so frustrated!

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nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 11/29/2009 2:11 PM (GMT -7)   
I saw my neurologist recently; my latest MRI is STILL clean, nothing obvious! So he says that I don't have MS, and that my lupus has no CNS involvement or it would show in the MRI and/or the EEG, which was also normal. The bloodwork from my tests for Lyme disease and B12 deficiency did not show up, so they're trying to trace that down....I see him again next week to discuss those results.

He's of the opinion that all of my symptoms (vertigo, double vision, peripheral neuropathy, ringing in ears, brain fog, ataxia, muscle spasms, etc) are caused by my fibromyalgia. I reminded him that my double vision is vertical double vision and asked if fibro would do that....he said probably not (with a little frown to remind me that I shouldn't argue with him because he's the doctor).

Don't get me wrong...I'm thrilled that my MRI is clean and that there is no obvious brain damage!! I'm just frustrated because I'm still in diagnostic limbo. cry

My rheumy seems to think that all of my symptoms are the result of my current lupus (rhupus?) flare....but if the EEG doesn't show signs of CNS lupus, I guess this is not the case??

I don't know....I'm just confused and I want to understand what is wrong with me! It's not normal to suffer from vertigo like this...to feel like your head is filled with helium and floating 4 feet above your shoulders....is it?

My PCP thinks I need to see another neuro to get a second opinion, but I'm SO tired of doctors right now.

This is just a vent, sorry about that...thanks for listening.
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 11/30/2009 7:49 AM (GMT -7)   
sometimes the only way to know for sure if cns involvement is the case is to do a spinal tap, in fact it used to be the standard to do one immediately because MRI often misses things until there is serious damage. this is per my old rheumy when I was experiencing a cns flare. I recommend a new neuro for a second opinion. Remember I am not a medical professional and my advice and info is only as reliable as my doctors and my memory of what they have said.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 11/30/2009 8:36 AM (GMT -7)   
thanks redrose! I really appreciate you sharing your memories of what you've been told before....I'm not looking forward to a spinal tap, but will go that route if necessary.

I do plan to call another neuro today to set up an appt...my PCP recommended one to me.
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 11/30/2009 11:13 AM (GMT -7)   
I'm so sorry you are so frustrated and going through this exasperating process.  My doc called Dr. Daniel Wallace (THE LUPUS DOC) when my ct and eeg came back normal, but my symptoms were horrendous;  he recommeded a spinal tap and sure enough I was diagnosed with CNS lupus!  I was placed on higher doses of prednisone and it responded quickly!  I hope you get some answers soon!  God Bless you, Judy

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 11/30/2009 11:32 AM (GMT -7)   
Hi Judy...thanks so much for your input! My current neurologist doesn't want to do a spinal tap, but I now have an appt to see another neurologist so hopefully will be able to get some answers!

Blessings,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 11/30/2009 6:36 PM (GMT -7)   
Hi Joann,
It's very frustrating not knowing. I sure hope you get some answers from the new neuro. Hang in there and keep fighting for anwers. Let us know what you find out and take care. You will be in my thoughts and prayers.

Babs

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/1/2009 8:20 AM (GMT -7)   
Hi Babs...thanks for the encouragement and prayers! Prayers are always appreciated! :)

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 12/1/2009 11:40 AM (GMT -7)   
(((( JoAnn)))) I am so sorry you don't have any more answers but very glad it's not MS or CNS lupus. You know, we have similar symptoms (head floating, etc). I also had an MRI and it was clear (thank goodness), my rheumy chalked it ALL up to a lupus flare (I don't have Fibro) and started me on Pred, 20mg for 3 days and tapering down 2.5 mg every 3 days. It really helped the floating feeling and the nausea, but unfortunately I still have it from time to time. I was afraid that would happen after stopping the Pred, but I also think stress plays a big factor, for me anyway. I am carefully considering filing for short term disability thru my company. I don't feel like I can keep going like this, my body needs a break. I spend my weekends resting from the week and getting ready for the week to come. By Wed I can feel myself going downhill.

