Weird symptoms! *UPDATE* (Heart Involvement)

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MJLD
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Date Joined Jul 2007
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   Posted 11/20/2009 9:05 AM (GMT -7)   
This past Sunday while singing at church I became dizzy, short of breath and nearly  fainted! (humiliating)  So...I went to the ER and my ekg showed low voltage, which apparently can be fairly insignificant...BUT...my chest x-ray compared to one from last year showed that my heart is quite enlarged.  The only other thing that popped up was a low TSH.  I've been real weak and sleepy.  For the record, I have a pacemaker and a diagnosis of atrial fibrillation.  I am going for an echocardiogram this morning and will see my doc on Mon.  I"m just worried!
 
Also, this week I had like hundreds of small, pea sized knots pop up in my right arm and if I extend it I feel like a nerve pain from my inner elbow to my wrist!  Has anyone ever done this???  AAarrrggggggghhhhhhhh!  I've been doing so good...i'm frustrated!
Thanks for any input!  God bless you all!  Judy

Post Edited (MJLD) : 12/8/2009 2:30:23 PM (GMT-7)


mom46
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Date Joined Dec 2004
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   Posted 11/20/2009 10:16 AM (GMT -7)   
Judy,

I hope you get some answers today for your new symptoms. I have no experience with this sort of thing. I just want to let you know you are in my thoughts and prayers. I will be watching for your update.

Babs

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/20/2009 12:00 PM (GMT -7)   
Thanx so much Babs! I really appreciate it. We repeated the tsh today and it is .007 it was .3 in the er on Sunday. My t4 is only slightly elevated at 12.84. I had a left, subtotal thyroidectomy when I was 18, years prior to my lupus diagnosis. This thyroid thing can be confusing!!! I don't take any replacement thyoid meds. Any advice, wisdom, info. comments appreciated! Judy

AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 11/20/2009 1:54 PM (GMT -7)   
i hope you feel better soon...i was in er last week and the diagnosed me with Atrial fibrilation and im hooked up to a cardiac monitor for 21 days..to see if they can catch it again...


hope you feel better soon
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. 9 tia's and one pontine stroke,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 11/20/2009 3:36 PM (GMT -7)   
Thanx Amy...A-fib can be scarey!!! Mine has been well controlled with meds. I hope your situation is resolved soon also! Judy

Ginny
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Date Joined Feb 2003
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   Posted 11/20/2009 10:16 PM (GMT -7)   
Judy!! Oh my, thyroid issues can wreak havock all over the body. I sure hope the answers to this mystery are solved quickly. I don't have any thyroid involvement, so no good advice to send along to you. Please keep us posted okay!

Blessings,
Ginny

redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 11/21/2009 12:11 AM (GMT -7)   
I really hope they figure out what is going on with you. You need to have them check your T 3 and T4 levels as well as free T3 and T4. Sometimes the tsh is misleading and testing the other hormones tells the whole story.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 11/21/2009 10:28 AM (GMT -7)   
My t3 is normal my t4 is elevated...I am really anxious to see my doc on MOnday. I had the echo yesterday and then my doc called and sent me back for an ultrasound of my right arm. I hate the waiting and wondering! Judy

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 11/21/2009 10:32 AM (GMT -7)   
Oh Judy, I am so sorry you are going through this. Everything seemed to be looking up for you. Hopefully it will be a easy fix and please let us know how the apt goes on Monday! Still prayin!!!

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/23/2009 9:02 AM (GMT -7)   
Going to the doc at 2:00, hoping to get to the bottom of this craziness!!! I'll let y'all know! HOpe everyone has a great day! JUdy

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 11/23/2009 9:11 PM (GMT -7)   
Saw my doc today not alot of answers...have to have a thyroid uptake scan and my pacemaker interrogated. I'm not good at the "wait and see" game! Blahhh!!!! I shouldn't complain, i've been blessed so much! Judy

PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 11/24/2009 9:50 AM (GMT -7)   
Judy, I'm with you on that "wait and see" game, and am very impatient at times. Especially when it pertains to my health. I hope you get your answers soon and especially that they can fix the problems! It sometimes seems like just when one of us is doing well, the hammer drops. Take care.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/1/2009 4:29 PM (GMT -7)   
Went to have my pacemaker interrogated today...it showed that I have been having some "episodes" of a-fib...So, I have to actually see the heart doc on Monday and I have the radioactive thyroid uptake scan Mon/Tues and see my nephrologist on Wed....SO, maybe he can adjust the medicine that I already take for a-fib and that part will chill...They think possible the thyroid issue is overstimulating my heart.

