Mother of all RASHES!! **See Pics**

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MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 12/28/2009 1:47 PM (GMT -7)   
Okay...this Christmas santa brought me a malar rash and red achey knuckles...which is extremely rare for me.  I think i've only had a malar rash one other time.  So...Saturday I felt horrible, finally drug myself up and went to get in the bath tub and was COVERED in a rash from my axillary down to below my waist on both sides of my body!  It was NOT itching/hurting, but it was horrendous looking. 
 
So...I wasted my precious time and went to the ER.  The doc said it was staph and sent me home with an antibiotic.  I knew it wasn't staph because i've had it a gazillion times but I didn't argue with him...he was actually very nice, just wrong.
 
Today, I emailed my doc pics and she said it is def. a lupus rash!  I wish I could attach a pic and show you guys...that is, if I wasn't so very ashamed of my scarred body!!!
 
Has anybody ever had one like this?  It looks like i've fallen into an ant bed the size of Mt. Everest!!!

Post Edited (MJLD) : 12/29/2009 10:43:47 AM (GMT-7)


Lynnwood
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Date Joined May 2005
Total Posts : 7018
   Posted 12/28/2009 3:25 PM (GMT -7)   
If you want the photos posted, you can email them to me and I'll do it.

Did you mean it is or is not itching/hurting? And did the rheumy prescribe any changes in medication?

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 12/28/2009 3:27 PM (GMT -7)   
Aaaw, I am sorry that you had such a horrible rash. I hope it went away. That does sound pretty bad. I have not had a rash, but just wanted to offer you a listening ear.

Hugs,

Susan
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Lupus, Fibromyalgia, or MS.  +ANA, +ACA, MTHFR heterogenous gene A1298C


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/28/2009 3:30 PM (GMT -7)   
I am so sorry you are going through this. I have this weird rash of tiny raised bumps along my spine and they itch like crazy, it never fully goes away and no doctor has a clue what it is. I totally understand how a rash can be horrible.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 12/28/2009 4:52 PM (GMT -7)   
Lynnwood...OOPS! I meant it was not itching/hurting! I edited it! We are not going up on any meds right now...gonna watch things for a while. The only option I have is to go up on the prednisone and i'm gonna try to ride it out if at all possible.

I'm going to look at the pics again and decide if I have the guts to have them posted...my body is so damaged!!!

Thanx all for your concern.

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/28/2009 5:06 PM (GMT -7)   
OH Judy, that sounds horrible! I am so sorry..... I do pray is clears up soon. Hang in there my friend, you are in my prayers.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/29/2009 8:12 AM (GMT -7)   
Oh Judy, you must have been shocked and overwhelmed to see that! I pray that it goes away licketty split.

((((hugs!))))

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/29/2009 8:54 AM (GMT -7)   
I had to break down and go up on the prednisone. I woke up with joint pain. I don't need this flare to get out of control and cause more serious issues! I'm fairly certain I did this to myself! I was so excited about being home for Christmas this year and able to participate I WAAAYYYY over did it. Now, I get to pay the piper!

I know many of you are facing more serious issues than a rash and joint pain. You are in my thoughts and prayers. Bless you, Judy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 12/29/2009 9:23 AM (GMT -7)   
See Judy's rash photos here. Posted for a limited time only. (Removed after a month!)

This looks like mine x5, Judy!!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Post Edited (Lynnwood) : 1/15/2010 7:57:16 AM (GMT-7)


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/29/2009 10:06 AM (GMT -7)   
Judy, those rashes look miserable. I don't know how you keep from scratching yourself to death even if it doesn't itch. Let us know if it goes away with prednisone. Sorry about the joint rash. Hope the pred helps that too.

And thanks Lynnwood for posting the pictures. I've never seen that kind of lupus rash before.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 12/29/2009 10:25 AM (GMT -7)   

Hi! M,

I am so glad you thought to a). go to the ed, b). take pictures. Hey, if Lynnwood does post them, we could start a thread with a contest entitled.... Connect the spots! Thank the Lord you aren't itching.

suetoo

ps. i have my blue marker ready!tongue


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/29/2009 10:42 AM (GMT -7)   
LOL! Well, with the size of my body and the size of my rash that could be an all day job!!!! Only lupies could be entertained by a rash!!!

Thanx Lynnwood. Maybe it will help someone in the future. Judy

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/29/2009 11:00 AM (GMT -7)   
hehe, you gals are too funny. But golly...that looks so painful. Phew, I can't imagine ....

