Would you mind sharing the blood results that are positive with your lupus?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 12/28/2009 3:25 PM (GMT -7)   
Hello,
 
I am trying to get as much information so I can feel comfortable with a diagnoses.  I go back for a follow up with my Rhuematologist, but from what I understand, my bloodwork all came back normal except for the +ANA.
 
So if you can, will you please tell us which blood work you are positive for with your lupus.  Thank you.
 
Sue  + ANA
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Lupus, Fibromyalgia, or MS.  +ANA, +ACA, MTHFR heterogenous gene A1298C


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/28/2009 3:31 PM (GMT -7)   
occassionally my antiphopholipid antibodies or my lupus anticoglutant is low positive but otherwise all my test results are negative
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/28/2009 4:26 PM (GMT -7)   
High ANA, C3 and C4 are always real low, high sed rate, high creatinie, low platlets and red blood cells. To be honest my blood work is pretty much what you would see for Lupus from a book. Has been for 3 years with very little change. sometimes my ANA will go up or down a bit. that is how I was diagnosed at my 2nd apt with my first rheumy.

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/28/2009 5:02 PM (GMT -7)   
My rheumatoid factor, sed rate, c-reactive protein are real high. I have the anitcoagulant antibodies, high creatinine, low red blood cells...kidney biopsy positive for antirenal antibodies...Have NEVER had a +ANA. Judy

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/28/2009 5:03 PM (GMT -7)   
Hi Sue,

I have had a positive ana (1:640 speckled), elevated SED rate (with first rheumy), low C3, positive SSA (second rheumy), low WBC.... I think that's it. My blood work unlike Amy's slowly progressed over a year. First it was positive ANA and SED rate, then C3 and SSA a year later. After I found a excellent rheumy that listened to me I too was dx on my second visit with my third rheumy. But for most people it can take years, just depends on your symptoms, your labs and your doctor.

Please let us know what your rheumy says. Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Tramadol (as needed) and magic mouthwash (for mouth sores)


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 12/28/2009 5:05 PM (GMT -7)   
high sed rate, positive SSA, negative ANA but positive cytoplasmic staining . . . have never had positive ANA, but have always had positive cytoplasmic staining which apparently is a more rare auto-immune marker . . . the combination of these 3 plus the physical symptoms (rashes, extreme fatigue, painful joints, photosensitivity, hair loss, nausea, etc.) nailed it for my rheumy
Anne

There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
-Albert Einstein

Dx: SLE, Sjogren's, Reynaud's, Peripheral Neuropathy


susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 12/28/2009 6:08 PM (GMT -7)   
Hello all,

Thank you so much for posting your blood test results. This might be helpful to a lot of us "maybe's" out there!! I really appreciate it.

I did call the Rhuematologist office today and the nurse said the Dr signed off on that, and she was assuming that meant everything was normal. I'll pick up the results tomorrow and see for myself what she tested. But from what I understand, she was testing for all lupus related blood abnormalities.

Thank you kindly,

Hugs,

Susan
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Lupus, Fibromyalgia, or MS.  +ANA, +ACA, MTHFR heterogenous gene A1298C


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/1/2010 8:09 PM (GMT -7)   
Hi Susan,

The only abnormal results in two latest sets of bloodwork with my rheumy were high counts of anti-double-stranded DNA autoantibodies. Well, that plus high level of thyroid autoantibodies. I've only once had a borderline positive ANA, before I started on Imuran and prednisone in June 2008. I've never been serologically positive for much of anything while on prednisone, but I guess that's not a big surprise.....prednisone is supposed to suppress the immune system.

My rheumy felt that the high DS-DNA plus my malar rash, photosensitivity, nose bleeds, and extensive family history of lupus was sufficient for a dx of lupus.

Good luck with everything!!
(((hugs)))
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 1/2/2010 7:49 AM (GMT -7)   
Hello,
 
My blood results have been:
 
+ANA as high as 1:640 but also negative results within two weeks of taking that one
+ACA 35 was the highest.
 
All my other lupus tests results came back negative!
 
That is it.  I'm still waiting for my follow up with the Rhuematologist and have my Nuerologist appt on Friday.
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Lupus, Fibromyalgia, MFS or MS.  +ANA, MTHFR heterogenous gene A1298C


susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 1/2/2010 7:50 AM (GMT -7)   
Oh, I forgot to say

Thanks for sharing your results with us!!!!!

:-) Happy New Year
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Lupus, Fibromyalgia, MFS or MS.  +ANA, MTHFR heterogenous gene A1298C


bernie Stewart
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/2/2010 10:04 AM (GMT -7)   
Susan. I was a healthy male, long distance runner until four years ago. While on vacation developed a sudden onset of fever, chills, flu-like symptoms with generalized joint pain. Symptoms subsided after a few days but it left me with extreme fatigue. Around 90 days later I developed the same symptoms but with a fever that reached 104. I was admitted to a local medical center and worked up for everything imaginable. In the end, no diagnosis, just given a nebulous diagnosis of fevers of unknown origin. Over the next year these symptoms occurred in a cyclic fashion every 90 days. During the second hospital admission of recurring high fevers, a bone marrow test was performed but thankfully it didn't show anything significant but it did confirm anemia, albeit marginal. My Rheumy prescribed Plaquinel 400mg. twice daily which did seem to control the fevers. My joints, in particular, wrists and hands were very painful even following high doses of NAIDS. Eventually my Rheumy added Methotrexate and titrated it to 25mg. Pain was a little less except during flares. The only thing that helped at that point was a Prednisone taper. Recently have started Humera injections, biweekly subcutaneous injections. Too soon to tell if it will improve my level of pain. Throughout this ordeal, my labs have been marginal. ANA positive and titer of 1:16-1:32, specked pattern, sed rates 18-80. I have never received a firm diagnosis of Lupus. I have seen two Rheumys who both refer to my illness has "Lupus-like or reminiscent of Lupus". I have been diagnosed with Sero-negative Rheumatoid arthritis which could be secondary to a connective tissue disase. After four years, no diagnosis. On the other hand, I'm not sure treatment would be different.
Good luck Susan. Hope things improve for you.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 9:45 PM (GMT -7)
There are a total of 2,731,950 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151137 registered members. Please welcome our newest member, Country girl2.
275 Guest(s), 2 Registered Member(s) are currently online.  Details
NewspaperLover, cilly


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer