CAN A Butterfly rash come/go in minutes?

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Confused725
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 1/31/2010 1:26 PM (GMT -7)   
Hi,

Can A butterfly rash be a flushing or is it a RASH?
Can it be a facial flush (almost like when BP goes up) not raised & can it come & go in minutes? Im thinking a rash stays a lil & doesnt come for 10 minutes & then goes.

I get facial flushing BUT when I was at the rhemy the other day, I was trying to explain to him how I get this. Sometimes when Im nervous, ect........He said "you have it right now" But said it wasnt the Butterfly rash? It was gone by the time I left his office but it is in the shape of a butterfly ONLY does not usually stay more than 10 minutes.

Please, tell me ANYTHING about your rash on your face.
Do these rashes ONLY show up during a FLARE because mine seems to come & go ALL the time.

Also when im cooking, I ALWAYS get it from being in/out of the oven.........Once I cool off, its gone!

THXXXX
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Rachel
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nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/1/2010 11:44 PM (GMT -7)   
Hi Rachel,

I'm no expert at all....the main reason I'm replying to you is because I've wondered the same thing myself. I've read at least a dozen online articles to try to figure things out, and I'm even more confused after reading because some of them contradict the others!

I can tell you that my own rash is more of a flush that lasts for a while, but not minutes, more like several hours or a day or two. During that time it can get more intense or less intense looking....sunlight makes it worse, stress makes it worse, heat makes it worse.

Some of the online articles made it sound like it could be anywhere from a blush to a scaly red rash, and could be "transient" or could last for months. The problem is that none of the articles said how short "transient" might be!

Anyway, I was dx with lupus in October, but then in December my rheumy changed his mind and told me he doesn't think I have lupus. He's still treating me with the same meds though, so I don't think he's 100% sure.

Well, I sure hope someone more knowledgeable than I comes along to comment on this!! smilewinkgrin

Take care,
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


Dinosaur
Regular Member


Date Joined Jan 2010
Total Posts : 25
   Posted 2/2/2010 5:43 AM (GMT -7)   
I usually get the "rash" on my face several times a day when I'm just inside, and sometimes they are gone within ten minutes. It will last for several hours when I've been outside exposed to the sun. It seems the redness on my face can come and go with high levels of emotions. Someone had said in another thread that anything that increases blood flow can bring on the rash. This makes sense - I also get it when I've been skating or dancing. This is probably why you get it when you feel nervous. :-)

My rash is just a red coloring of my cheeks and nose in the typical butterfly shape, and after it's been there for a few minutes, it gets a slight tingling sensation, but there's no pain or itchiness.

Hope this helped a bit,
Misty
22/F/FL


Confused725
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 2/2/2010 7:21 AM (GMT -7)   
 
Interesting,  Thank you both for your thoughts.
 
I too, have read many articles & also wondered "how long" transient, meant?
 
Oddly enough, when I questioned my Dr about it.........she said "your is not the TYPICAL (Im reaaallyyy not liking this word nowadays) butterfly rash. She said mine is more of an emotional blush. eyes
 
 
Nasalady? Your Dr is NOT sure if you have lupus? How much more honest can a Dr be? I probably read it somewhere but God only knows, I dont remember much!   What symptoms is he treating you for or what symptoms did you have that led him to treat without a firm dx?
 
THX
 
 
 
 
 
 

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/2/2010 11:53 AM (GMT -7)   
Confused725 said...

Nasalady? Your Dr is NOT sure if you have lupus? How much more honest can a Dr be? I probably read it somewhere but God only knows, I dont remember much! What symptoms is he treating you for or what symptoms did you have that led him to treat without a firm dx?


Well, when he first dx me with lupus in October, he sounded like he was sure I had it. And started me on plaquenil. I was already on prednisone and Imuran for autoimmune hepatitis.

I didn't have a positive ANA, but I did have a high level of anti DS DNA and a malar rash. Also photosensitivity and Raynaud's. So he said I had lupus, so I guess he thought it was a firm dx at that time.

Then in December I found out he had told my neurologist that he didn't think I had lupus, so I asked him about it and he said "It doesn't act like lupus". (!?!) He hasn't explained that statement yet. I was too out of it to insist on an explanation at the time.
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


lizkaw
New Member


Date Joined Feb 2010
Total Posts : 2
   Posted 2/5/2010 10:02 PM (GMT -7)   
Hello. I'm new to the site, this is the first post that caught my eye. I was diagnosed with SLE in Feb 2006. I've had signs of it the majority of my life. My rash has changed. I used to just get red blotches all over, my legs my arms (usually just when I was outside, I thought it was an allergy to grass and later found out it was the photosensitivity). When I was in my teens the rash was still blotchy red on my neck and chest area when I was upset or nervous but rarely in my face. Over the past few years the actual "butterfly" rash has appeared on my nose and cheeks. In the past four years it has gotten more and more noticeable. I have a constant red on my cheeks in the butterfly area, and several times throughout the day it gets bright red and looks like windburn or sunburn. I ride a motorcycle so in the summer I don't get a whole lot of questions about it, everyone thinks it is windburn or sunburn.

So anyways I guess what I'm saying is mine changes, and yes it comes and goes within a matter of minutes. At least it used to go completely. Mine used to feel warm, now I don't even notice the warmth.

Don't know if I've been much help. Take care, and stay strong!

Liz

louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 2/15/2010 8:04 PM (GMT -7)   
I am new tot his site and still reading old posts. I am so confused. My rheumy isn't sure if I have Lupus either. I too get the redness in the butterfly area usually when I am over heated. It only lasts like an hour or so. I just look really flushed. My ears burn and turn red too have any of you had that?

Post Edited (louise47) : 2/16/2010 3:18:37 PM (GMT-7)

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