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Artickat
Regular Member


Date Joined Dec 2009
Total Posts : 26
   Posted 12/16/2009 5:49 PM (GMT -7)   
So lately on top of everything else, I have been extremely nauseous. I have only had a prednisone shot...like 2 months ago now...no other meds yet. I thought it was the medicines that they give you that can make you nauseous, I didn't know the disease itself could cause this...is this true? I also have been having bouts of dizziness and get very disoriented. My hands are always swollen now and my knuckles are red. Just have felt like total crap lately, I haven't even put any balls on my tree yet. To top it off, I thought my husband was really starting to get it, well forget that. I am left to do everything and just want to scream. I have 2 children, 2 dogs, and my husband to take care of. I think I may just be going crazy!! I have been fighting to get rid of at least one of the dogs...I know they are a part of the family but the younger one gives me problems everyday and I just feel I can not keep up with everything anymore. Am I being that unreasonable?? Also, with my randomly shaky hands how will I be able to be a nurse? I am again questioning if I will really be able to pull my schooling and a job in this line of work. I just feel horrible and even more so because I know I am down but it's the Holidays...I don't want to ruin it for my children. I just wish people (mostly my husband and his family) would just get it. I had them all read the "Spoon Theory" and thought that hit home for them but I know their, "Oh I am so sorry" and "If you need anything we are only a phone call away" are so fake I honestly feel like going to their house with a baseball bat...of course I wouldn't...but I am just so angry, sad, and hurting... sad

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/16/2009 6:27 PM (GMT -7)   
Artikat,

I'm so sorry you're having such a tough time. I know how overwhelming this whole disease can be. When I was in my worst flare, five years ago, I had a lot of nausea. The good news is that my lupus has calmed down and I'm like a new person compared to how I was 5 years ago. So don't give up hope! I'm feeling pretty rough right now so won't write much but know that I'm here for you any time you need to vent. I've given up expecting anyone to know how I feel, but I know that my lupie friends here on healing well do.

Hang in there,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 12/16/2009 6:52 PM (GMT -7)   
Artikat, sorry you are struggling :( hang in there - we are all here to vent to . . .

regarding the nausea, i wake up every morning feeling like i am going to toss my cookies . . . i just take it easy, and after a couple hours, it goes away . . . it is worse when i am under extreme amounts of stress, so maybe your body is just reacting to the stress you are feeling . . . if it keeps up, though, i would recommend that you ask your doctor if it is normal & if there is anything he can give you for it . . .

take care, i hope you feel better soon
Anne

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 12/16/2009 10:02 PM (GMT -7)   
Artikat, I'm sorry you are having trouble. If the dog is giving you trouble, I think its reasonable to make it an "outside" dog, if possible, or keep it caged when things ge t stressful or he has problems, or find him a new home. De-stressing your life is perfectly reasonable and a really smart thing to do. I have a small male dog that can have "accidents" at times and he goes in his cage if I can't keep an eye on him or if alot of chaos is going on. He likes his cage, there is a big piece of an old bedspread in there and sometimes we use towels, things we can wash. some times he cries a little and I just tell him to hush and he stops, he can seeus but isn't underfoot. Then, when I have time, I take him out. I also kept my dogs outside during the day and caged at night in the house until they were old enough to understand being trained. They got it pretty fast, but the boy dog still has issues at times if left to himself for long periods, he is stubborn.

Kids too! wow that is a handful. Maybe the kids can help with some things. I have been sick a long time, and learned to delegate, my son grew up helping me and we grew closer as a result. He learned to be a responsible adult as well from it. HE had been really spoiled, but I wanted him to be able to take care of himself.

I was a medical assistant when I was young, probably not a real compassionate one, I was very immature then. But there are many many different jobs you can do as a nurse andthere is such a need right now. My sister is an RN andworks for insurance companies out of her home and makes decent money. Alot of good nurses are being run out of the hospitals and in to the insurance business. But there are still lots of good nursing jobs in the hospitals, nursing homes, and doctor's offices. I worked in a blood bank for a while, shakey hands, no problem. I worked in a doctors office and shaky hands wouldn' have been a problem there either, prepping rooms, taking vitals and assisting the doc. Doing labs is another option. I would go ahead, it is likely your docs will find a way to get rid of the shaking. I don't know how nurses duties get split up in the hospital, but sometimes there are certain nurses who do IVs and some that do other stuff. I had two really go at me afew days ago, you probably would have been much better, shakey hands or not.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 12/17/2009 12:03 PM (GMT -7)   
If your husband is expecting you to care for him (fix his meals, wash his clothes, etc) I'd get rid of your husband before I got rid of the dog.

Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Rx: Cellcept, plaquenil, prednisone, celebrex, prozac, wellbutrin, klonopin, neurontin, ambien, lisionpril, actos, nexeum, simvastin, lomotil, cholestryramine, claritin, nasonex,  PRN: tylenol arthritis, flexeril, phenegren, vitamins, Acupuncture.  Donna 


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/18/2009 6:01 PM (GMT -7)   
Hey Arti! Dropping by to see if you had a better day today!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/18/2009 8:18 PM (GMT -7)   
Hi Artickat,

It can be soooooooo frustrating, maddening and plain insulting to not be understood or at the very least, believed! I'm sorry you're dealing with all of this.

Do what you need to to get balance and stability in your home. Stress is very bad for our condition. Do what you need to do.

Donna's suggestion made me chuckle. I think all of us married gals can relate!

Artickat
Regular Member


Date Joined Dec 2009
Total Posts : 26
   Posted 12/19/2009 10:36 AM (GMT -7)   
Thanks guys...Donna...some days I actually think about it. Except on days like today when the dog walks up to the door and takes a big dump and pisses all over the place. They can both go!! I am just trying to take it one day at a time...don't really have a choice to take it any other way. I guess it is just the snow and cold weather that has me down...I look outside and feel the pain. I am also new to this diagnosis so I realize it will take time. We are going to a Christmas party tonight...weather permitting...without the kids so I am hoping I can enjoy myself and hopefully get out of this slum. I wish you all happy holidays and thank you again for your time and input.

coffeelover
Regular Member


Date Joined Feb 2006
Total Posts : 186
   Posted 12/19/2009 11:07 AM (GMT -7)   
Tee hee...  I haven't laughed like that in a while...  I agree...  get rid of the dog and your husband!!tongue   Well, at least the dog(s), animals just seem to compound the situation...I don't even have house plants anymore (love to garden when I can)!  Still laughing about the husband thing! 
 
What if you made a "chore bowl" that contained different daily chores in it and everyone grabbed one?  I realize that sometimes you would get a chore that you weren't up for, but maybe it would give everyone else a perspective?  If you had to cook dinner but felt like poo, maybe macaroni would be all that anyone got? My husband learned a long time ago that unless he wanted cereal for dinner, he should probably cook on his nights off.  I do cook when I feel up to it, but its hard to stand in the kitchen at night and whip up something etible!
 
I dont' know how long you have been sick or married, but either your family is going to understand or they are not... there doesn't seem to be a magic lightbulb that goes off, although when my husband was diagnosed with Crohn's last year, he finally began to really understand my world... my mom is still a butt about my health, even though she has lived with us for three years, I have to be dying for her to get it. 
 
One last piece of wisdom....  whether people understand you or not... you still have to live with and in your body and only you can come to terms with that and make the best of it, regardless of what the rest of the world thinks...
 
 
"There is a little naughty monkey in all of us!"
 
Mononucleosis / Chronic Fatigue Syndrome 1991, Depression,Endometriosis 1994,Costochondritis,Stage Two Dysplasia 1994,Asthma 1995,Tonsilitus 1999,Lupus Jan 2004,Migraines, Interstitial Cystitis  2005, GI Bleed/problems 2007.
 
Rx:Hydroxycloroquine (Plaquenil) 200mg 2x/day,Hydroxyzine HCL (Antihistamine) 25mg 1-2 pills at night,Albuterol Inhaler  taken as needed, Acidophilus tablets 1billion CFU, Cabergoline 1x/wk, Valtrex 1gm/daily, Vit D 2,000 IU daily, Calcium/magnesium supplement, Senna-Lax laxative daily.
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/19/2009 6:53 PM (GMT -7)   
I really wish I could wave a magic wand and make your husband like mine. I got really luck in that my husband understood what was wrong with me before the doctors did. My family on the other hand thinks I am just malingering. My mother might understand now since her car accident left her in worse shape than I am but I dunno she is so focused on herself that she doesn't talk to anyone anymore.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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