JH is one of the premier places to go for rheumatology and neurology. I know many people with myositis diseases like I have that have gone there because it is the only dedicated Myositis clinic in the world. They are also very experienced treating other AI diseases like lupus and I would not hesitate going there.
MCTD (lupus, scleroderma, polymyositis). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005. Recovered and now active in skiing, tai, chi, hiking, golf. Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.