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/29/2009 5:27 PM (GMT -7)   
Had to go up again on the prednisone...ARGGGHHHH!!!! The joint pain was getting more and more miserable. So, I tried raising it on my own and it didn't help....Doc raised it again. We're afraid it will spiral things out of control if we don't get on top of it. Crazy lupus!!

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 12/30/2009 9:52 AM (GMT -7)   

Yikes!

You poor dear, but thanks for sharing. Your rash looks very similar to the 2 or 3 raised white spots I had from my last, and hopefully final, sun exposure rash. Mine come on my arms from driving into the sun, but the rare spot, circumscribed by a reddish circle, goes away quickly, and one time I was able to scruff off the white spot like it was a pimple. Now I am inspired to remember to use my cell phone to take a picture for my dr. I started getting sick way before cell phones were invented, teeheeyeah I have been on prednisone (5mg) daily for the past 3 years, so that helps alot. Now I couldn't live without that stupid phone. I am on my daughter's family add a line share plan which I love, except I got busted for overages on their bill to the tune of $106 in Sept. You should have heard the Verizon folks laugh at the irony of that one! She said if it happens again she will have to take it away for a month. I'd rather be grounded but she said I would just sneak out.

hugs to all,

suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


momofltlbrat
Regular Member


Date Joined Apr 2007
Total Posts : 164
   Posted 12/30/2009 11:48 AM (GMT -7)   
Judy,

I have had many different rashes over the years, and am still not officially diagnosed. Have an autoimmune disease of some kind, but have the docs baffled. When I have had rashes, and I did at one time have one similar to your pics, my only relief was sitting in a warm bath with aveno bath added in. The pouches you add in look like oatmeal, and take a little rinsing to get out of the tub, but it took coaxing to get me to leave the bathtub because it was the only relief I got. It was heaven. I even got the aveno cream with the anti-itch or whatever it was called for after. Never rubbed my body dry, but patted gently. My family knew that if they couldn't find me, to look in the bathtub. Some days I would go back in 3, 4 or 5 times in one day. Whatever it took. It worked better for my than any meds they gave me. Hope that helps you.

Debbie

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/30/2009 11:50 AM (GMT -7)   
LOL!!! Too funny Sue!!! I remember the first time I saw someone sitting on the Cresent City Connection bridge, backed up in traffic, sitting on one of those old huge bag phones!!! I was freaked! A phone in a car??? Who'da thunk it??? They are handy. That pic saved me a 45 min drive to see my doc!! :9)

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 12/30/2009 6:05 PM (GMT -7)   
(((Judy))),
Bless your heart! I hope the rash and joint pain gets better soon. It sounds and looks like you are miserable. Keep us updated and take care. You are in my thoughts and prayers.

Love, Babs

lunacygotme79
Regular Member


Date Joined Dec 2009
Total Posts : 34
   Posted 12/31/2009 11:40 AM (GMT -7)   
Oh My!! I am so sorry you have that rash...it's looks exactly like what I have all over my chest and upper arms... what causes mine is my dermatomyositis  though (I have a nice scar on my elbow from the tissue sample they took)....When I go through a flare it gets ugly(like now again)....I really hope you get better soon!!!
 

Diagnosed 2009: Lupus (SLE);Rheumatoid Arthritis; Dermatomyositis; Optic Neuritis; Microscopicolitis; Chronic Gastritis; Cryptitis

Meds: Prednisone 20mg daily, starting Methotrexate injections 10ml once a week 12/11/2009, Prenisone eye drops daily.

 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/31/2009 4:22 PM (GMT -7)   
It's really not painful or itching or anything...when I went up on the prednisone it started to fade somewhat...however, it did spead to my scalp!

I had a major prednisone blow up then break down today! I feel so guilty and awful!!! I apologized to my family profusely and they understand, but it didn't help me feel better about it! So mad at myself!!!

daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 1/4/2010 10:09 AM (GMT -7)   
that is so odd, i have something like that on my elbow, i have had ot for a week and no matter what i put on it, it will not go away!!! it itches real bad though. ill run it by my roummy and see what she says haha.
I used to get covered from head to toe in hives, omg i wanted to kill my self i looked like a leopard!! my feet would swell so bad that i could not walk, i could not wear my wedding ring, i lost so many jobs over those hives :'(
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