hard to breathe....

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jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/25/2010 6:36 PM (GMT -7)   
Last night as I was trying to go to sleep I noticed when laying on my left side I had a hard time breathing. When I rolled to my back it went away. Anyone know what it could be, should I call my doctor??
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 1/25/2010 7:24 PM (GMT -7)   
i would call them it could be either pluerisy or a pleural effusion.. i would call your doctor to get an xray..hope you feel better soon
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. 9 tia's and one pontine stroke,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/25/2010 10:56 PM (GMT -7)   
Well dear, since Lupus has a nasty habit of effecting the lungs I would have to say *&%&*$#@ were you thinking? You should have gone today. Or at the very least called your rheumy or pcp. I realize my lungs are shot so it's a little different but my doctors all say the same thing. Carol the minute you start noticing anything (more then my normal) with my lungs I should not pass go and collect 200.00 dollars I should proceed to the hospital because if I try to fight it myself I will lose. You know how lupies go. You get a little scratch and end up with gangrene. skull . Don''t miss around get it checked out. Call you doctor in the morning. If you are having problems tonight use a heating pad or a grain bag heated up. it will help relax you a little bit.
Sorry I'm being grumpy I just don't want to see you in the hospital.
love ya
carol

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/26/2010 5:48 AM (GMT -7)   
I would def get it checked out and/or report the new issue to your doctor ASAP.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 1/26/2010 12:16 PM (GMT -7)   
Oh wow! Stacie, I would deffinatly call your doc. Keep them updated on something like that for sure. I hope this passes quickly and it doesnt turn out to be anything serious. Im praying for you!
Lova ya

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 1/26/2010 12:28 PM (GMT -7)   
Stacie - hope this ends up being nothing to worry about - but I hope you checked it out.  Better safe than sorry. 
 
Take care,
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/26/2010 12:37 PM (GMT -7)   
Stacie,
I'm sorry you aren't feeling well. Let us know what the doc says! Judy

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/26/2010 12:39 PM (GMT -7)   
(((((Stacie))))) I'm so sorry you're in that kind of pain! I'm having the same problem lying on my left side, but it's just that darn RUQ pain that put me in the hospital a couple of weeks ago.

I agree with everyone else that you need to be seen by your doc ASAP...you need to make sure it's not your lungs!

Please keep us updated! Praying for you!
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/26/2010 3:48 PM (GMT -7)   
Thank you everyone for the prayers and hugs! When I went to sleep last night it wasn't as difficult as the night before. The night before I couldn't take a deep breath only shallow ones until I rolled to my back. I've also had these weird pains on the right side of my chest. I didn't really think it was that big of a deal ((((( Carol )))))) thank you for setting me straight. I guess Lupus has given me so many scares with kidney's, brain, etc I just figured it was nothing to worry about.

I will call my rheumy tomorrow since I am off BUT if it happens again I will go to the ER. Thanks guys for your caring words and support. love ya
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/27/2010 9:39 PM (GMT -7)   
Hey Stacie, I was wondering if you spoke to your doctor today? How are you feeling?
love ya
carol

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/28/2010 5:27 PM (GMT -7)   
Thanks Carol, I called my rheumy this morning after I started spitting up bloody mucous (sorry, it's gross) she told me to get to my PCP asap. Well my PCP is no longer practicing medicine, she is teaching at Emory and the other doctors in the practice were booked until next Thursday but they have an Urgent care so I plan on being there when they open in the morning.

Right now I'm not feeling so good, I'm wiped out! I don't have a fever so I guess that's good. I'll give an update tomorrow when I get home. Love ya
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/28/2010 6:16 PM (GMT -7)   
(((((Stacie))))) That's just awful!

I'm praying for you! It's good you're going to be seen tomorrow! Please keep us updated....

JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/28/2010 7:07 PM (GMT -7)   
I hope nothing serious is going on. I also hope you let your rheumy know that your pcp isn't practicing medicine anymore. I wonder if you shouldn't be going to the ER instead of waiting until tomorrow for urgent care.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 1/28/2010 7:24 PM (GMT -7)   
I agree, your spitting up blood.!!!! I wouldn't be so nonshuelant about it either!!! You need prayers girl.... i have one going for you right now. God bless you, Laura
Cervical spine surgery 2004, C-section 1986, Cholecystectomy 1999, Thoracic and Lumbar injury 2000. Anxiety/depression 2008. Fibromyalgia 2009, Thyroidectomy 2008. Degenerative disc disease. IBS. Asthma, Rheumitoid Arthritis, Sacroillitis, Scolylosis, disc bulge in L5/S1.possible Lupus and/or ankylosing spondylitis. Meds: Lisinophil, xoponex, symbocort, pulmocort, troponal, vitamin 2000 D, Vitamin B complex, Hydrocodone, Tylonal Arthritis, Cymbalta,Lyrica and Avara.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/28/2010 7:46 PM (GMT -7)   
Thank you JoAnn, Redrose and Laura,

The new PCP I am going to start using couldn't get me in until Monday. I am ok right now, just very tired. I haven't spit up any more bloody mucous since this morning. If I get worse I will go to the ER tonight.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/28/2010 8:27 PM (GMT -7)   
jhmom said...
If I get worse I will go to the ER tonight.


