Strange symptom or new reaction? Update

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FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/1/2010 3:49 PM (GMT -7)   
Just wanted to let everyone know that PCP figured it was a type of allergic reaction "Lemon Burst" yogurt was the only thing different. Well, it happened again this morning with my regular vanilla yogurt. But this time DH took pics so we are off to the allergist this week.
Hope all are well.


Hi. Hope all of you are having a good day.
I wondered if any of you have ever had anything like this happen. On Sunday morning I ate my usual yogurt (tho a new flavor), my usual glass of cranberry juice and took my meds.
Within 5 minutes my neck and face started to "burn". This spread all over my body within about 30 seconds and my entire body swelled and turned violently red. My husband said my skin was very hot to the touch. The burning pain was unbelievable. I was itchy but couldn't scratch because of the burning pain.
Over the years I have experienced many anaphylactic reactions and I do know the whole epi drill very well. But I didn't use the epi because my breathing was not impaired. I did take two fast melt Benadryl. And my husband put cold compresses on my neck, face, hands and feet. The whole thing lasted about 10 minutes and then began to subside. I was never really panicked (as I have been in an allergic reaction type situation) because I could breathe the whole time. I was unusually sleepy (even for me) the rest of the day, but I had taken two Benadryl, so that didn't really surprise me.
Today, I followed my usual routine but went back to my regular flavor of yogurt. Everything was fine. Does it sound like I had an allergic reaction? Maybe a hot flash (I am 51)?
I hate to call the doctor as I am now back to normal (for me), and, especially if it was a "hot flash", I don't want to sound stupid.

Also, unrelated but since I am asking: my new rheumy only wants bloodwork every three months - is that normal for someone on CellCept? My previous rheumy (whom I loved and miss dearly) checked me every 6 weeks b/c of the CellCept.
Still haven't decided if I like new rheumy - trying to give her a chance.

Thank you so much if you've read all of this! This board is great and I appreciate all of you!

Stay well.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Post Edited (FW) : 2/6/2010 3:07:04 PM (GMT-7)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/1/2010 5:35 PM (GMT -7)   
I have no idea on the cell cept thing. It sounds more like an allergic reaction than a hot flash to me but I am only 32 and have no experience with hot flashes.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 2/1/2010 5:52 PM (GMT -7)   
That isn't quite how hot flashes work -- you get hot & sweat & possibly red, but not burning pain or swelling. I would guess an allergic reaction to something in that new flavor.

When I was on Cellcept, I was tested at 6 week intervals. Now that I am off and fairly stable, I'm at the 3 month checkup level.

What about you others of Cellcept?
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 2/2/2010 9:32 AM (GMT -7)   

Fran - what you described sounds like what would happen to me when I was taking Niacin for lowering cholesterol.  Had to stop it altogether..... skin got bright red, stung and burned, as you say, unbelievably,and felt like my skin was going to peel right off my body. It was also hot to the touch.  As I was building the dose, it affected only my face at first, but soon progressed and lasted nearly 30 min. at the end, with the redness everywhere.  My hot flashses were never like that.

Take care,

Lucy 


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/2/2010 9:58 AM (GMT -7)   
Redrose, Lynnwood and Lucy, Thank you so much! I knew you would be able to help!

Sounds like it wasn't a hot flash, as there was no sweating at all, more the terrible burning skin sensation.
Wondering about the Niacin, though. I had just started a new bottle of B-100. Maybe that was the culprit.
Has not happened, again, knock wood. I have totally avoided the new yogurt, don't want to try it, again!

Lynnwood, bloodwork every 6 weeks is the schedule I was on before for my CellCept. This office says every 3 months. Strange, I think I`will question it at my next appointment.

Again, thank you for your help!

Stay well.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


WYOhunybare
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 2/2/2010 10:18 AM (GMT -7)   
smile   Hello!
If you had a new flavor, was there maybe a type of food dye in it?  I've heard that can cause a very similiar reaction.  Glad that all turned out well.  Sometimes lupussmhair  does not like change!!
 
As far as the blood work goes, not sure, not on Cellcept, Im on Methotraxate and have blood work every month.

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/2/2010 11:39 PM (GMT -7)   
Fran,

When I was on CellCept I was tested every 3 months.

I wouldn't hesitate at all to talk to your doctor about the allergic reaction, or whatever it was. If you don't feel comfortable making a special phone call, just remember to discuss it at your next appointment. Or, talk to your pharmacist about it because they are trained to know how to treat allergies and what to look for.

I also agree that it doesn't sound like a hot flash. What little I remember about hot flashes (since that was soooo long ago :)) was that my body felt like it was burning from the inside out. Regardless, you'll know it when you start to get them. Lynn's right - you don't get swelling or burning pain.

I'd stay away from that flavor of yogurt.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/3/2010 10:17 AM (GMT -7)   
Hi Fran, I agree with Pat, it would be a good idea to go ahead and let your rheumy know about the reaction or the pharmacist. I don't blame you for not wanting to try the new flavor of yogurt, I wouldn't either. I know this is a long shot but was it Yoplait brand? I think most of theirs are gluten free but worth checking out.

I am on Imuran and Mtx and my rheumy does blood work every 2 months. Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/3/2010 7:30 PM (GMT -7)   
Thank you!! I do eat Yoplait yogurt (gluten free), but I decided to be daring and try the "Lemon Burst" instead of my usual Vanilla. So much for daring. :) I will be seeing my PCP tomorrow, so I will definitely mention this episode.

Also, thank you for the information on the CellCept. I have to adjust to this new rheumy and her ways. Just because they are different than what I have been used to does not make them wrong (as I keep telling myself).

Thanks for all your help!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/6/2010 3:09 PM (GMT -7)   
Posted an update. Thank you, again to everyone!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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