So ive been on plaquenil for 6 months along with naprosyn and neurontin was added 2 months ago, now they are adding cymbalta. They are really really being stubborn about trying prednisone or anything else that will help the actual lupus instead of the pain. This makes me sooo frustrated because I have still had flares EVERY month and even though some things are better, my disease is NOT controlled, in fact if you have read my other recent posts, it seems to keep gradually getting worse! My burning pain/tingling is spreading in patches(thighs & knees, then down to legs/feet, then to my arms in oct, and in nov to the back of my shoulders and neck/top part of spine inbetween my shoulder blades). Even with all that my 2 EMG's/Nerve Studies and 1 skin biopsy for small fiber nerve involvement are negative. What I dont get is even with Neurontin increased up to 600mg 2x/day and then back down to 300mg 3x/day to add the cymbalta, it has not helped the pain. Why do my drs insist on treating pain and not give me something to control it??? Anyone else have this problem? :/ -Brittanee
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Flonase Nasal Spray- twice daily; Dexamethasone Nasal Spray- 3 wk intervals; vitamin- once daily; Prilosec- 20mg twice daily; Neurontin- 600mg twice daily; Cymbalta-60mg daily; Dexamethasone suspension for ulcers; excedrin migraine- as needed.