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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/30/2009 2:59 PM (GMT -7)   
I am having a small flare. I have a mouth ulcer, something that is so rare now that I had almost forgotten what they are like. Ironically this flare may be my shortest one because of my new rheumy. He gave me instructions to take 20mg prednisone every day and 30 at the onset of a flare. So this week I am taking 30mg next week I will take 25 and then I will go back to my usual 20mg. The really weird part is that my fatigue level is not increased this time. I wonder if it has anything to do with the Ambien my pcp prescribed to help me sleep. I find myself having more energy since I started it and feeling more rested when I wake up. I don't even need naps anymore. It is all so strange. I am just glad that the increase in prednisone seems to be working because I took the first dose yesterday and the mouth ulcer is almost healed, something that usually takes at least a week or two. I will definately have to thank the new rheumy for the instructions to take more pred with a flare. My old rheumy has never taken me over 20mg of prednisone. She worried too much about my bone density to ever risk it. I hope everyone else is doing well. I am working on my book and reading while waiting for the new semester to begin. Happy New Year to everyone.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 12/30/2009 4:40 PM (GMT -7)   
(((((redrose)))))) sorry you're having this flare!!! Thankful you got on top of it quick! Take care!! Judy

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 12/30/2009 5:57 PM (GMT -7)   
Redrose,
I hope the increase in pred nips that flare in the bud quickly. Keep us updated and take care. Good luck with your book. You are in my thoughts and prayers. Happy New Year to you too!

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/30/2009 10:33 PM (GMT -7)   
Red,

I'm so sorry about this latest flare, and hope the added prednisone and the ambien are a good combination for you. It sounds like you like your doctors. Good luck with your book and your new semester and also best wishes for a Happy New Year!

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/1/2010 12:20 PM (GMT -7)   
Thanks everyone for your support. The increased prednisone appears to be working. I was discharged from physical therapy yesterday. I also had a meeting with the dietician and had a more structured diet plan developed. I had my bone density scan and a pelvic xray yesterday as well. It was a busy day. Today I am reading about Merlin and taking it easy. Tomorrow I will work on my book again. I plan to enter a contest to try and get published this spring. I hope everyone is doing well.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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