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aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 11/18/2009 4:14 PM (GMT -7)   
Okay, I just got a call from my rhumey about an hour ago and she told me my white blood count was wiped out from Cytoxan. She was sending Bactrim to the pharmacy to help prevent an infection. She told me to call her or go to the emergency room imediatly if I have a fever and they would admit me in the hospital to make sure things didnt get out of hand. I never thought to ask what a typical fever is?(i have only run 2 or 3 my life...) I got home and took my temp and of course it was 99.9. Go figure...What temp is worthy enough to go to the hospital????

AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 11/18/2009 4:42 PM (GMT -7)   
my son has a primary immune defiency and his doc say anything over 100.4...im on bactrim until i start cellcept and i will be on it throughout treatment.. if your concerned go get it checked out it cant hurt just protect yourself around sick people up there...

good luck
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. 9 tia's and one pontine stroke,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 11/18/2009 4:43 PM (GMT -7)   
i changed my mind i would go in you have no defense right now...i would go
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. 9 tia's and one pontine stroke,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 11/18/2009 5:05 PM (GMT -7)   
I've asked my doctor that very question before, and they've told me to wait till it's 100 or more. And they want it that high even if your normal temperature is lower than 98.6 - mine usually runs about 97.

99.9 ... I guess I'd see how I felt and if bad go in otherwise if I felt ok I might just watch and see if it goes up anymore.

I hope it goes down quickly and you don't have to do a hospital stay.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 11/18/2009 9:49 PM (GMT -7)   

Amy, so sorry you have this to contend with now.  I hope you were able to get an answer from your doc on this.  You surely don't want it to get out of hand.  Luck and prayers!

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 11/19/2009 4:44 PM (GMT -7)   
((((( Amy )))))) so sorry you are going through this! I hope you are not running a fever anymore and that you are feeling well. Hang in there my friend
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/19/2009 4:58 PM (GMT -7)   
Girl!  It seems like there's always a grey area!!  Don't you wish it was one way or the other??  I will caution you...I have been really suppressed at times with a major infection and run a low grade temp because I didn't have enough immunity to respond!  BE CAREFUL!!!!  Let us know!  Judy

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 11/19/2009 5:25 PM (GMT -7)   
Thanks for the responses. Today it was around 99.6 and then around 6 it went to 100.6. I emailed my rhuemy and should hear back tomorrow but if it gets to 101 I will go to the hospital to be on the safe side. I have developed this weird cough and a sore throat but the sore throat might be from coughing. i am not sure.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/19/2009 11:00 PM (GMT -7)   
Amy I'm glad you're staying in contact with your rheumy about this. I hope you can avoid going to the hospital. Take care.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 11/20/2009 3:17 PM (GMT -7)   

Hi! Everyone,

I teach nursing fundamentals. When we take a temp, we use 98.6 as an average, the oral/under the tongue route. A rectal temp is usually one degree higher, (closer to a core/internal temp) and an axillary temp/under the arm pit, one degree cooler. When I worked in ICU, we liked to know what our patients 'usual' baseline temp was, then worried if we saw a 2 degree increase. Due to our body rhythms, our temps are normally the highest between 4pm and 8pm, and coolest upon awakening in the morning. If you are trying to get pregnant, a basal thermometer is recommended to check your temp before you even get out of bed. Since we now know that fever is a good first line defense against an infection, in a healthy child or person, we don't usually worry until the temp is 102. However, if someone is on an immunosuppressive, like prednisone, or in view of a low white blood cell count, I would be concerned at a temp of 100. It's important to use the same route for consistancy, i.e. always under the tongue, or always under the arm pit. And we rarely take rectal temps any more at all due to the infection transmission risk, the distress caused in our pediatric clients, and the documented accuracy of other route thermometer readings. When in doubt, have your dr. person check it out!

hugs,

suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 11/20/2009 3:37 PM (GMT -7)   
Well I ended up going to the doc with 101.2 fever. They put me on Levaquin and had me do a chest Xray cause he heard "suspicious" sounds. Then sent me home. I am a little shocked that he sent me home.He even said that my rhuematologist stated in her notes if I had a fever to be hopitalized but I didnt look deathly sick and to be extra observant! i did find out the my WBC is .7. On October 6 it was 7.9 and it dropped that much in 15 days. Yowsers. I had no idea it could do that.

