Anyone know of a good lupus doc in San Gabriel Valley?

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nasalady
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Date Joined Sep 2009
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   Posted 1/28/2010 7:58 PM (GMT -7)   
Or anywhere in Los Angeles County area, I guess. Should be someone who is very experienced with lupus and CTDs.

Thanks,
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 1/28/2010 11:49 PM (GMT -7)   
wish I could help, have you contacted lupus.org? I hear they have physician lists and such
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 1/29/2010 12:00 AM (GMT -7)   
Thanks redrose!

Yes, I did try lupus.org. Their website refers you over to your local chapter, but my local chapter doesn't recommend doctors. Instead they take the easy way out and just punt you over to the American College of Rheumatology Directory Listing for California (broken down by city). Which doesn't help because I want real patient recommendations....I want to know if there's a doctor who really specializes in lupus...?

I may not get a reply but thought it was worth a try! :)

JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 1/29/2010 10:21 AM (GMT -7)   
I don't think any of the local chapters 'recommend' doctors - but they do have a list of doctors that are on their advisory boards - that gives you an idea of who is in the area that is actually interested in lupus. Match that with your insurance and I bet it narrows the choices down to 2-3 at the most.

Local chapters also have support meetings as well as chapter meetings. Attend either of those and you can talk to people after the meeting or sometimes during the meeting and hear about which people see which doctor. Even if no one is recommended you'll get an idea of which doctor has more patients. Also sometimes there are support groups in or associated with local hospitals.

Basically the chapter itself and its officers aren't allowed to recommend, but individuals can recommend.

Unfortunately that isn't as easy as making a phone call -- a read bummer when we are feeling like mashed potatoes.

Best of luck,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/29/2010 11:04 AM (GMT -7)   
Thanks Lynnwood! You're right, it wouldn't be easy to attend a meeting right now, and there don't seem to be any in my immediate area, but it's still a good idea.

I couldn't find anything about an advisory board on the website, but perhaps I can contact someone at the local chapter and ask for a list of members. They don't list any officers on the website either....seems kind of odd? :(
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com

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