My body feels so cold

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sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 12/9/2009 11:52 AM (GMT -7)   
I've always had trouble with feeling cold, but since two weeks ago or so since I had the Turkey fall on my foot, I've noticed I am freezing, my hands are kinda stiff like and they feel soo cold, last two nights while in bed, I felt the coldness running up both legs too, now I've never felt it like that before.  I can be in bed with blankets and still be shivering so bad for about half an hour.
My injured foot feels cold and it will hurt when I walk.  I feel like I'm standing in a freezer, thats how cold I'll feel on some days.  I don"t even feel like cooking,because I don't want my family to see me in pain like that.
I will try to warm up by the fireplace, it makes it worse,.
 
Doees anyone have symptoms like mine? very cold feeling, especially hand and feet, to the point you start shivering?
 
Thanks
Syl


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 12/9/2009 6:48 PM (GMT -7)   
I wish I could say we both didnt have this problem but I too suffer from being extremely cold. I had a few days this past week where Ive been so cold my nail beds were dark purple & I shiver and yes it makes my body hurt! My feet are the worst and nothing ever helps..they are cold with socks & shoes & I feel it go up my legs too alot. Even if the rest of my body doesnt feel really cold my feet make me get chills and it feels like it throws my body temp off because I end up feeling feverish by getting hot flashes & cold chills. Its SO weird. My normal body temps are 97.6ish so Im wondering if that with the Raynaud,s I have from Lupus causes any of this as a combo together? Do you have any of these things wrong with you?
 
 
*Lupie Britt*
 
-SLE- 
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Flonase Nasal Spray- twice daily; Dexamethasone Nasal Spray- 3 wk intervals; vitamin- once daily; Prilosec- 20mg twice daily; Neurontin- 600mg twice daily; Cymbalta-60mg daily; Dexamethasone suspension for ulcers;  excedrin migraine- as needed.


sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 12/10/2009 1:23 PM (GMT -7)   
Thanks, Lupie Britt for responding, I have not been dx with Raynauds but I do have Lupus and Fibromyalgia, I wear two pairs of socks at night, wear soft gloves to sleep, still frezzing. I wear gloves when I drive too. I do notice when in my car and heater is on it feels like it burns slightly, so I'm constantly rising and lowering the temperature in car, kids don't like that.

When I have my temperature read at my DR's office it always at 99. I guess that's normal. Some nights the cold pain will wake me up. Today, my hands feel so cold but my feet are colder right now and hurt when I walk. In morning, even after wearing a nice thick robe, I feel so cold, oh, I also wear a sweater under the robe too.
I take nice warm showers in begining but then raise to hot then it hurts but it relieves my coldness for few minutes. I don't know if should let tell my DR. about this problem, I don't think theres anything that can be done anyways.

I don't get hot flashes but I do get constant chills.

Thanks
Syl


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5803
   Posted 12/10/2009 1:27 PM (GMT -7)   
We should always tell your doctors ALL of our symptoms, even if you don't think they are related or or solvable! Something like this could be the extra clue the dr needs to change his thinking about your illness, and put him/her on the right track to a more suiting diagnosis and treatment plan.

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 12/10/2009 1:31 PM (GMT -7)   
Thank you, Lynwood, I will let him know on next appointment, I just never really thought of it till now beacuse it has gotten worse.

Thanks
Syl


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 12/11/2009 7:30 AM (GMT -7)   

Hi! Everyone,

I got a sense from my neurologist, that what we are describing, the hot flash/cold flush/feverish/chilling chill swings so many of us seem to describe, (that I could clearly differentiate from the hot flashes I had during my menopause year), are symptoms related to underlying nerve inflammation characteristic of CNS lupus. He prescriped Neurontin for me, and it was like a miracle cure for the peripheral neuropathy in my legs that was literally driving me out of my mind whenever I was trying to sleep, too.  And during flares when I have a scarey rt. sided headache, my left side can get numb, and I used to panic that I was having a stroke. And I have always been intolerant of the cold. Twice I have noticed my fingers and feet turn mottled grey/whitish. Next time I am whipping out my camera phone and printing an 8x10 glossy for his office.

Happy Hanukkah and Merry Christmas,

hugs,

suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

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