Hi! Nona and Everyone,
I get flares when I have to endure 3-6 weeks of mucusy, bloody, floating, diarrhea. And just when I decide to take a sample to the dr, it goes away. I am very med tolerant, and I seem to cycle through 6 wk periods of joint pain, then ataxia, dizziness and acute muscle weakness and falling, then I get a lower respiratory infection, never just a cold, enjoy maybe a week of feeling better, and then it all starts all over. And the never ending exhaustion is ever present. The bummer is not making it to the bathroom. Which has happened 3 times. I put spare sloppy pants, and adult incontinent briefs in my trunk but live in fear the time will come when I can't keep it a private horror. When I was in the hospital the last time for 10 days of antibiotics, they offered me compazine, reglan and zophran in any combination I thought helped the best. I like asking our pharmacist what he would recommend if I were his wife or daughter.
Hope you feel better soon,
about 45% of SLE patients suffer gastrointestinal problems, including nausea, weight loss, mild abdominal pain, and diarrhea. Severe inflammation of the intestinal tract occurs in less than 5% of patients and causes acute cramping, vomiting, diarrhea, and, rarely, intestinal perforation, which can be life-threatening. Fluid retention and swelling can cause intestinal obstruction, which is much less serious but causes the same type of severe pain. Inflammation of the pancreas can be caused by the disease and by corticosteroid therapy.
Meds can also cause problems so with some of us you can take your pick for blame.
Diagnosed 2009: Lupus (SLE);Rheumatoid Arthritis; Dermatomyositis; Optic Neuritis; Behcet's syndrome; Microscopicolitis; Chronic Gastritis; Cryptitis
Meds: Prednisone 20mg daily, starting Methotrexate injections once a week 12/11/2009, Prenisone eye drops daily.