Hi ladies, thanks!
Yes Pat I have pretty much had it with everything. I have an appt first thing tom. with my PCP. She asked me If I wanted a motorized wheelchair or a scooter. Physical therapy was suppose to start this week but the company that works for me refuse to come out this far., I'm trying to do a few things by myself but I just look like I got a couple of clubs on the end of my legs. I swear I feel like I am being attacked. Then this rash everywhere that looks like I have shingles. . As for the pain meds I have them myself. My doctor gives me 120 month. She increased them to 10mg. Plus I have the fentynal patches but I am to scared to use them. I will say though if I need them I will use them. You can count on that!
The apartment is put together where I think It will help me if I realy need it to. I'm very greatful for all the help I have been given. I don't know . I already heard the smart remarks about I'll get lazy and not doing anything.
I really can't wait to get moved. I have a couple things I will need like a washer and dryer. I'll let ya know when I get moved and you can come spend the night. Sorry for all the typo's my mind keeps floating away. I'm doing the phyco bable steroid dance right now. I don't even remember what sleeping is like anymore. I was on 125 mil. salumedrol in hospital. then down to 60 and then to 40. So hopefully I catch up on much needed sleep soon.
thanks again ladies.
Hope you are better, soon. If you are using an nasal cannula, could you try wearing it over your head instead of looped around your ears? So it sorta snugs up at the back of your neck when you are laying down. Maybe try a barrett in your hair or some paper tape could anchor it over your cheek bones if you could stand that for awhile. And I found that some very soft but snug leggings keep my thighs from rubbing, and my cellulite from jiggling so much. Maybe you could try an ace bandage, too. There is a good kind that sticks on itself. Just be sure you don't wrap it too tightly, and start the spiral going once around itself even to anchor the start end, then in upwards spiral so that the wrap is equally spaced at about a 45 degree angle, and with gentle pressure as you wrap UP your leg. I use a wedge pillow under my mattress to raise my feet up abit at night. Latex sensitivity is a good thought, maybe you could ask your family dr. for a few inches of narrow stockinette gauze, it's a lightweight cotton gauze tube, that could be taped loosely around the cannula tube where it rubs over your ears. God bless with your move, hugs,
ps. scooter speed limit is 55, so NO speeding tickets!
thanks for the info. Yes you are right because I found out about 10 years ago that I am allergic to latex. I have a few nasty scares from when they removed my tape and i.v.'s back then. The oddest thing is just under my breast the rash just has no give what so ever. Now it is moving towards the right side as well.
Suetoo, I'm gonna see if I can find a place on the net that shows a pic of the tape around my (celulite). I've been using cannula's since 04 so I'm not real sure what the problem is there.
The peppercillian is a new drug for me so maybe that is part of the problem? Possibly too much antibiotic. I got a blood test done this afternoon maybe that will give me some ideas. Plus I had a nasty case of thrush that isn't quite healed yet.
well thanks for all the response. i'M TIRED!!!!!!!!!!! ,