In my opinion, Lupus can affect ANY part of the body it wishes. I have noticed when I flare it has affected my ears, GI tract (intestines), headache that won't go away with traditional meds (which I also had to take Pred, not as high of a dose tho), stomach with nausea, cheat pain (inflammation of the joints in my chest), Costochondritis which is an inflammation of a rib or the cartilage connecting a rib or breastbone and of course the usual .... increased fatigue, joint pain, etc

What dose of Pred are you on? If it's low, you may need an increased dose like I had to nip it in the bud. I would talk to your rheumy and see what they suggest you do about seeing another Neuro. I know what you are going through and I hope you get some answers soon! You will be in my prayers.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/1/2009 2:56 PM (GMT -7)   
Hi Stacie, I'm so glad that the prednisone has helped your symptoms!

I know what you mean about needing rest and thinking about disability....I had almost decided to actually apply for SSDI disability but I don't have enough vacation + sick time hours to cover the difference between the state short-term disability and my regular salary for more than a few weeks. I think you have to be off work for 6 months on short term before you can transition to long-term disability?

Anyway, we can't really afford for me to take even a short break right now. So I've been working from home as much as possible so I can lie down when I need to. Of course I take my laptop into bed with me, so I'm not really resting, LOL!

I'm currently on 7 mg of prednisone....my hepatologist had tapered me down to 5 mg but the rheumy bumped it back up to 7 because of the flare. I think you're right that I may need a higher dose temporarily!

Thank you for your prayers....I'll be praying for wisdom for you while you contemplate filing for short term disability, and also that your flare subsides soon!

(((hugs)))
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 12/1/2009 10:13 PM (GMT -7)   
I too am very glad you have a clean MRI.  It is very good new that you both have a normal MRI and a normal eeg.  I hope you find some relief soon.  The treatments for lupus and MS seem to be similar (prednisone).  We do higher doses but for just a few days (usually 5).  It is interesting how much all these autoimmune diseases share.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/2/2009 9:42 AM (GMT -7)   
Gretchen1 said...
I too am very glad you have a clean MRI. It is very good new that you both have a normal MRI and a normal eeg. I hope you find some relief soon. The treatments for lupus and MS seem to be similar (prednisone). We do higher doses but for just a few days (usually 5). It is interesting how much all these autoimmune diseases share.


Thanks Gretchen!

What is the normal dosage for a 5-day prednisone "burst"? Do you start at 40 or 60 mg and taper down? My husband just finished a round of prednisone starting at 60 mg and tapered down to 10 mg as of yesterday, but his psoriasis (another autoimmune disease!) is flaring again so his doctor recommended going back up to 20 mg.

I really HATE prednisone because of the nasty side effects but I have to admit it's effective!
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 12/2/2009 1:02 PM (GMT -7)   
Different doctors approach the prednisone issue differently, and what may be appropriate for one patient may not be right for the next one. So sometimes you'll see people get a "dose pack" for a few days that is a higher amount, where other times you'll find people on a "everyday" for a lower amount.

Whichever your doctor puts you on, please follow that, and don't make changes without your doctors knowledge & permission.

You all already know this, but just wanted to post it for those members newer to prednisone that are not aware that IT CAN KILL. Certain changes in dosages can severely affect thyroid & hormones, sometimes creating things as serious as Heart Stoppage!

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Post Edited (Lynnwood) : 12/2/2009 8:23:38 PM (GMT-7)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/2/2009 1:23 PM (GMT -7)   
Hi Lynnwood,

I was asking about dosages out of curiosity, and would never take any medication without instructions from a doctor. I certainly would not advocate that anyone else try to dose themselves without consulting a physician either. I apologize if my earlier post inaccurately left that impression. I am aware that prednisone is a very potent and dangerous drug.

JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 12/2/2009 4:07 PM (GMT -7)   
I knew you knew that, JoAnn, and were idly wondering (as was I). I just didn't want newbies to get the wrong impression. No apologies needed.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/2/2009 7:39 PM (GMT -7)   
Hi JoAnn, with my company I can be out for 5 days and file for short term disability, not sure how it is at other companies then if I go past 20 something weeks then it will turn into long term disability. Anyway, I am losing my job anyway, company is downsizing so I will probably just wait on my severance package (if I can hold on for a few more months). Either way I will be able to keep my health insurance, etc which is what we really need.

I hope your doctor has figured out a plan to get this (possible) flare under control. It's really a blessing that you can work from home. I may look into some type of work from home job. Take care and keep us posted on how you are doing.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 12/2/2009 8:13 PM (GMT -7)   
For an MS flare, I have done 1,000 mg methylprednisolone.  This is done via IV.  I have to go to an infusion center and they put the IV in and do the first infusion there.  It takes about 2 hours to do an infusion.  Then they send you home with four more days worth of "solumedrol" . 
 
I HATE it.  It is completely miserable.  After about 20 minutes you can tasted it ......sort of like a metallic taste.  I don't sleep for the first 48 hours without a strong sleep aid.  It gives you the worst killer heartburn and you will think you are having a heartattack.  It makes you completely psycho/crazy!  It does help a bit to shorten the symptoms of a flare.  It is not a treatment.  By the time I am experiencing symptoms, the MS damage is already done.  It just takes a while for the level of damage to show itself.  It can take weeks for the flare to subside so you will know what your new baseline will be (what permanent damage you will be left with).
 
I don't do solumedrol unless my vision is affected.  Solumedrol is particularly effective in shortening MS vision issues.  I recently lost the vision in my right eye.  After the solumedrol, I expereienced results in about 3 weeks.  Without solumedrol, it would have taken perhaps 3 months.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/2/2009 8:24 PM (GMT -7)   
Oh Gretchen how awful! The side effects sound absolutely hideous....I can imagine that you wouldn't want to undergo that kind of treatment unless something vital like your vision had gone!

Thanks for answering my question....I had no idea! And I'm so glad that your vision came back quickly!

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/2/2009 8:51 PM (GMT -7)   
jhmom said...
Hi JoAnn, with my company I can be out for 5 days and file for short term disability, not sure how it is at other companies then if I go past 20 something weeks then it will turn into long term disability. Anyway, I am losing my job anyway, company is downsizing so I will probably just wait on my severance package (if I can hold on for a few more months). Either way I will be able to keep my health insurance, etc which is what we really need.

I hope your doctor has figured out a plan to get this (possible) flare under control. It's really a blessing that you can work from home. I may look into some type of work from home job. Take care and keep us posted on how you are doing.


Hi Stacie!

Well, I'm not glad that you're losing your job, but it's good to hear that you'll be able to keep your health insurance. That's one of the issues I've been worried about too.

It IS a blessing that my bosses have agreed to let me work from home, at least part of the time. I would have been forced to file for disability if they had not.

I just this minute got back from seeing my rheumy and he's increased my prednisone from 7 mg to 10 mg. I know he's always reluctant to administer pred....he really hates the stuff.

I told him what my neurologist said about the fibro causing my symptoms; he disagreed, saying that he thought it was caused by one or more of my many autoimmune diseases, probably the lupus. He seems to still believe that I have CNS lupus....well, I guess it should be called CNS "rhupus" because he says I have rhupus. He's glad that I'm seeing a new neurologist next week and wants the new doc to call him afterward, so they can talk about things and how best to treat me.

He sounded very concerned and kind of chewed me out because I'm not emailing him often enough so that he knows how I'm doing....I have to keep him "in the loop". Wow, what a difference from my previous rheumy!!