The weird part *y'all know we lupies have to throw 'em off the blazed trail*...When I am not in a-fib my heart rate is unusually low for me! Go figure! I give up trying to diagnose myself, they get paid the big bucks, let 'em have it!!!

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/1/2009 4:36 PM (GMT -7)   
Oh wow! So sorry Judy! I pray that you will get relief from this soon! Jeepers, sounds like you are gonna be busy with the doctors next week! Thank you for the update and please keep us updated! and Amen about your last sentance!!!! So true [img]/community/emoticons/yeah.gif[/img]

redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 12/1/2009 9:29 PM (GMT -7)   
You are in my thoughts and prayers
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 12/8/2009 10:49 AM (GMT -7)   
Well...I saw my cardiologist again yesterday. I have pulmonary artery hypertension and have been having runs of v-tach:  the hyperthyroidism is overstimulating the heart.   They could not do the thyroid uptake scan because i've been on steroids for so long and can't come off due to adrenal insufficiency. The prednisone renders the test useless and complicates everything!   SO, now I have to see a pulmonologist and an endocrinologist! YUCK!!! The cardiologist says more than likely he will do a right sided heart cath. (Swan-Ganz catheterization) which I TOTALLY do not want!

ANYONE have pulmonary artery hypertension?? I'm real frustrated and scared. I am doing so well from a kidney stand point and now this! Forgive me for complaining! I know many of you are going through worse situations!   ANY advice...words of wisdom appreciated!

Post Edited (MJLD) : 12/8/2009 2:28:59 PM (GMT-7)


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 12/8/2009 3:08 PM (GMT -7)   
Oh ((((( Judy ))))) you have every right to complain, you've been through a lot. I know you are relieved that your kidney's are fine during all this. I wish I had some advise for you, I just wanted to send some hugs and let you know you will be in my prayers. Please let us know what the docs say. I wish there were more I could do for you. Take care my friend.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 12/8/2009 3:42 PM (GMT -7)   
I'm so sorry, this sounds really scary. I don't have any experience to share with you, but I hope someone will come along with ideas ASAP.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/8/2009 3:48 PM (GMT -7)   
Judy, I am so sorry! You will be in my prayers...what exactly is pulmany artery hypertension?

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/8/2009 4:25 PM (GMT -7)   
Thanx to each one of you, your support and words of kindness and encouragement mean so much to me!

Pulmonary Artery Hypertension is when the blood pressure inside the pulmonary artery (artery from heart to lung) is too high. It can be caused by connective tissue diseases (i.e, lupus). It can also be caused by pulmonary embolism; which I had last year; but my pressures where absolutely normal until now. So, docs leaning toward lupus. It is progressive and can lead to heart failure.

I am going to see my nephrologist tomorrow (who also treats my lupus) and so I will get further information from her. To be perfectly honest...I'm scared about this one! I will keep you all posted. Love, Judy

PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 12/8/2009 5:16 PM (GMT -7)   
Awww, Judy. That sounds like a tough one to go through. Let us know what your nephrologist says tomorrow. I don't blame you for being scared. I'll check in tomorrow.

Hugs,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/8/2009 5:21 PM (GMT -7)   
((((( Judy ))))) to be honest I would be scared too. When we get down it's hard to remember not to worry and to cast all of our cares on him. Read and concentrate on the verse in my signature, it's one of my favorites. I need to remember it more often too.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/8/2009 5:43 PM (GMT -7)   
Judy, what a time you're having! I'm so sorry. You're in my prayers. Good luck at the nephrologist appointment tomorrow. Let us know what they say.

Blessings,
Ginny

FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 12/8/2009 7:03 PM (GMT -7)   
(((JUDY)))

Saying lots of extra prayers for you.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/8/2009 8:51 PM (GMT -7)   
You are in my thoughts and prayers yet again. I am so sorry this is happening to you
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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