Foods that are detrimental to lupies

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okie
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Date Joined Dec 2006
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   Posted 1/17/2010 3:39 PM (GMT -7)   
 Most of these I would never have considered. I was wondering if any one has some feed back on this? I'm not interested in buying the boook but there is alot of info on this website (click on things on left). It's really hard to know what to beleive but I figure someone has had some experience with some of these foods.
 
any comments?
thx
carol



systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 

Post Edited (okie) : 1/17/2010 3:43:27 PM (GMT-7)


nasalady
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Date Joined Sep 2009
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   Posted 1/17/2010 4:22 PM (GMT -7)   
I'm gluten free because I have celiac disease....but I was already gluten free when I was diagnosed with lupus (in the middle of a flare). So gluten free is not the whole answer for me. But I do eat nightshades (tomatoes, eggplant, potatoes) and I am definitely not dairy free, so I guess I'm not the best example.

I know plenty of people on the board at celiac.com who are gluten free, soy free, nightshade free, dairy free, yeast free, etc.....some of them are doing very well after cutting all of this stuff out.

I had enough trouble going gluten free and now trying to be completely grain free (no corn, rice, etc....using coconut flour and almond flour only)....I don't want to give up my cheese and my tomatoes too! shakehead
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com

Post Edited (nasalady) : 1/17/2010 5:00:26 PM (GMT-7)


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 1/17/2010 4:28 PM (GMT -7)   

I know. what are you supposed to do tell the doctor to give ya a scratch test on everything? Who would have thought alfalfa sprouts could cause a flare? Here I am thinking I'm doing good stuff me but that would be quite painful! and then there would be life without a hamburger I don't know if it's worth livingcry .

hugs

carol



systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


Lynnwood
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Date Joined May 2005
Total Posts : 7018
   Posted 1/17/2010 4:43 PM (GMT -7)   
The thing about the protein is downright wrong. We need 1 oz of protein per 1 pound of weight each day to support cell growth!! There are many many sources of protein besides red meat, milk products, and eggs....think nuts, seeds, chicken, fish of many kinds, shellfish, soy products, beans & corn, even some grains that are complete proteins by themselves. If I don't eat enough protein, the lupus fatigue overtakes me and I turn into Sleeping Beauty or Rip Van Winkle!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 1/17/2010 4:55 PM (GMT -7)   
The alfafa thing is true. When I was first getting sick I thought I would eat healthy veggie pitas with lots of alfafa sprouts, big mistake. I even have to avoid alfafa honey. Again, I thought I was eating healthy. Can't avoid tomatoes and eggplant, Hubby is Italian and life with out red sauce would make him miserable. LOL

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.  Prednisone 15mg daily added 03/09.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 1/17/2010 6:28 PM (GMT -7)   

Thanks Lynnwood and Jennifer, I thought the protein thing sounded kind of weird but I can eat lintels but but nuts and my colon would not get along at all. I really would like to change some of my habits if only for a couple of months to see if there is a difference. But I am soooo weak and burger king has a 1.00 menu.sad

Jennifer I am still shaking my head. I'm like you I have been a vegan before. The weight just dropped off. Now it sounds like a death sentence to eat a salad! LOL . I am a tomato halic. eggplant I can live without. One of these days we are going to the doctor and they will give us little green and yellow and purple pills. It won't be medicine it will be breakfast lunch and dinner!

I appreciate the input. People can put anything on the internet but I want to hear it from people that I know before I take it as fact.

hugs

carol



systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 1/17/2010 7:31 PM (GMT -7)   
I actually get sick if I eat much red meat- as in my stomach just can't process it in any quantity. I never get enough protein because of my problems with various foods. I always knew eggs were evil. I love mashed potatoes but rarely eat them because they trigger a mini flare. I avoid eggplant just based on looks alone. I love tomatoes but try to eat them sparingly every summer though I have a tomato sandwich at least once. I have problems with yeast containing products as well, they make me feel bloated and sick to my stomach I never understood why I just thought it was me. I trust the food restrictions suggested in The Lupus Book but not on some unknown webpage.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 1/18/2010 4:09 PM (GMT -7)   
OK - I never was any good at math - but 1 0z of protein for every pound of body weight!?  That just seems like way too much protein.  Per 1 lb of food consumed maybe - but then that sounds like too little.  What am  I missing here?

diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 1/18/2010 6:12 PM (GMT -7)   
I think I meant 1 gram per pound, I dunno'. One of my friends says even that is wrong -- no surprise, lupus likes to mess with my brain.

I looked around and found this site www.exercise.about.com/cs/nutrition/a/protein_2.htm which says:

How to Calculate Your Protein Needs:

1. Weight in pounds divided by 2.2 = weight in kg
2. Weight in kg x 0.8-1.8 gm/kg = protein gm.

Use a lower number if you are in good health and are sedentary (i.e., 0.8). Use a higher number (between 1 and 1.8) if you are under stress, are pregnant, are recovering from an illness, or if you are involved in consistent and intense weight or endurance training.