I should give him the url of this website....he'd find out plenty here, LOL!! tongue

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


flower woman
Regular Member


Date Joined Oct 2009
Total Posts : 40
   Posted 12/3/2009 6:21 AM (GMT -7)   
 Hi Nisalady,all the neurlogical symptoms you decribe i suffer with from time to time and I saw Dr Hughes(Hughes syndrome) who told me i had APS even though my test was negative he was positive i had it,i had double vission,numbness,vertigo could'nt drive for 6months and though during flares i do still suffer because it fluctuates and certain things set it off for sure!! He said what was needed was to try daily juior asprin or warfrin if required...i had sugnifficant improvement with asprin!! Just wondered if you had hughes syndrome yourself???????????? I also had a clear MRI and EEG!
SLE sufferer with APS on plaqanil,mepacrine,pred dose dependant on flares,asprin,omeprazole,calcichew D2,fluoxetine and various pain meds.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/3/2009 9:11 AM (GMT -7)   
Hi flower woman,

Thanks for the suggestion....it's worth asking about, although I've never had any clots or unexplained miscarriages. I looked it up and was surprised how many of the APS symptoms I do have.

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


flower woman
Regular Member


Date Joined Oct 2009
Total Posts : 40
   Posted 12/4/2009 5:10 PM (GMT -7)   
 Hi Nisalady,i've never had any blood clots or miscariges either but Dr hughes was certain i have APS,i was a real mess before i saw him and will be forever grateful! Hope you get things under control soon! Take care x
SLE sufferer with APS on plaqanil,mepacrine,pred dose dependant on flares,asprin,omeprazole,calcichew D2,fluoxetine and various pain meds.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted Yesterday 10:44 AM (GMT -7)   
Hi JoAnn,

I am saddened by the thought of losing my job but at this point lupus is wrecking havoc on me, I can't seem to shake this latest flare and the floaty feeling in my head is slowly coming back. So I know it's coming down to this or disability so I'm kind of looking at it as a blessing. Hopefully after my severance is up I can look for another job or work from home. Right now I just want to get better and take care of my family and my home.

Is the increase in Pred helping?? I sure hope so. It sounds like you have really good docs that are really looking out for you, that is awesome. I like the idea of telling my doc about this website!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted Yesterday 3:13 PM (GMT -7)   
Hi Stacie,

I do understand exactly.....I'm not losing my job yet, but I will be very sad when/if I do. In my main line of work the projects end and I have to find another job every few years anyway. With my attendance record and health issues I don't think anyone will want to hire me after my current project is finished. I've been absent from my part-time job quite a bit as well, so I may have trouble finding another assignment that line of work too (teaching college math).

I feel like I've been run over by a truck....all the time! I've now come down with some sort of respiratory virus on top of this "flare" so I'm not even functional at this point.

Even if my bosses will let me keep trying to do my job, is it what I should be doing? Or should I go on disability and concentrate on my family and getting well? I'm so torn.....one of the main things that's keeping me working is the thought of our finances. But the scripture in your signature:

Trust in the Lord with all thine heart, and lean not unto thine own understanding

is prompting me to pray about it rather than crunch the numbers to see if we can afford for me to rest and try to recover! :)

Yes, I'm very happy with my rheumy....he knows his stuff and is concerned about his patients. The only improvement I've noticed so far with the increase in pred is that I woke up with practically no vertigo this morning. But that is SOMETHING! :)

It's awesome that you'll get to stay home and rest, at least for a while! I'm sure that lessening your daily stress will help you!

(((hugs)))
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted Yesterday 4:47 PM (GMT -7)   
Thank you JoAnn, I need to remember that verse more often and not worry about things.

You brought up a good question and it's one that I've been thinking about for a year or so, should I keep working or take care of myself and my family? It's a tough choice to make but down deep we know what the right choice is.

I love my rheumy but wish I could email her sometimes. I found her on FaceBook but didn't request her as a friend, I didn't think that would be a good idea. I am glad the vertigo is gone, pred helped mine too. Next time I won't let it go for so long before I call the doc.

Take care (((hugs))))
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

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