Anyone else Freezing??

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Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 11/26/2009 11:40 PM (GMT -7)   
I am super cold these days...I go to bed with the room temp at 22 celcius (I might turn it up higher, but it gets expensive as it's baseboard heat), wool socks and slippers on my feet, pl pants, a thermal underwear long sleeved high neck top accompanied with a fleeze hoody and a thick blanket...I'm still cold! Brrr....Also, what's weird is that my knee caps have just started to get cold too..hmmmm....anyways, just wondering if anyone else is experiencing this right now? I am also struggling with sodium levels right now too..they are super low (could have something extra to do with it too)..however I have raynaud's in my feet and hands so I figure it's that..also recently prone to vasculitis in my feet.. Just wondering on people's dealings with the cold.

-Ellie




<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 11/27/2009 11:18 AM (GMT -7)   

Hi!

I live near Buffalo, so you know how COLD I get! I have found a tube sock filled with feed corn heated in the microwave is the best for my feet, and I have a lg. buckwheat filled pad that I heat for my neck and shoulders. I have found if I go to bed not so bone chilled, I don't seem to get so cold in the night. Have you tried thermals from a sporting good store? The kind they make for winter camping, or hunting, that are light weight and wick moisture.

Hugs, and hot tea with lemon,

suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/27/2009 4:44 PM (GMT -7)   
I get really cold even with the heat at 70 degrees, of course the thermostat is at the other end of the house so who knows what temp the bedroom actually is. I use more blankets and my husband's body heat to warm up. Since it sounds like you are alone I really have no idea what to suggest except that socks warmed in the microwave feel really good on cold feet.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 11/27/2009 11:31 PM (GMT -7)   
Thanks Suetoo and Redrose, I LOVE the idea of putting my socks in the microwave to warm them up...never thought of that. And Sue, do you actually stick your feet into corn inside the socks? Or am I picturing this wrong? As for my room temp, to convert it to degrees F it's be about 72 in here..the baseboard heater's right near my bed...Hot tea I have to pass on right now (or I'd be all over that one too), as my sodium levels are all outta wack and my water intake is limited. I was drinking tea last week, but now my sodiums dropped to 125. I think that very soon I'll be putting thermal pants on under my pj bottoms, but I have been wearing a thermal top for quite some time with the addition of the fleece hoody. I know I'll survive...just never been this cold over a winter before...and I haven't moved cities or apartments. I'm sure it won't be the last one I'm cold..it's all an adjustment. I am just sooooo thankful that I have slippers and hoodies, and a thermostate, etc, to help with the coldness of my body. How blessed am I? Have a warm sleep tonight ladies.

-Ellie




<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 11/28/2009 1:35 PM (GMT -7)   
Hi! again,
There is a thread around here somewhere about hot packs. I think the feed corn idea came from Lynnwood? I used an old sock of my husbands, and feed corn from a feed mill that I get in 50 lb. bags for my squirrels and birds in the winter, and filled it medium full, and sewed up the top. I am surprised at the moisture that steams out of the kernels. Warm is good. I would live in Florida if I didn't have so much family in NY.
hugs,
suetoo
ps. it's true, there isn't an honest politician in NY and the taxes are killing us.

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 11/28/2009 2:22 PM (GMT -7)   
Sounds like you've made a homemade magic bag Suetoo...I was just given a magic bag and when you heat it up in the microwave it lets off a nice steamy heat for 30min or so...really nice around the neck, on the belly or wherever...haven't had it more than two days now..the one I was given lets off a nice lavendar scent. Fancy stuff. I was blessed by a friend who heard I was cold. Nice, eh? I wonder, could you use popcorn kernels? Oh wait *LOL* dumb question...in a microwave they'd pop..hehehe...wasn't even thinking when I started typing about that. Thought though that I might as well finish the sentence and maybe it's good for a laugh..the feed corn you talk about must be different somehow. I can't imagine how cold you must feel in NY near Buffalo, I live on Vancouver Island in BC, Canada. On the coast it's all about moist damp cold...Anyways, gonna put my layers on and head out to get a few movies for a lazy Sat afternoon. Take care.

-Ellie




<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 11/28/2009 3:00 PM (GMT -7)   
Any grain will work - put 1/2 cup water in the microwave with it - the grain will absorb some of the moisture from the boiling water and give you a longer moist heat.

I'm also a big fan of heating pads, electric blankets, and small electric space heaters. Getting the heat right where you need it seems to work better (at least for me) than turning up the thermostat.

Also, a nice cup of hot tea, hot cocoa, or hot whatever you like works well.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 11/30/2009 6:31 PM (GMT -7)   
Hi Ellie,
I have been freezing lately too. Normally, I'm very hot natured. I've noticed my body temperature is running between 97.0 and 97.5.

I hope by now you are feeling warmer with the advice you have gotten from the others. You will be in my thoughts and prayers.

Babs

Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted Yesterday 9:35 PM (GMT -7)   
I am a LOT warmer now that I've learned new tips and advice from others:) A couple times I've "forgotten" to put my slippers on around the house, like when I get in from outdoors and take my warm boots off...I regret it in a few min when I start getting cold. It's getting easier with the circulation thing though, as I learn how to cope with it. At least now I can have a drink of juice or something and not FREEZE!:) Ah, the little things in life that can make a person happy.
When I saw my GP today, she suggested that if I got cold enough I could have some medication prescribed to open up the vessel flow. Is anyone else taking something like that to keep them warmer? (I also had vasculitis happening in my toes). I think as long as I can manage with slippers, wool socks, etc, the better...who needs another med to add to the pile.

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops
<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.

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