toes, hands, and fingers curl up and OUCH!!!

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aimsgirl16
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Date Joined Jun 2008
Total Posts : 1434
   Posted 12/27/2009 5:58 PM (GMT -6)   
I know we have discussed this before, I just can't find the discussions on the forum. My fingers and toes keep painfully curling up. When my fingers start curling, I can't make a fist because it seems like my joints move somewhere it isnt supposed to. Last Wednesday and Thursday my family and I went to a indoor water park/hotel and everytime I started swimming in one of the pools, my big toes on both my feet would start painfully curling. I tried everything to get it to stop in the water but it wouldnt. It would only stop once I got out of the pool. It only effects my hands when I am driving. If I take my hands off the steering wheel it will go back to normal pretty quick...Any ideas? It doesnt happen all the time...usually a week or two out of the month and it gets frustrating????

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/28/2009 7:28 PM (GMT -6)   
((((( Amy ))))) that sounds very painful, I have no experience with it and pray you get some relief soon. Sending gentle hugs and prayers your way.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Ginny
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Date Joined Feb 2003
Total Posts : 5511
   Posted 12/29/2009 10:10 AM (GMT -6)   
Hey Amy,

That has happened to me before too! But only with my toes. It's awful!

The phenomenon went away a couple of years ago. I started taking magnesium (500mg), boosted my calcium to 2000mg daily, vitamin b6 (250mg) and vitamin d (1400mg).

I think that cocktail of vitamins has helped with a lot of my muscle spasms. I wonder if these are spasms for you too? Any time I would mention it to my rheumy, she would blow it off as being "part of lupus". But my family doc got me to try that vitamin cocktail. I've been taking it ever since.

For me, it was always the 3 middle toes. YUCK!!!!

nolatoco
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 12/29/2009 12:48 PM (GMT -6)   
Aims,

It sounds like some type of vitamin deficiency to me, as well.

This is what I found online and I agree with what they're saying from a nursing standpoint.

"Deficiency of magnesium causes weakness, muscle cramps, cardiac arrhythmia, increased irritability of the nervous system with tremors, athetosis, jerking, nystagmus and an extensor plantar reflex. In addition, there may be confusion, disorientation, hallucinations, depression, epileptic fits, hypertension, tachycardia and tetany."

"The most common sign of hypocalcemia is what is called "neuromuscular irritability." Your nerves and muscles, which are directly related to blood calcium levels, may spasm or twitch.
If your blood test results indicate hypocalcemia, you may notice muscle cramps in your legs or your arms. You may notice, with mildly lowered blood calcium levels, numbness and tingling of your fingers and toes."


So, maybe the vitamin cocktail would work. I would maybe ask your doc about it.

Hope you start getting relief!
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Prednisone, Vitamin D, Wellbutrin, Glucosamine Chondroitin 


aimsgirl16
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Date Joined Jun 2008
Total Posts : 1434
   Posted 12/29/2009 12:59 PM (GMT -6)   
Oh Wow! I will deffinalty ask my doc about a vitamin cocktail. I do have weakness in my hands, muscle cramps, tachycardia and numbness and tingling! Wow, that answers a lot of my questions. Jeepers, its crazy how a thing or two can be low or high and cause so many problems.

Thanks for the replies, its helps so much :)

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 182
   Posted 12/29/2009 2:49 PM (GMT -6)   
This is what happens to me too... I soak mine in the hottest water I can stand...

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 12/29/2009 3:58 PM (GMT -6)   
Weleetka...Thats a great idea, I will have to try it next time. I didnt even think about it because of what happened when I was swimming but it was really cold water. Maybe hot water will have the opposite effect!!! Thanks for the suggestion :)

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/29/2009 7:30 PM (GMT -6)   
Amy...people with renal insufficiencies can have electrolyte imbalances that cause severe muscle cramps. I have had them that took my breath. Also, when I am on higher doses of prednisone I cramp. It usually starts in my fingers and toes! Mention it to your doc for sure!!!
Judy

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/29/2009 11:54 PM (GMT -6)   
Amy I was having similar problems and started taking extra potassium. It seemed to help; although the cramping did not go away completely it did improve.

Good luck!
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Judy2
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Date Joined Mar 2003
Total Posts : 9357
   Posted 12/30/2009 9:29 AM (GMT -6)   
I noticed you're taking steroids. They are known for causing an increase in the sodium in your blood and a corresponding decrease in potassium. Sodium and potassium are like a seesaw in your blood; as one goes up, the other goes down.

When I was on steroids, I would wake up in the night with excrutiating cramps in my calves and feet. Here's what helped me:

Watch your salt intake. Steroids make you crave it, so if you aren't already limiting it, consider starting
Increase your potassium intake. Bananas, orange juice and sweet potatoes are all good sources of potassium. Be careful of potassium supplements, because they can cause serious heart arrythmias. Check with your doctor before taking a supplement.

Good luck!

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/30/2009 4:59 PM (GMT -6)   
Judy2 said...
Bananas, orange juice and sweet potatoes are all good sources of potassium. Be careful of potassium supplements, because they can cause serious heart arrythmias. Check with your doctor before taking a supplement.


Judy's right.....I should have said I started eating lots of dried apricots because they are SUPER high in potassium. I was afraid of taking potassium supplements because I didn't know what dosage I should take. Sorry I wasn't specific enough....I'm really "foggy" right now because I have bronchitis on top of everything else!

JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 1/3/2010 3:25 PM (GMT -6)   
Thanks everyone for your help :)! I have made a list of questions about this muscle cramping to ask my rhemy and have made a list of the vitamins everyone suggested and will see what she says. I have an apt with her in 2 weeks!!!!

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/5/2010 10:09 PM (GMT -6)   

Hi ya Ames! like the others said I get that when I have a different mg. of predisone. If I try to peel a potato or hang a blouse up or anything like that. It doesn't have to be from taking more steroids it could be when I take less it's just a different amount. Let us know what you find out though. Sounds like a lot of us could possibly get something out of what you learn.

love ya

carol



systemic sclerosis sine scleroderma,sleep apnea,Megaloblastic anemia
what ever that is.
 
 


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/9/2010 10:34 PM (GMT -6)   
Hi,  I guess I don't understand what you mean by curling up?  In the cold water do they instantly "curl up"?  Or, do your fingers and joints in your hand hurt and cause your tendons to curl up?  I've had a lot of troubles with inflammation in my hands and my fingers don't want to straighten the way they should and I have issues with making a fist, holding a pen, counting money at work, opening a door-you name it.  I read some of the suggestions for whats going on with you and I will try some of them myself.  Having a banana a day can't hurt anything. 
 
I also found this helpful because I am on prednisone and didn't realize that it caused me to crave salt.  I know it makes my hungrier all around, but now that I know that I can hopefully help myself step away from the Pringles that I've been dying for lately.  (duh-right?!) 
 
I usually soak in a warm bath or use a heating pad on my hands when they feel like this and/or take extra prednisone.
 
Thanks!
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis

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