I hope you feel much better soonest!  Wishing you good health and gentle hugs.
Donna
MCTD (SLE, Scleraderma, polymyocitis), Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/20/2009 4:02 PM (GMT -7)   
Hi Lynn, Marji, Pat and Donna:

Thanks for the posts, I'm hanging in there. I saw my GI today and he informed me that I have Influenza type A, my culture came back positive for it. So tomorrow at 7:30 I have to go see a doc in the internal med clinic. Actually, she's a nurse practitioner. Not sure if they'll admit me or not. I still feel pretty crummy, I hope they don't admit me tho as my father is going thru a terrible time. We just found out that he has stage III esophageal cancer that's inoperable. I've offered to go home while he does his chemo and radiation over the next 7 weeks but he's said no for now.

I'm very worried about my Dad he's my rock and I've already lost my Mom to cancer. I just don't know what I'll do with myself if I loose Dad to the darn disease. Please say a prayer for Tom. He gets his port thursday put in and starts chemo and radiation on monday. Thanks for you advanced prayers.

Hope you are all having a good evening and know I love you and you're in my prayers.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/20/2009 4:15 PM (GMT -7)   
I'm so sorry about your dad's diagnosis Barbara. I will be praying for him! I hope you feel better soon. I just got over the flu and bronchitis. Did they give you Tamiflu? It helped me alot. God Bless you, Judy

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/20/2009 4:28 PM (GMT -7)   
I am so sorry all this is going on with you. Carol and you are both in my prayers.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 10/21/2009 11:00 AM (GMT -7)   
Wish I knew how to send some homemade chicken noodle soup thru the wires.

Thinking of you,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 10/21/2009 6:22 PM (GMT -7)   
(((hugs))) my friend. I hope you and your family are up and around real quick. Sending lots of prayers and good wishes your way and also for your dad.

Love Julia

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/21/2009 6:32 PM (GMT -7)   
(((( Barb )))) I am sorry to hear you are sick. Praying you all feel better soon! Take good care of yourself!! hugs and love
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


CassandraLee
Veteran Member


Date Joined Feb 2003
Total Posts : 844
   Posted 10/24/2009 7:28 AM (GMT -7)   
Barb:
 
I am so sorry to hear that you're sick again.  I was getting worried as I've been watching to see if you had posted at all.  It has been a long time since we have chatted.  You're always in my thoughts and prayers and I'm hoping that the doctor/nurse will do whats best for you so you can start feeling better again.  And I'm truly sorry to hear about your dad.  You're being hit with a lot right now.
 
Please continue to hang in there!
 
Cass

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 10/24/2009 8:58 AM (GMT -7)   
Barb is still feeling pretty bad, she has influenza A and so does her husband. She has been on oxygen for a while so the flu in the lungs and the coughing are driving her mad. She has also been unable to keep the Tmaiflu down.

Barb has been in constant contact with her doctors - they don't want to admit her to hospital for fear she could catch something else, so are holding off to see how she feels on Monday.

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/24/2009 8:05 PM (GMT -7)   
Hi All:

Lynn is correct I'm feeling very poorly. My sister in law called a bit ago and informed me she thinks I've got the swine flu. She's a doctor and said that she'd bet money on the fact I've got it. Swine flu falls under the category of Influenza type A. I've been sick over a week now and don't seem to be improving. I'll be going back to the Dr on Monday and see what they have to say. I tested positive for the Flu type A and I guess I'll get a swine flu test done on Monday. The Tamiflu and I didn't react to well together so I've only managed to keep down 1 of the pills. Maybe that's why it's taken me so long to get over this bug.

I spoke with Carol yesterday and she was very scared she was dying and was gonna be put on a vent. Please keep Carol in your prayers. Hope you are all doing well and avoiding the flu. Please take care of yourselves and thanks for your prayers and well wishes. I'm gonna go back to bed. Thanks for everything.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/25/2009 10:13 AM (GMT -7)   
Barb, I wondered the other day when we spoke whether you might not have the swine flu. I hate that you have to wait till tomorrow to get medical care. Please take extra good care of yourself!

I've tried to call Carol but got no answer. I haven't said anything for fear of sounding hystrionic, but I am very worried about Carol because of a conversation her pulmonologist had with her.

I've been keeping you and Carol in my prayers.

