Overcoming Fatigue?

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WYOhunybare
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 2/2/2010 10:27 AM (GMT -7)   
Hello everyone!! So glad that I found this spot all the comments help and helps to know that I am not alone.  However, how do you cope with the fatigue, weakness?  I can hardly get out of bed the last two days and feel just ucky, like Im in slow motion.  I know that I have a flare due to overwork and then the flu.  Surely there is a fix to this weakness.  Dealing with 6 Lab puppies (8 weeks) and that is a chore, then stomach flu and I am just drug out.  Any suggestions would really help.

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/2/2010 1:30 PM (GMT -7)   
provigil or nuvigil might be something to look into for your fatigue. Also I wonder if you are getting good sleep, quality is very important in our sleep and sometimes getting something to help you sleep better will help.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/2/2010 4:29 PM (GMT -7)   
Redrose is absolutely right. One of the biggest things that helped me with my constant fatigue was Ambien CR. My allergist and rheumatologist both felt that I needed better sleep at night. I was sleeping ten hours a night, napping during the day, and still constantly exhausted. Regular sleep aids didn't help, I wasn't sleeping soundly because of the pain. The controlled release in the Ambien made all the difference. Once I started the Ambien CR I slept great and had more energy during the day.
Good Luck!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/2/2010 7:03 PM (GMT -7)   
HI! I have had Lupus for 10+ years and i'm still not dealing well with the fatigue. If it's just "pure" lupus fatigue and not related to a secondary problem...i'm not sure there is a way to "fix" it. If there is, i'd love to know about it! We all have preached "pacing" yourself as the crux of the matter. I'm still flubbing it. This weekend, i felt great and wwwaaaayyyy over did it and now i'm paying the piper. I started running low grade fever, having joint pain and i'm so tired and weak I feel like you could knock me over with a feather. Going up on the prednisone will usually help but i'm trying my best to avoid that so i'm trying to just suffer through and see if it improves with rest! Let's hope!!

I'm sorry you are dealing with this frustrating aspect of lupus. I'm praying it gets better soon! Judy

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/2/2010 7:06 PM (GMT -7)   
I am so sorry you are feeling so poorly! For me, plaquenil worked pretty good, but I still struggle with it. As the others said it is important for us to get plenty of sleep, etc. Please keep us posted on how you are doing.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


WYOhunybare
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 2/2/2010 7:52 PM (GMT -7)   
Thanks everyone!! Sleeping well does make sense. I have been waking up at least 2 to 4 times in a night. I am learning that this is different every week, but it so helps to know that there are others out there. So this is a bum week and next week will be better. So not getting the pacing thing. I feel good and I do all kinds of things at a fast rate. Then I feel tired afterwards. I am on Plaquenil and also on Methotrexate (have Sjogrens along with this), but have not tried the ambien cr. One thing that I did try was to take extra vitamin D and also drink green tea. Seemed to help a some.

Thanks you to my new found friends and ya'll are in my prayers!

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/2/2010 11:21 PM (GMT -7)   
You're in ours too now, WHOhunybare. Judy's right. Pace, pace, pace yourself. Just having the stomach flu and a bunch of puppies would wear out the healthiest person, and your body's weak as it is, so don't forget....pace yourself. I take lunesta and feel much much better since I started on it. Naps help too, if you're able.

Glad you found this place. It can be a lifesaver.

(((Hugs)))

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

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