Yes, please do Stacie; redrose and Laura are absolutely right...you're in my thoughts and prayers tonight.
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 1/28/2010 9:17 PM (GMT -7)   

Oh my...hope it's nothing serious. Prayers for you, Stacie!  

Lucy 


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/29/2010 3:05 PM (GMT -7)   
I did just what I said I would and was at the docs office (urgent care) at 8:30 this morning. They did a chest x-ray and labs and I have Bronchitis, they gave me a Z-pak and I am not to take my MTX until after I've finished the antibiotics. My ribs in the middle of my back are killing me, so I came home from work a little early and about to lay on the heating pad.

Thank you all for your prayers. I was very nervous that I had pneumonia.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/29/2010 3:11 PM (GMT -7)   
Stacie, thanks so much for the update! I'm very glad it's not pneumonia....I just finished a zpak for bronchitis recently myself.

Praying that you feel better soon!
((((Hugs))))
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/29/2010 7:00 PM (GMT -7)   
Thanks JoAnn,

The last time I had bronchitis was over 11 years ago when I was a smoker. I certainly didn't remember the painful chest and ribs with it either! Hopefully it will clear up quickly!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/29/2010 7:47 PM (GMT -7)   
Thank you for the update hun, I read what you said about the pain in the chest and the ribs. It sounded like a recording of what I live with every day. So little lady while I am glad you don't have pneumonia, bronchitis is absolutely nothing to sneeze at. It can lay you out flat and put you in the hospital just as sure as sure can be. z pak is pretty good but one round does not always kick it. So keep track of your breathing and if you are running a fever in a few days you need to let your doctor know ASAP. Bronchitis will scar your lungs too and us lupies need to avoid that at all cost. If there is any way you can take a couple of days off work or work from home you might try discussing that with the boss. Make sure you have a scarf over your mouth and nose when you go out in the cold. The cold air will tighten your lungs up and inflam them just breathing in the cold damp air. Just remember every time you get an infection in your lungs they leave scars that won't heal. (ever).
ok if you ever feel the need to have someone nag at you please don't hesitate to let me know. Hot tea, lemon,honey. I like sleepy time and tension tamer myself. The heating pad will help you too. if only to relax the muscles in your ribs. if your cough gets worse go back in. It could be a sign your lungs could be filling with fluid. Did the dr say the blood was from your irritation in your throat?
love ya
the nag

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 1/30/2010 10:12 AM (GMT -7)   
Stacie, Sorry I hadn't responded to your post earlier, but I've been in bed for over a week with bronchitis. I haven't had the serious problems you have, but it's been very hard to recover from it this time. The nag knows what she's talking about - she's a pro at lung problems.

My hubby caught bronchitis and I suppose I got it from him. He had fever for 4 days and was up and around in less than a week. I've been running 100 to 100.6 degrees for 8 days and feel awful. Haven't been out of bed all week except to go to the doctor. It makes sense that someone like you and me, who have an AI disease will take longer to recover.

I never hesitate to call my doctor when I feel like something is wrong, and they know me well enough to know to take me seriously. They had me come in twice this week even after I begged them to let me stay in bed and call something in.

So Carol, nag all you want. Sometimes we need a kick in the heinie.

Take good care Stacie. You don't want to mess with your lungs.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/30/2010 10:32 AM (GMT -7)   
Oh Stacie, that is awful. I'm so relieved it's treatable bronchitis. When I read that you were spitting up bloody mucus, my eyes popped!!

I hope you're doing better this morning!

Blessings,
Ginny

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 1/30/2010 10:53 AM (GMT -7)   
Bronchitis can be debilitating -- I contracted a bad case of it back when I was young and healthy, in my 20's, and it took me well over 3 days (can you say 6-8 wks) to fully recover. It's important not to do to much to soon and make yourself sick all over again.

I hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/30/2010 11:28 AM (GMT -7)   
(((( Carol )))) you can nag me anytime, it means you care smilewinkgrin I also didn't know bronchitis could be that serious, like I said the only time I remember having it was due to smoking and that was so long ago. I am breathing better and haven't had much chest / rib pain today, of course all I've been doing is laying around. If I see my symptoms getting worse I will call my doctor right away. He didn't mention the blood being an irritation in my throat, just said it happened with bronchitis, maybe the drainage? **While posting this I was sitting up and the chest pain is back, so that confirms I will do nothing for a couple of days. It's cold and nasty here today so I definitely don't need to be getting out in it.

Oh Pat, I am sorry you are sick too (((hugs)))) I think you must have a worse case than me or I just caught mine early because of the difficulty breathing. I'm not running a high fever, usually my temp is a little over 97, yesterday it was 99 and today it's 98.5. I pray you feel better soon, I think I'm going to take Carol's suggestion and have some hot tea (YES I finally bought some and it's really good!)

Thank you Ginny and Lynnwood, still spitting up that yucky stuff, hopefully after I get a couple of doses of antibiotics I will see an improvement.

((((group hug))))
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)

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