God bless,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/25/2009 8:04 PM (GMT -7)   

hi all,I don't want to high jack the post but my body is too tied to try to start over. Ijust want to thank you all for your thoughts and prayers nd phone calls. brief update i'm still on iv drips after 9 days. I walked 3 steps tday and leaned over the bed for about 10 mins to catch my breath. As barb said I do fear time and again that I won't get through this. I can't contain my bowels at all and have requested a 3rd c diff. All thogh I am basically unable to post responses I have great fear for my lupy friends this year. Soo much has happened with everyones health and yet it is only october.  please know I am reading your posts and praying for your return to health. Try to take care of yourselves and if at all ossible shop online or whatever it takes. With so much stress health financial uncertainty we need to take extra TLC. remember anxiety can kill. and lupies do get lots of that. Try to stay under the blankies and drink lots of rosies tea.

Pat can't wait til I hear abot the new addition and barb let us know when you get home. thank you my friends

all my love

carol



systemic sclerosis sine scleroderma,sleep apnea,Megaloblastic anemia
what ever that is.
 
 


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/1/2009 6:44 PM (GMT -7)   
Can I just say that ALL of you are an inspiration. I heard that Barb wasn't doing so well, so I thought I'd stop here in the Lupus forum and see what's up. Barb, you have been through so much already and I hope you start getting better soon.

My reason for thinking that you're all inspirational is that despite what is going on in your own health battle, you are all there for each other, praying and posting and thinking of one another. It truly is amazing, and gives me strength (in my little battles compared to yours) to go on.

My thoughts and prayers are with you all, and I hope your struggles lessen in the coming days. ((hugs)) to all of you!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 11/1/2009 6:55 PM (GMT -7)   
Barb and Carol I am thinking about both of you and hoping and praying for God's gracious balm of healing!!
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/2/2009 6:57 PM (GMT -7)   
Barb and Carol--so good to hear from both of you. I am praying for you and hope you both get better soon. The thing that is so awful that my docs just don't get is how these conditions just seem to snowball, and how that makes the patients feel. I am so sorry you are both so sick. I hope you both catch a break soon and are resting comfortably till you get through this. When I got bad pneumonia and they didn't think I would live, in the middle of the worst part this incredible peace passed over me and it scared me alot because I thought I was dying right then, I suddenly just could no longer care I was so sick, but a good friend told me with a smile "you're not gonna die, that's just the peace that passeth all understanding, just go with it" and I did and I gave up and relaxed, quit fighting and freaking out for a bit, and rested and stopped fighting, and I started getting better. Sometimes you just have to rest, you body demands it. I just wish it was more polite about it. Its scary to have that peaceful feeling while you are fighting so hard. I guess every now and then the body dumps some good chemicals like endorphins out along with all the rest.

I am praying for you both specially, you guys don't deserve any of this and that you get some peace from your bodies fighting so hard so you can get well soon.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 11/5/2009 6:12 PM (GMT -7)   
Hey Barb,

Just wondering if that nasty flu is still giving you a hard time? I hope it's gone on it's merry way and left you feeling better.

Hugs,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 11/6/2009 5:33 PM (GMT -7)   
Hi Barb,
   Bless your heart sweetie...(((Hugs))).  I hope and pray by now you are feeling a bit better. You have been through so much lately. . I'm praying for you and your dad. We we spoke last you were very worried about him. Please take care and i hope bill is feeling better too. You are such a dear friend!!    Love you,  Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/6/2009 5:44 PM (GMT -7)   
Barb and Carol ((((((((((((((hugs))))))))))))))))).  I've been gone too long. I needed a break, but I've missed everyone.  I'm so sorry you're dealing with the flu Barb.  It's a real fear for me too.  So many people getting it. Scary.  I hope the Tamaflu really kicks in for you, minus the vomitting!
 
Carol, it just kicks kickin' you in the butt doesn't it?  I'm praying for you and hoping you do get through this go-round.  My thoughts are always with you.
 
love
ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in to be content. Phillipians 4:11-13
35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, PTSD. Prednisone, Imuran, Plaqunil, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6,
 Moderator for the Lupus and Fibromyalgia forums


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 11/7/2009 12:31 PM (GMT -7)   
(((((Barb)))))),
     I hope the flu symptoms will ease up for you soon. I just don't know what to say! My heart goes out to you sweetie. You just can't seem to get a break. You are always in my thoughts and prayers. I know I haven't been around for you much and I appoligize. You are such a good person and always support everyone no matter how you feel.
     Take care sweetie and rest.       Love you, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/7/2009 10:22 PM (GMT -7)   
Just hope you two are doing okay. I'm praying for you.
Love, Marji
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/8/2009 9:38 AM (GMT -7)   
Barb, I has been a week since you've posted here. Are you recovering from the flu yet? I worry so much about you.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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