Bones bones bones!

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/27/2010 10:22 PM (GMT -7)   
Oklahoma is getting ready to get hit by a icy, sleet, snow trifecta! and the news said be prepared for long term power outages. The city has some generators that they will bring over to me if the power goes out so I can run the oxygen. There have been 1 and 2 week power outages here before. My bones are aching already. the doctor put me on fetynal patches because I'm in so much pain. I ordered all my meds and for some reason they my insurances isn't taking care of it.mad I have medicare , champva, and medicaid. I still have about a weeks worth of most meds and I'm sure they paid some of it but it was still 256.00. I don't have that kind of money. and I have 3 heart meds. The onlyone I got was my antibiotics and only because I was completely out and I take them 3 times a week to try to keep infections down. That was still 11.00 for 12 pills.
Anyway if anyone tries to email me and gets no resonse it's probably because the town is gonna be pretty much closed down until spring thaw!smhair
 
you all take care now and if you ain't busy hop in the car and bring a shovel!
love ya
carol

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/28/2010 11:20 AM (GMT -7)   
Okie!! Oh wow! I hope and pray y'all don't lose power! That's a bummer! We're about to get drowned here in the Gulf South! I'll be thinking about you!! bless ya, Judy

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/28/2010 2:06 PM (GMT -7)   
i really hope you don't lose power. I ache and last night it snowed glitter up here in MI. I was in total shock because I mean who expects glitter to fall from the sky.

Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/28/2010 5:29 PM (GMT -7)   
(((( Carol ))))) I hope you don't lose power either. I know what you mean about the cold hurting your bones, it is very painful! I can't wait till Spring gets here! You are in my prayers.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/28/2010 10:56 PM (GMT -7)   
Thanks Judy, redrose, and stacie. Hey Judy did ya get my letter? I can't remember the last time I wrote a letter out by hand! Stacie I sure hope you get in and see someone. The thing is with Lupus and with the lung thing you got going on you build up scare tissue and it doesn't go away. Eventually your lungs are like a rubber band that has been laying out in the arizona dessert for 10 years and and it crumbles when you try to stretch it. Redrose You were watching glitter coming out of the sky huh? I want some of what you're taking!tongue . I had to start the fentenyl patch tonight. I barely touch my shoulder and it feels like bone spurs.  I can hear the squeeking in my lungs when I breath out rigt now so I have to be careful on my pain meds. They aren't real good for lungs. My insurance did get some what better. It went from 250.00 down to 67.00 dollars. I'm still not sure what the problem is. But I am not going out in this stuff to get them unless I am completely out.
well it's going on midnight so I imagine most of you are sleeping right now.
My body hasn't decided if I am going to stay up or go to bed but I guess I should at least try to sleep.
thanks again
love ya
carol

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/28/2010 11:53 PM (GMT -7)   
I was completely sober and non-medicated as I watched glitter fall from the sky, it was cold glitter but danged if it did look like that clear glitter they sell around the holidays. It was all over and reflecting the light available but gone the next morning. Our cat has decided she wants to sleep where my head normally goes and I hate to make her feel unwelcome or unwanted. When I really feel tired I will have to move her but for now she can listen to hubby snore.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 1/29/2010 11:06 AM (GMT -7)   
Hey Carol! Well I guess you are getting hit pretty bad by the storm about now. I hope you don't loose power and if you do its not for long periods of time but I am glad to know the city will bring you a generator to keep your O2 going.


I guess we are about to get slammed by the storm that hit you. I live about 20 minutes from charlotte and we are right on the cut off for either 3-4 inches of snow or it will all be ice. They say it should arrive later this evening and last till Sat afternoon. A few years ago, we were hit by a bad ice storm and everyone around us lost power for 2 weeks but we didnt. They are saying prepare for something like that.OH-BOY!



Let us know how everything goes!!! Love ya :-)

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/29/2010 1:50 PM (GMT -7)   
redrose lol, we are both pathetic I would curl up in a ball and be uncomfortable because I didn't want to bother the cat. of course she is gone now. she was 19 years old!
Hey ya Ames so where the heck are the tickets to nascar?
I grew up in blizzard country lake effect snow of lake michigan. get out the cross country skis and head for the store. turn . I've lost shoes in the storm that I didn't find until spring thaw. rolleyes yeah this storm is moving slow. it took about 5 hours to get here from enid which is about 30 miles from here. My dog hates the snow so he runs through the hose with his legs crossed hopping up and down cuz hewon't go outside and pee. LOL. I swear if he had to he could hold it for days before he'd go outside. Well Ifell down 2 or 3 times today. can't figure out why but right now I would just be happy to have get some good looking long legged truck driver to make me a sandwhich and soup and pat me on the head and fluff up my pillow. hand me the remote control and tell me I'm gorgeous. OK OK OK wake up carol you were dreaming! smurf zzzzzz.
ok I'm out of here
love ya all
carol

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/29/2010 4:35 PM (GMT -7)   
Carol,
HA! You always make me laugh out loud!!! Love your sense of humor!! I did get your letter, thank you sooo much! I'm like a little kid. I love gettin' mail! :0) BTW- Be careful what you ask for, ole cupid is listening!! LOL!!! Stay warm!! Love ya, Judy

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/29/2010 5:33 PM (GMT -7)   
Yeah judy but you guys don't call him cupid down there. You name him after a man of the cloth called him amos moses! He'll hunt me down a feller and just knock him in the head with a stump! shocked

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/2/2010 12:45 AM (GMT -7)   
Hey Carol,
I hope you didn't loose your power sweetie. Let us know how your doing. I love your sense of humor! You can make me laugh when I don't want too.

You take care and stay warm. You are in my thoughts and prayers.

Love ya, Babs

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/2/2010 8:50 AM (GMT -7)   
Carol,

Sorry you're feeling so badly, and hope the lasix helps. Your wheezing sounds scary. I'll stay in touch and make sure you're ok.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

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