new symptom of mine?

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nolatoco
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 12/14/2009 3:28 PM (GMT -7)   
I have been doing pretty well, lately.  They have been trying to taper my prednisone dose (unsuccessfully)- still at 4mg.  They want me completely off of it.  Everytime I go below 4mg, I start feeling bad.  Hopefully, tapering me 1mg at a time will work.
 
Anyway, I have a question regarding a weird thing that is happening.  I told my rheumy about it, but she didn't know what to make of it.  It started about once every couple of days or so, but I will wake up in the middle of the night, and my hand from the wrist down will be numb, tingly, and cold.  It isn't my whole hand, though, just my pinky finger and the one next to it.  I wake up and have to rub my arm and hand to wake it up.  It happens to one hand or the other, never both.  I thought at first I was just laying on it wrong, but I'm noticing now that I'm definitely not laying on it and it continues to happen.  It started just once every couple of days or so.  But last night, I woke up 3 times with it happening!
 
I looked up Carpal Tunnel, and it only affects the thumb, pointer and middle finger from what I'm reading.  So, I'm left thinking that it could possibly be related to my UCTD?  It doesn't seem to be Raynaud's Syndrome (which hasn't appeared yet for me) but then again, I haven't seen Raynaud's only read about it.
 
Any ideas?  It's starting to affect me mainly because I wake up 2 or 3 times a night and this week it has been pretty frequent.
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Prednisone, Vitamin D, Wellbutrin, Glucosamine Chondroitin 


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/14/2009 4:13 PM (GMT -7)   
Sounds very uncomfortable. I do know that pressure on the ulner nerve causes the pinky and half the ring finger on the palm and front of hand tingeling or a prickeling sensation with numbness. Look up the ulner nerve and see what you think.?

susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 12/15/2009 5:48 PM (GMT -7)   
I have had the same thing also.  Since I am just newly diagnosed, I can't help you.  Just want you to know that it has happened to me too.

sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 12/16/2009 9:34 AM (GMT -7)   
I have symptoms day and night too. Some nights,Im awaken due to my leg or arm is numb, I rub it too wake up, it's a weird feeling. Some day's I can be out and out of the blue my legs (both) will go numb,like there asleep, I dread that too,because I will have a hard time walking, for a short time.
Syl


nolatoco
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 12/16/2009 1:34 PM (GMT -7)   
Thanks sunshine, susan, and aim!

Susan, I have not yet been diagnosed. I am still playing the Undifferentiated Connective Tissue Disease game. Where ANA is positive with some other symptoms but no organ involvement and not enough symptoms to officially diagnose it as lupus.

I'm wondering if nerve damage which could cause numbness and tingling to the extremities could be lupus related? Everything I'm reading is calling it ulnar neuropathy which is related to injury of some nature, neurological disorders and autoimmune disorders. The last time I went to my rheumy she said if I wanted to get a nerve conduction test she could order one, but at that time it wasn't as frequent or bothersome and I'm not sure of the costs of all these tests!! I'm already getting a pulmonary function test in a couple of weeks. All of this testing gets so expensive even with insurance.

Sigh.
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Prednisone, Vitamin D, Wellbutrin, Glucosamine Chondroitin 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 12/16/2009 10:08 PM (GMT -7)   
I agree the testing can be expensive with so many things going on. It seems like we are always being tested,but it does help to rule out or find the cause more quickly.
I find if I sleep with my arms or hands above my head, I will wake up with numbness during the night.

I hope you get answers and relief soon. Keep us updated and take care. You will be in my thoughts and prayers.

Babs

nolatoco
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 12/16/2009 10:25 PM (GMT -7)   
Thanks for the response Babs!

I'm just getting frustrated with appointment after appointment and test after test. It's expensive and it doesn't seem to get me any closer to some kind of definitive diagnosis. I keep having weird symptoms occur and I let ny rheumy know about them and she never seems to be able to know what's going on. I have this "catch-all" diagnosis and it's just frustrating. I don't wish for something to be wrong with me but am tired of not knowing the definitive truth about what is causing all this.
Sigh.

OK sorry. Just dealing with another one of my massive day-long headaches and needed to vent.
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Prednisone, Vitamin D, Wellbutrin, Glucosamine Chondroitin 

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