Example: 154 lb male who is a regular exerciser and lifts weights
154 lbs/2.2 = 70kg
70kg x 1.5 = 105 gm protein/day
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Post Edited (Lynnwood) : 1/18/2010 6:15:56 PM (GMT-7)


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 1/18/2010 7:54 PM (GMT -7)   
Hi Lynnwood,

Thanks for the algorithm....it works out to about a minimum of 1/3 gram of protein per pound if you're in good health and sedentary, to a maximum of 4/5 gram protein per pound if you're stressed and recovering from illness, or weight training, etc.

So one could approximate the average person's protein needs as ~ 1/2 gram per pound of that person's weight. That may be easier to remember?

However, that seems like a very small amount of protein for a weight lifter. After all, 105 gm is less than a 1/4 lb! Does that sound right?

JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/19/2010 12:59 PM (GMT -7)   
Thanks for the protein figure method. I know for darn sure I don't get enough.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 1/19/2010 8:19 PM (GMT -7)   

Thanks Lynn and JoAnne for clarification.  It seems to work out to about 3.5 to 4.5 oz. a day for a 150-200 lb sedentary adult.  At least by my calculations, which are generally not very trustworthy.

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 1/20/2010 8:39 AM (GMT -7)   
It doesn't work quite that way, because food is not pure protein, and because ounces by weight are different than ounces by volume. You can't use the regular weight measurement 28 grams = 1 oz, because different foods have different % of protein.

For instance, I found:
"One half-cup serving of raw firm tofu contains 10.1 grams of protein. A half-cup of tofu is approximately 4 oz by weight. By comparison, 1/2 cup dairy milk contains 5.1 grams of protein, one 3 oz egg contains 6 grams and 4 oz ground beef contains about 26 grams of protein."

So,
tofu 10 grams in 4 oz, thus eat 16 oz of tofu for 40g protein
milk 5 grams in 4 oz, thus eat 32 oz of milk for 40g protein
beef 26 grams in 4 oz, thus eat 6 oz of beef for 40g protein

Gotta read those darn food labels!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/20/2010 11:25 AM (GMT -7)   
Thanks Lynnwood! Now it makes sense to me that an adult man could get by with 105 grams of protein....that would be the equivalent of almost a pound of ground beef!
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


lucysgd
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Date Joined Jun 2008
Total Posts : 669
   Posted 1/20/2010 9:31 PM (GMT -7)   
This is all too much for my pea sized math brain!   I have learned that I just feel better if I include some protein with each meal or snack.  As in, if I have an apple, I'll also eat a small piece of cheese.  A doctor friend told me years ago that eating a few bites of protein first, before the carb portion of the meal or snack, would slow the rate of the sugar metabolizing.  
Lucy
 
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


Shall
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/21/2010 6:28 AM (GMT -7)   
I am reading theses comments and my mouth just drops open.....I can't believe all this is related...I have some of the same issues. I have JUST been diagnsed with UNSPECIFIED CONNECTIVE TISSUE DISORDER and DIABETES. I work full time sitting at a desk and computer. I make it okay as long as I limit over time and relax on week-ends. This past week-end I went on a day trip and have paid for it ths week. I was not diagnosed with Lupus but I do have the butterfly rash. Last night I saw comments about brain fog. I get so upset when I can't remember simply everyday words... Now what is the deal with food? I can't eat tomatoes anymore and I love them so. I had noticed several months ago before diagnosis that tomatoes and tomato juice tear my stomach up.

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/21/2010 7:17 PM (GMT -7)   
When I was on peritoneal dialysis they wanted us to have 100gms of protein daily! It was next to impossible!

lizkaw
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/5/2010 10:15 PM (GMT -7)   
I know this is a slightly older post, but just wanted to throw my two cents in. I eat meat just fine. However the tomato thing is right on. I've been avoiding tomatoes for about 3 years now when I realized it was a trigger. It is so hard to give it up completely, so every now and then I'll sneak the tiniest piece of lasagna or pizza. I pay for it, but it tastes sooo good. I didn't realize potatoes were in the same family as tomatoes so I'm trying to cut them out as well just to see if it makes a difference. It's very hard because I love potatoes.

I also notice I have problems with most fruits. Anything that's really high in acid, including sodas and juices.

Shall
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 2/5/2010 10:30 PM (GMT -7)   
I quess I didn't catch what the deal is with tomatoes.....I have realized that in the past fews months tomatoes and tomato products tear my stomach up. Is this what you are talking about or does it cause a flare. Explain a flare to me, please. I am new to all of this.

Thanks
unspecific connective tissue disease   Diabetes   possible sleep apnea  vitamin D deficient  Anemia  
 
Plaquenil   Vitamin D   Glucophage Folic Acid 
 


aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 2/6/2010 8:04 AM (GMT -7)   
A flare can be different for every person. Personally for me it is increased joint pain, low grade fevers,fatigue, dark and foamy urine, pretty much just feel like the flu x's 10> i believe their is a post from either last week or the week before with everyone explaining how they feel during a flare.
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