It's a miracle!

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Date Joined Mar 2006
Total Posts : 2570
   Posted 11/18/2009 11:14 AM (GMT -6)   
When I was seeing my last rheumy my labs all came back negative which told us that my lupus is quiet. (remission?????) So I asked her why, if my lupus was quiet, did I feel so bad. Her response was that I should see a psychiatrist to deal with depression. Then she walked out of the examination room.

So I found another rheumy, and when he examined my body, he commented, "You have a lot of pain!" He gave me a script for lortab. I obtained all of my past records for him and after he reviewed them and examined me for the second time, he said the same thing and prescribed lyrica. He told me (this is probably no surprise to most of us) that many, if not most people with lupus have a lot of fibromyalgia pain.

I'm here to tell you that for me, lyrica is a miracle drug. I feel almost normal for the first time in 5 years. I have much of my old energy back and can do a lot of things I haven't been able to do for the past 5 years. And my pain is better. I still take the lortab, but usually only one or two a day.

So I decided to taper off prednisone, and I'm down to 1 mg a day! I'll be off of it within a couple of weeks. I honestly never thought I'd see this day.

There is hope, folks!
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 11/18/2009 11:50 AM (GMT -6)   
I am so glad you found something that works for you. I wish you luck getting off prednisone.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Regular Member

Date Joined Feb 2009
Total Posts : 108
   Posted 11/18/2009 7:04 PM (GMT -6)   
i love my lyrica, too, patty :) it doesn't help so much with my fatigue, but it sure does help with pain & now that i am used to it, it doesn't make me feel dopey, either . . . i believe in miracles and i agree with you that lyrica is one of them!

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy

Veteran Member

Date Joined Jun 2008
Total Posts : 669
   Posted 11/18/2009 11:26 PM (GMT -6)   

Hey Pat, I'm glad you have found something spelled r-e-l-e-i-f!  I see Neurontin listed in your signature.  My former rheumatologist had put me on Neurontin - which I tried for a month and felt worse on it - absolutely lethargic with weight gain and nightmares.  And no help with the pain.  He then wanted to switch me to Lyrica, but said it was in the same family, so I declined. 

My current rheumy said she didn't think the Lyrica would work for me if I didn't have a good result with the Neurontin.  Keep us posted - maybe I'll try the Lyrica after all.    I just had a negative ANA come back after 3 yrs of positives.  Not sure whether it's because of the 10 mos. on Plaquenil or the result of going Gluten Free.....but I asked the same question....why do I still feel so crummy?......and was also told Fibro.    All I know for sure is that the fibro (which I was dx'd with over 10 years ago) didn't used to feel this bad!

Glad you're feeling better!


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 11/19/2009 12:48 AM (GMT -6)   

Mine didn't either. I was on 1200 mg neurontin at bedtime for restless leg. I cut it in half when I went on Lyrica and I react differently to them. My stepson the pharmacist tells me they are the same but different. I'll have him explain that again so I can remember what he said. I'm hoping that some of my memory problems will come back when I get off neurontin.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 11/19/2009 6:40 PM (GMT -6)   
Pat, this is great news! I am so glad the med is working for you and you will soon be off Pred, that is awesome!!! Thank you for sharing and reminding us that there is hope!
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 11/19/2009 7:27 PM (GMT -6)   
Pat...that is great news. Oh I am so glad you found something to help relieve your pain! :)

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 11/20/2009 12:24 PM (GMT -6)   
Pat, I'm so glad to hear you are feeling so much better. Thank you for sharing the good news. I have heard that many people get great relief with lyrica. Hopefully it will help your memory as well. Keep us updated and enjoy yourself, just don't over do it. Take care. You are in my thoughts and prayers.
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