lupus nephritis and transplant

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AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 1/17/2010 5:12 PM (GMT -7)   
i have stage 3 and 5 lupus nephritis and im going on cellcept for 18 months in hopes to control my kidneys but if for some reason i need a transplant will the nephritis come back? just curious
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. 9 tia's and one pontine stroke,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 1/17/2010 5:29 PM (GMT -7)   
In my understanding it can come back but there is a good chance it will not. It just depends on how your body and lupus react. Cellcept has shown wonders for treating Lupus nephritis even in the most severe case. Are you just now being started on Cellcept? I think I remember around Sept-Oct your kidneys started flaring again (i could very well be wrong....)I sure hope you have been on it for awhile since that time. What dose are you on/or gonna start?

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/17/2010 7:21 PM (GMT -7)   
I read somewhere that usually the lupus ignores the new kidney for unknown reasons I speculate that maybe because it doesn't have your own DNA the lupus doesn't reckognize it but that is just my own guess and not medical fact. I can't recall where I read the information about it usually ignoring the new kidney but if I remember I will let you know.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 1/17/2010 10:28 PM (GMT -7)   
well im on 1000 twice a day..i was on capsules until i started having a hard time opening my mouth so it took me a month to get the tablets for insurance to pay for it so i could crush them up..but im back on it at 1000 twice a day... nothing worse than capsules of cellcept getting stuck in your throat it wa horrible..
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. 9 tia's and one pontine stroke,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 1/18/2010 7:34 AM (GMT -7)   
Hi. I just happened to read your post. I'm so sorry you have such severe kidney disease. I sure hope the Cellcept works. I take 1500 mg of Cellcept twice a day, mostly for neuro and collitis. Cellcept is now available in generic tablets which saves me quite a bit. Please let us know how you're doing. Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Rx: Cellcept, plaquenil, prednisone, celebrex, prozac, wellbutrin, klonopin, neurontin, ambien, lisionpril, actos, nexeum, simvastin, lomotil, cholestryramine, claritin, nasonex,  PRN: tylenol arthritis, flexeril, phenegren, vitamins, Acupuncture.  Donna 

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