Bad increase in symptoms..im scared :(

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Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 10/24/2009 12:02 PM (GMT -7)   
Since last night I went from feeling a little ehh to totally unable to do anything. Im weak/shakey/fatigued all over, I have a bad rash, another mouth ulcer which makes 6 in this flare/month alone, I have burning pain/tingling/heaviness/stiffness all over my body. Theres so much pressure in my head and im having bad dizziness. The vertigo is worse when Im sitting or laying down. I am eating and drinking so I know its not dehydration. I cant think or do anything. The constant ringing in my ears is also louder which that and the vertigo makes it really hard to sleep. I have tried taking a 5mg percocet which makes it a tiny bit easier with awareness and moving but only for a short time. It wears off really quickly. Its so hard to move or think and I am in college and have a test monday. Luckily my bf is home to help take care of my 2 year old son. Does anyone have these symptoms? I really think its cns lupus and I stressed to my dr in an email that my meds aren't working. This is the worst I have ever felt regarding these symptoms. Help! :( -Brittanee confused shakehead
 
 
*Lupie Britt*
 
-UTCD(Lupus)- 
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Flonase Nasal Spray- twice daily; vitamin- once daily; Protonix- 40mg once daily; Dexamethasone suspension for ulcers; occasional excedrin migraine.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/24/2009 12:23 PM (GMT -7)   
Britt,

I hate to hear that you're symptoms worsened so quickly. I don't have symptoms similar to those you describe, but maybe others here have and can explain them to you. I think you're doing the right and only thing you can do which is to rest your body. Be sure to call your doctor first thing Monday morning. Hopefully they an give you something that will make you feel better. I feel for you. You have quite a load, taking care of a two year old and going to school. I hope the vertigo subsides quickly

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/24/2009 1:55 PM (GMT -7)   
time to call in a neurologist who understands what lupus can do to the brain. seriously cns lupus is dangerous.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


flower woman
Regular Member


Date Joined Oct 2009
Total Posts : 40
   Posted 10/24/2009 4:15 PM (GMT -7)   
I can identify completely with your symptoms though you have a lot more on your plate with childern to care for! I was so bad once i could'nt drive for 6months and i was'nt fit to go anywhere either and i was scared so i rang the lupus nurse and she got me an appointment with my consultant wishing i had'nt left it for so long...it started off more suttle and i did'nt want to be a nusience! They increased my plaquinil to 400mg a day which helped and at a follow up appointment they put me on predisalone and i've not managed to come off to date! Sounds like you need a visit and an adjustment of your meds! I became very light sensitive a few years ago though i've had active lupus with regular flares for 9years...its a real learning curve this illnes! I cant read in a flourecent lit area but ok in daylight! Do you have a problem with lighting? I hope you get things under control soon x
SLE sufferer with APS on plaqanil,mepacrine,pred dose dependant on flares,asprin,omeprazole,calcichew D2,fluoxetine and various pain meds.


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 10/28/2009 12:46 PM (GMT -7)   
Hey flower I am already on 400mg plaquenil everyday since back in june. It has not really helped me except for joint pain which I still get at times anyway. I have very bad sensitivity to sun and fluorescent lighting. I get a rash and it causes headaches. My drs are trying to avoid pred though because of side effects. However Im going to see a neuro in nov for all this. I am keeping a log until then. I hope I get some answers :/ Thanks again all and hope you are well :) *hugs* -Lupie Britt
 
 
*Lupie Britt*
 
-UTCD(Lupus)- 
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Flonase Nasal Spray- twice daily; Dexamethasone Nasal Spray- 3 wk intervals; vitamin- once daily; Protonix- 40mg once daily; Neurontin- 300mg once daily at bedtime; Dexamethasone suspension for ulcers;  excedrin migraine- as needed.

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