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Forum Moderator

Date Joined May 2005
Total Posts : 6935
   Posted 12/19/2009 3:39 AM (GMT -6)   
Okay, so how low does the prednisone have to go before I can sleep???

I've been taking Trazodone & Xanax to help me get to sleep and stay asleep ever since I started the prednisone years ago at 15mg. Now the pred is down to 4mg, its 3:30am and I'm wide awake (but totally exhausted).

Do you guys have insomnia as part of Lupus? Or do you think it's a function of some other med? I take Plaquenil, Prednisone, Piroxicam, Valtrex, Nystatin, Wellbutrin SR, Xanax, Traodone, and very seldom toss in a Vicodin....

The sleep study showed no apnea or anything like that - I don't have the best sleep, according to the brain waves & movement indicators, but not bad enough for them to want to follow up...

It's not like my brain or body are awake enough to do anyting useful...just get more & more tired & frustrated! Ugh!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Feb 2006
Total Posts : 186
   Posted 12/19/2009 1:10 PM (GMT -6)   
I used to have insomnia really, really bad. I don't know if it was my meds or just life. Now I get up so early in the am (4am) that I am ready for bed at 7pm!! Try getting up early? Get yourself into a new sleep pattern if possible. Try taking your night meds earlier too. Good luck, I don't miss those sleepless nights!
"There is a little naughty monkey in all of us!"
Mononucleosis / Chronic Fatigue Syndrome 1991, Depression,Endometriosis 1994,Costochondritis,Stage Two Dysplasia 1994,Asthma 1995,Tonsilitus 1999,Lupus Jan 2004,Migraines, Interstitial Cystitis  2005, GI Bleed/problems 2007.
Rx:Hydroxycloroquine (Plaquenil) 200mg 2x/day,Hydroxyzine HCL (Antihistamine) 25mg 1-2 pills at night,Albuterol Inhaler  taken as needed, Acidophilus tablets 1billion CFU, Cabergoline 1x/wk, Valtrex 1gm/daily, Vit D 2,000 IU daily, Calcium/magnesium supplement, Senna-Lax laxative daily.

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 12/19/2009 2:27 PM (GMT -6)   
Lynn, I'm not sure this will make much sense since I had insomnia last night and am exhausted today. I've had insomnia since I started taking prednisone and now take lunesta. It's wonderful. Last night was unusual.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 12/19/2009 3:21 PM (GMT -6)   
ambien works well
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Regular Member

Date Joined May 2007
Total Posts : 474
   Posted 12/19/2009 7:00 PM (GMT -6)   
Lynnwood, hoping by now you have managed to get some rest. I, too, had the sleep test done and they told me that I am an exceptionally restless sleeper. But no sleep apnea or anything like that. Doc put me on Ambien CR and that has made a huge difference in my overall health.
Hope you find some relief.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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