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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/19/2009 5:57 PM (GMT -7)   
I spoke with Carol this morning and she does not sound well. It's her lungs and she's on oxygen at home, and they have her on it in the hospital. There seems to be some discrepancy in doctors' opinions. Her pulmonologist doesn't understand why the transplant team wants to "wait and see" for a year, and told her that she should be at the top of the list for a lung transplant. He asked her if she had a DNR. She doesn't because you can't be on the transplant list and have a DNR. I'll stay in touch with her and keep you guys posted. I'm sure Barb will be talking to her too.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/20/2009 9:31 AM (GMT -7)   
Please tell her i'm praying for her! She's been through so much! Judy

Jenkstrojanmom
Regular Member


Date Joined Sep 2009
Total Posts : 44
   Posted 10/20/2009 10:21 AM (GMT -7)   
I don't know her,but please tell her she is in my prayers. I hate to see that she is going through such a rough time.
 
JenksTrojanMom
Lupus,Sjogrens Syndrome,R.A.
Mother of one wonderful teenage son,blessed wife
33 yr old  Teacher Assistant in Okla.


python
Regular Member


Date Joined Apr 2003
Total Posts : 104
   Posted 10/20/2009 3:29 PM (GMT -7)   
Please tell Carol I'm praying for her also and I hope she feels better soon.
Donna
MCTD (SLE, Scleraderma, polymyocitis), Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/20/2009 4:29 PM (GMT -7)   
I hope Carol improves and feels better soon
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/21/2009 7:42 AM (GMT -7)   
I spoke with Carol yesterday and she sounded much improved. She could actually talk. I don't know how long she'll be in the hospital, but her plans are to get into physical therapy again and move into her own place.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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