Blood in urine, swelling..

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Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 12/6/2009 7:38 PM (GMT -7)   
I posted not to long ago about losing my health insurance. That's the bad news...

The good news is that I applied for the state's high risk pool and got accepted, however there's a 2-3 month wait list. So that's the downside of it.. But once I get insured again, it'll be with the same health insurance I had previously which means I'll be seeing the same doctor and they will already have all my medical history on file.

I was really trying to keep my fingers crossed to hold out for a few months until my insurance gets reinstated. But this past week, I've noticed some swelling in my legs and blood in my urine. I've never had any kidney issues before and it was always monitored.

So I went to an Urgent Care Medical Clinic earlier tonight, and got some blood work and urine test done. And it's confirmed that my kidneys are inflamed and it's probably due to the Lupus being active. Kidney functions are still good, which means that I don't have any major kidney involvement other then the swelling.

The doctor gave me solumedrol injections, and prescribed a high dose of prednisone. (which I'm currently already on prednisone, but only 5mg at the moment) We're going to be bumping it up to 80mg. And also lasix to help with the swelling.

I dropped of the prescription at Walmart, and can't pick it up til tomorrow since they were almost closing. And I've been on high dose of prednisone before, but no experience with lasix.

I'm really hoping that this will get it under control and I can avoid going to the emergency room. Since I'm uninsured, I had to pay out of pocket. But even still $300 to be seen at the Urgent Care Clinic is better then a few thousand at the ER. I go back for a follow up next week, hopefully by then the meds will have done it's job.

Has anyone have experience with this? And can offer any advice or words of wisdom? I'm just going to try to stay calm and wish that I respond well to the medications.
I was diagnosed with Lupus with Antiphospholipid syndrome (APS) in Nov 05.
Current list of medications includes:
Cellcept 250mg/ 4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 6mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day, Midrin as needed for migraines.
-Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.
-Rituxan infusions twice every six months in March and September


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 12/7/2009 3:04 AM (GMT -7)   
Take a bubble bath and relax. (thats my words of wisdom lol)

Hang in there hon, and keep us posted we're praying for you
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/7/2009 5:57 AM (GMT -7)   
Hey Heidi! Sorry the lupus has decided to mess with your Kidneys. Ah yes, the lovley prednisone. When I went to my nephrologist for the first time he put me on 60 mg of pred and I also had a pulse IV of 1000mg of solu-medrol for 3 days in a row. It sounds like the ER doc did everything he could. Did he say anything about the cellcept? I sure hope the prednisone does its job and keeps your kidney function up! I am not sure if you are familar with doses of pred that high...A lot of times it will cause massive fluid retention in your legs and feet. for ex..mine got so bad I could dimple in a smiley face and it stayed there for over 10 min. I am at work but will post some more when I get off...Do you have any questions about Lupus Nephritis? There are several members that have kidney involvement and I am sure they will be along shortly...

Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 12/7/2009 6:38 AM (GMT -7)   
I'm currently on a fairly low dose of prednisone at 6mg a day. But when I started, I was on a high dose before so I'm familiar with it's side effects. I'll be on the high dose for a week, and tapering down on there within the course of a month. I never had any issues with swelling in my legs cause of the prednisone, but it did cause me to get the puffy moon face. The doctor did prescribe lasix everyday for a month as well to deal with the edema that I do have due the my kidneys. He didn't say anything about the cellcept, other then to keep taking the medicine I was already prescribed, and he bumped up the metropolol I was on from 1/2 tablet twice a day to 1 tablet twice a day. It's a blood pressure medication. Usually my blood pressure is within normal range, but due to all the swelling I'm experiencing it's rather high at the moment and we want to get that under control as well.

Up until I loss in my insurance, my kidney functions have always been good. I may have spilled some protein here and there but it wasn't anything drastic and was always kept a close eye on. This is the first time, that I've actually had other symptoms due to my kidneys. So it's all new to me. I've read a lot the past few days about nephritis and it seems like I'm on the right track so far on treatment. I'm already on cellcept, going to take prednisone, and the lasix. The only thing I'm not on that other people with lupus nephritis is the Cytoxan.

So I'm keeping my fingers crossed that I respond well. This morning when I woke up, some of the swelling in my legs has gone down and that was from the solumedrol alone. So at least I think it's working so far. The doctor did say my kidney functions were still good and we just needed to get the swelling under control.

I'd guess my question is for those of you that are dealing with nephritis. Did you respond to the treatment right away? My insurance still won't get reinstated for a few months. So I'm really praying and keeping my fingers crossed that I can get it under control and be stable for at least the next few months. Up to six at the very longest til I get it back due to the wait list/exclusion period.

Other then the kidney symptoms, none of my other lupus symptoms are active like joint point, rashes, fatigue that I normally experience. And for the most part, I've been stable for almost 2 years until now. Which is really bad timing.
I was diagnosed with Lupus with Antiphospholipid syndrome (APS) in Nov 05.
Current list of medications includes:
Cellcept 250mg/ 4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 6mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day, Midrin as needed for migraines.
-Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.
-Rituxan infusions twice every six months in March and September


Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 12/10/2009 7:51 PM (GMT -7)   
Okay, so it's been a few days. The first day when I came home from the urgent care on sunday I felt a little better. That monday the swelling did go down a bit, I think it was from the solu-medrol.

But not having been on such a high dose of prednisone in so long I really forget that it causes swelling as well. My legs are still pretty swollen, and it goes up and down. I'm not sure if it's from the prednisone or not. But the lasix is working, cause I know I'm peeing all the time. The color in my urine is lighter, so there isn't as much blood although there might still be some present.

So overall, I'm feeling a little better. But the symptoms are still there. I did check my blood pressure while I was at the store today at one of the machines and it's still somewhat high.

I go back on Sunday to get some more blood work done. The doc had prescribed the meds for the whole month, and I just started them on Monday. I'm just wondering if it'll take longer for it to kick in and if I'll start seeing some results.

I know with auto-immune diseases as tricky as lupus it's really hard to say. But I'm really keeping my fingers crossed that I can do without a trip the ER. I really just need to hold out for a little while longer until my insurance can kick in.

Any words of advise anyone? Experiences with nephritis acting up and what treatments worked for you.
I was diagnosed with Lupus with Antiphospholipid syndrome (APS) in Nov 05.
Current list of medications includes:
Cellcept 250mg/ 4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 6mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day, Midrin as needed for migraines.
-Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.
-Rituxan infusions twice every six months in March and September

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