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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 12/5/2009 1:09 PM (GMT -6)   
I everyone, I'm sorry I didn't post sooner. I have been home since monday but I am still struggeling to get my bearrings straight. I know I have been in 4 hospitals but that's about all I remember. I do remember all of you praying for me and wishing me well. I also remember the cards and phone calls and visits. Ok to be honest I know when Patty Latty came to visit I know she was there but that's about all I remember. Patty even though I don't remember a lot you being coming to see me will always be special to me. Plus I know all I have to do it get  sick and you bring me my favorite bed and bath stuff! thank you thank you thank you!
I got the utilities put in my name for the apartment!yeah I move in tuesday. Now I need to get a wash & dryer. A new couch and kitchen table. I got rid of the ones I had.
Everyone is invited to come anytime they want and help me celebrate my independence!
I would mention everyone by name that sent me stuff and encouged me but I would forget someone and I don't want to do that. I know everyone one praying me through this. Frankly I truly thought I was going to die this time. Every time I go in this hospital Coming out of it is so much harder then then the time before.
Well I just wanted to say hello and tell ya how much I love you all. To all the newbee welcome to the group. Stick around we grow on ya after a while. Well there are a few people that you have to give it a little extra time LOL
Ok my back just told me to get off the computer.
God Bless

systemic sclerosis sine scleroderma,sleep apnea,Megaloblastic anemia
what ever that is.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 12/5/2009 1:26 PM (GMT -6)   
(((( Carol ))))) it's SO good to hear from you! Congrats on getting your own place, I know you will love it. I sure wish I lived closer and I would certainly come by! Take good care of yourself, love ya sis!
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)

Forum Moderator

Date Joined May 2005
Total Posts : 6947
   Posted 12/5/2009 1:46 PM (GMT -6)   
Great to hear from you Carol, I hope things continue to improve a bit day by day.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Oct 2008
Total Posts : 119
   Posted 12/5/2009 2:41 PM (GMT -6)   
Wow!  To come out of the hospital and have to face moving into a new place...that's not enviable.  If it's a good thing because of your past living situation, and a better alternative, than I am happy for you for sure.  Just the idea of being so sick and in and out of different hospitals and then having to adjust to a new place....I say again Wow!  I hope that you find yourself surrounded by people in person or on the phone, etc, that you have no doubt love you as you and will be there for you in the emotional lows.  I don't know you well, but regardless I'm happy to hear that you've come home...Sometimes the world can feel like such a big place...but really I think it's just full of people with a longing to be known and loved for who they are...I'd give you a big hug anytime you wanted one...or just because.  Take care, and may God give you the stregnth you need as you adjust.
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops
<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 12/5/2009 3:28 PM (GMT -6)   
so glad you are well enough to be home and also glad you will finally have your own place.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 12/6/2009 10:35 AM (GMT -6)   
Carol, it's good to have you back! Will you have a computer in your new place? You forgot to tell us how you're feeling.

I'm having foot surgery Monday and will be off my feet for a couple of months, and won't be driving either since it's my right foot. So you won't have to put up with my ugly face. But I'm sorry I won't be able to help you get settled in. I know you're going to love your new place. You did tell me that you're taking your dogs with you, didn't you. 'cause you need your pets and computer to keep you company.

I'll get in touch when we know I survived the bunion surgery. The real truth will come out when we see if my husband survives waiting on me for a few weeks.

I'm so glad you're doing better.

Lots and lots of ((((hugs)))),

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex

Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 12/6/2009 10:55 AM (GMT -6)   
Carol!!! Its so great hearing from you! yeah yeah yeah I hope things stay ok for you! Congrats on be able to move this week. I know you are excited. Please be extra careful and cautious and don't over do it. Keep us posted on how you doing and if I ever get to visit OK, I will deffinatly have to plan a trip to see you. Keep us posted on how you are doing and how the move goes! Love ya Carol and I am sending positive thoughts and prayers your way!!!
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