Anyone have encouraging stories with Alopecia Areta healing?

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Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 12/15/2009 10:11 PM (GMT -7)   
I have a patch of Alopecia Areta on my head. It is about the width of a deck of playing cards, and about as long as an opened cell phone. It was originally three individual spots which have grown and merged into one large one. I saw a dermatologist a few weeks ago and he prescribed me Topicort Gel which I have been faithfully applying EVERY night. I actually jumped up and down and giggled with excitement when 2 1/2 weeks into the treatment I noticed extremely fine baby hairs growing on my scalp. I had my mom look and double check for me. She confirmed the new growth. This is GREAT!

I'm wondering if anyone else has stories to share of their experience with it? Also, if someone else has used this med on their scalp, and how long it took them to have their hair grow back somewhat normal...just thought I'd throw that out there. If my head gets any worse, I would've had a quickly enlarged selection of hats for my wardrobe and shortly thereafter shopping for a lovely wig if I could afford one (I've no idea how much they cost....but that's to learn another time if need be). So, please share with me if you wish. I'd love to hear.

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops
<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 12/16/2009 10:09 PM (GMT -7)   
Ellie--
I'm really happy for you! Its great the treatment is working! I have vitiligo and hyperpigmentation and alopecia where the vitiligo is. The vitiligo is really stubborn and I haven't been able to keep putting protopic on it due to side effects, because I have so much, and it wasn't working. I know there are so many treatments being developed. I'm so happy when people have success with this stuff. I've given up, I'm so usedto having it now. I don't have it on my face nor am I losing my head hair more than a normal person with ai disease. You are such a good sport about the whole thing, its great, I know how it can be sometimes. I lost my hair on interferon and I am not a pretty bald woman. I looked like uncle fester!

well, its great to hear, hopefully someone else will post and congratulations!
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 12/17/2009 11:37 AM (GMT -7)   
Thanks for responding:) I have not been happy about losing a huge patch of my hair..to say so would be a lie. However I realize that it's a choice. Daily I have to choose if I want to let loss of hair steal my joy in living or just to let it go and accept it. I can't change it. I am really not in control of whether it grows back or not. God is...so I find my joy in other things...I can't stand the thought of being miserable all the time because of things beyond my control. I ask myself, what can I choose to do, and ask God to help me with the hard emotions I feel. It's not that I don't get down like everyone else, just I try and make a choice overall to be happy, rather than sad. One thing/day at a time. And hey, I'll take all the victorious moments I can get. If I get a little hair back you bet I'm gonna giggle and brag and be happy. It's a gift, really. I'm looking forward to the day when "maybe" I can put all my hair in a pony tail again...that would be swell. Merry Christmas to you Marj:) Take care.

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops
<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


kimberlyrenee
Regular Member


Date Joined Aug 2009
Total Posts : 43
   Posted 12/18/2009 1:15 PM (GMT -7)   
I'm going through the same thing with alopecia, and i've had some positive results from a round of steroid injections to the scalp (it sounds a lot scarier than it actually was). my hair loss was significant... most all the hair on top of my head fell out first, then the sides behind the ears. and i'm talking no hair at all, just completely smooth baldness.

after getting the shots (25-30 total) the hair has started growing back all over the top, and quickly too... after 1 month the hair on top is about 3 cm long! still nothing on the sides, but at least the top hair growing will let me cover up the sides eventually, if it doesn't come back.

the only thing about the shots is that they cause little "divots" sometimes in the head... i have them so I can't get another round of the shots yet but i'm excited for getting them again next month cos they helped so much! good luck to you with the process... keep celebrating the small victories. you seem to have a great attitude about everything :]
sle, sjogren's, raynaud's, alopecia areata, cfs

"Don't hold back in mourning your old self and abilities. Reassure yourself that it's normal to be sad about it and okay to admit it. Only when you allow the emotionally protective walls you’ve spent years constructing fall to the ground, can you begin to take steps toward healing. And only then can the rebuilding begin." -Sara Gorman


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 12/22/2009 12:54 AM (GMT -7)   
There is something we used to use to grow hair back on our show horses when they had a scar, or a thin tail. On the thin tail, we used listerine. My uncle, a detist, once told me that listerine will grow hair on your tongue. I thought he was joking until I started using it on horse tails. But in that case it kills the bacteria or fungus or whatever and possibly somehow stimulates hair growth.

The second thing really does grow hair and I know people who use it, it is an herbal wound solution called Schreiners Herbal solution and their website has testimonials to hair regrowth. i have been able to regrow hair on horses that have not had hair inthe area for years, sometimes it grows back twice as long in that area when it first grows in and you have to trim it to match, it works that well. Once it grows in you can stop using it on the horse and it will be fixed and keep growing hair. Its weird stuff becaue it only has a few seemingly benign herbs in it, but it definitely grows hair.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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