Hi hun, I'm sorry you are having such a hard time. I have muscle weakness off and on. It hasn't been as bad lately but it seemed like the mornings were the absolute worst. I felt like I was draging concrete around with me. I think the plaquenil starterd making a differece in about 6 months. I was kind of strange. I suddenly noticed that things wern't giving me as many problems as they had before. I do have different problems but the legs did improve with time.
I hope they find something to help you soon.