Does anyone know how long it takes levaquin to work? I took Levaquin and 2 ibuprofen about an hour an half ago (and Bactrim about 1pm) and my temp has still gone up to 101.8 and I am coughing so much more. My primary doc told me if things got worse to go to the emergency room because my WBC is dangerously low...(my normal temp is 96.9) But I don't want to go and be told I havent give the meds enough time to work. I just wanted to say I hate these ups and downs that come and go so quick with lupus!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 11/20/2009 7:43 PM (GMT -7)   
I've had Levaquin before and it seemed to take overnight to work, although I can't recall what time I took it. Hope you are feeling better by now.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/20/2009 9:33 PM (GMT -7)   
Becareful with the levaquin, it canrupture tendons or cause tendonitis, it happened to me and it can happen after you stop taking the pills. My grandmother was told she was dying from kidney failure until she was taken off levaquin by a family member. it is hard on the kidneys and such. So just be careful. She got very mentally messed up, encephalopathy. It went away completely when the levaquin stopped. Not a favorite antibiotic. I agree with Suetoo about the basal temp because mine is 95 or lower and 98 can be a high fever for me. In the day I run mid 96. something. I have thyroid and other endocrine problems, that's why. Nurses understand this much better than docs do, its frustrating because you have to worry about hypothermia and brain damage.

Anyway, I'm glad you got some treatment and if you feel you are having trouble on the levaquin, be sure to get back to the doc and switch out. Some docs wont even prescribe it. I hope you get better soon and I'm glad you posted and got such good advice and went.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/20/2009 10:14 PM (GMT -7)   
Oh Amy, this is not what you need right now..... I think that if you're coughing more and your temp has gone up, you should head back to the hospital. Infections can get out of control so quickly. Saying prayers for you Amy. Love ya girlie!

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/21/2009 12:16 AM (GMT -7)   
I agree you should head to the hospital. I would be very concerned if I were you. I personally love levaquin as it is one of the few antibiotics I can take safely due to allergies and it seems to work well on even stubborn infections.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 11/21/2009 5:49 AM (GMT -7)   

Hi! Amy, and Everyone,

I hope this morning finds you better. Levaquin, like any antibiotic is not effective against viral infections. Basically, fever and cough are inherently good things. Fever raises your blood temp to make the infecting microbes very unhappy, and cough, as long as it is moist and productive, literally helps your airways expel the mucus and germs from the nice comfy warm moist places in your lungs where the nasty germies want to stay and set up housekeeping. That said, cough prevents sleep and rest, and fever can make you dehydrated. So, drinking lots is vital, and, as a mom and gramma who used to be an ICU and Peds unit nurse, I didn't let my family take cough suppressant meds until bedtime. Levaquin is tough on your gut because it can cause nausea and diarrhea in a blink. But, it is a potent respiratory infection med that works when it is suppposed to. Once we give a pt. an AB, we expect to see it start working in 24 hours, and help noticeably by 48 hours from 1st dose. My bottom line, when in doubt, see your dr. and check it out. However, taking your tem every 4 hours or so, and being aware of any anti fever meds you might take for pain, like acetaminophen or ibuprofen, and even plotting those temps on a piece of graph paper, and a note about what time you took what, might give you and your dr.  a visual picture of where your fever is heading on top of your AB. As a nurse, I can NEVER give medical advice, but as a mom person, I would vote to be hesitant about going back to an ED that is filled with people highly infectious with flu  and flu like illnesses, all crammed into an overwhelmed triage place. At least here in NYS, our EDs are Code Red more often than not. Which literally means ambulances drive around the inner loop waiting to find a hospital that will let them drop off their patient. If you have to go, and don't hesitate much, ask for several masks, and change them every 30 minutes or so.

hugs,

suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 11/21/2009 5:53 AM (GMT -7)   

ps. this thread asked for Quick advice, it dinn't say NUTHIN about brief advice. nono

hugs again,

suetoo smurf


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 11/21/2009 6:42 AM (GMT -7)   
Wow, thank you everyone for the support and information. i would thank you by names but I am exhausted. I went to the ER with a temp at my house ready 102.6 but when I got the ER it was actually 103.2. So good think I went. I got several blood cultures and complete set of blood work along with a rapid flu test. Guess what...I have the H1N1. No wonder Why things kept progessing down hill. They gave me some meds in the ER and got my fever down and sent me home. Said with my immune system it would be safer at home and along as my fever didnt spike back up or things didnt progess for the worse I should be fine but to follow up with my doc on Mon...So know I am taking Tamaflu, Levaquin, and Bactrim...I don't think my body has a choice on getting better with 3 antibiotics. My WBC did go up to 2.2 which was a bit of a relief to me and great news...My creatinine is finally back down to 1.4 and my bun is 20...this is the best my kidneys have looked in a long time! [img]/community/emoticons/smile.gif[/img] [img]/community/emoticons/smile.gif[/img] Finally some results from the Cytoxan! Woohoo. Well I am off to the pharmacy and then off to bed!


Hope everyone has a nice relaxing weekend and thank you again for being here!!!
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