not doing to good tonight

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 2/2/2010 9:37 PM (GMT -7)   
My legs have been swollen for about 3 days. If you push on them they stay indented and feel like silly puddy. My left area above my thigh hurts so badly I have to favor it to walk. which of course causes my right leg to hurt more because from  the weight. and the tops of my feet burn like crazy when I try to stregth my feet kind of like tip toeing on my feet but not really starting on my toes. Boy when I say that it makes me wonder  how many people think I'm looney toons!rolleyes
I called the doctor she said to take 80 mi. of lasix and to stop take one of my heart meds. Usually she has me see her but this time she acts almost indifferent. I guess i willl have to see a different doctor tomorrow if she doesn't see me. All night long I thought there was a cat in my room because It sounded like a squeeling. but it was actually my lungs well Please send me prayers. I really don't want to go back in the hospital again.
love ya
carol



systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 

Post Edited (okie) : 2/2/2010 11:02:52 PM (GMT-7)


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 2/2/2010 10:15 PM (GMT -7)   
okie said...
Boy when I say that it makes me wonder how many people think I'm looney toons!


Carol, I don't think that you're looney toons! It sounds like you're describing my legs when they swell up with edema....it can really be awful!

okie said...
All night long I thought there was a cat in my room because It sounded like a squeeling. but it was actually my lungs


That what I sound like when I'm wheezing, either from my asthma and sometimes from bronchitis.

You're right about wanting to be seen tomorrow by a doctor...with COPD, if you have any way to get to an Urgent Care center tonight it would probably be a good thing.

Definitely praying for you tonight....keep us posted!
JoAnn
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel
Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP,
Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/2/2010 10:16 PM (GMT -7)   
Oh, dear. I hope the lasix clears this up for you or that tomorrow brings you better support.

Hang in there,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/2/2010 11:13 PM (GMT -7)   
Oh thanks joann and Lynnwood, I have life alert if things get to bad. I really am trying to be strong but I keep getting feelings like I just don't know this time. I know this isn't the attitude to have and I'm so sorry and I just need to pull it together that's all. I know we all got more strength in us then we give us credit for I just got to pull it together.
thanks ladies you guys really help me get it together.
Huge hugs and love back at you
carol

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD
 

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/2/2010 11:13 PM (GMT -7)   
Carol,

Was that you who called? I thought I was talking to a cat all along! Sorry, kiddo, I couldn't help it. You sounded so much weaker today than you did yesterday and I also hope you get in to see someone tomorrow. I've seen how hard it is for you, and it's really not a joking matter.

And if you don't get in to see someone soon, you won't be queen nag anymore. You'll have us to deal with.

Hope you're feeling a bunch better.

Love ya,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 2/3/2010 4:26 AM (GMT -7)   
Carol!!! Praying for you and sure hope the night went better than it started to!!!!

Love ya Carol!!!

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/3/2010 8:45 AM (GMT -7)   
Carol's on her way to the hospital again.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/3/2010 10:17 AM (GMT -7)   
((((( Carol )))))) hang in there my friend! You are in my prayers! Love ya
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/3/2010 10:46 AM (GMT -7)   
(((((Carol))))):

I'm sorry to hear this Carol. I'll be praying that you don't get any worse and they' treat you quickly and carefully this time. I know you don't want to be back in the hospital but you may do better there, than being home alone. I'll give you a call and see whats happening. Hang in there my friend.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/3/2010 11:13 AM (GMT -7)   
(((Carol))))) My thoughts and prayers are with you, my friend! Hang in there! Love ya, Judy

**If anyone hears how Carol is doing please let us know***

Confused725
Regular Member


Date Joined Jan 2010
Total Posts : 27
   Posted 2/3/2010 11:29 AM (GMT -7)   
THINKING Of YOU & wishing you to get better Quickly! :-)

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/3/2010 11:38 AM (GMT -7)   
okie said...
Oh thanks joann and Lynnwood, I have life alert if things get to bad. I really am trying to be strong but I keep getting feelings like I just don't know this time. I know this isn't the attitude to have and I'm so sorry and I just need to pull it together that's all. I know we all got more strength in us then we give us credit for I just got to pull it together.
thanks ladies you guys really help me get it together.
Huge hugs and love back at you
carol


PattyLatty said...
Carol's on her way to the hospital again.


Carol, I'm so very sorry that you've ended up in the hospital again, but sometimes this is a necessary thing. It doesn't mean that you're not being strong.....you're an incredible lady and an inspiration to us all! Please don't apologize for being sick!!

I'm continuing to pray for you.....and I'm praying for the doctors who treat you to do so with wisdom!

(((((((hugs)))))))
JoAnn
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel
Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate
autoimmunediseasesgfliving.blogspot.com


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/3/2010 3:29 PM (GMT -7)   
Carol, get better soon I am so sorry you are in the hospital. If anyone hears how she is doing let us know
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/3/2010 8:02 PM (GMT -7)   
(((Carol))),
You are in my thoughts and prayers sweetie! I hope you feel better soon.

Love, Babs

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/3/2010 8:04 PM (GMT -7)   
Hi All:

Carol's home health aide called me tonight to tell me that she's been admitted to the hospital yet again. Carol left her cell phone at home so I've not been able to talk with Carol. Her aide was getting her things together to give to Carol's sister in law to bring to Carol at the hospital. I'm gonna try to reach Carol tomorrow afternoon. I'll let you know whats happening after I've talked with Carol.

Keep Carol in your thoughts and prayers.

Carol I hope that you have a speedy recovery my friend. I'll be calling you daily like I always do when you're in the hospital. You hang tough sweetie, we're all pulling for you.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/3/2010 9:12 PM (GMT -7)   
Barb,
Tks for the update. I hope you are okay sweetie.

Carol,

Hang in there sweetie....a lot of prayers are going up for you. Hope you are feeling much better soon.

Love, Babs

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/4/2010 10:50 AM (GMT -7)   
Hi All:

I spoke with Carol this morning, she sounded pretty bad. She was getting a blood transfusion while we were talking. Carol was kinda bothered by the transfusion but I was able to help her with it. I've had more blood transfusion than I care to count, and I assured Carol that after she gets all her blood that she'll feel much better. Carol said that the swelling is terrible she's gained 27lbs in 2 weeks. They've got her on big doses of lasix. Other that was about all she could tell me. I'll keep you posted when I talk to her. Please keep Carol in your thoughts and prayers.

Hugs to you Carol.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/4/2010 11:01 AM (GMT -7)   
Thanks so much for the update Barb! I've been worried....

Sending prayers and lots of hugs your way, Carol!! Feel better soon!
JoAnn
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 2/4/2010 11:04 PM (GMT -7)   
Carol,

It's me, emmie, coming out of my lurker's cave to tell you that I'm thinking sweet thoughts of you and saying prayers that you feel better soon, soon, soon! Love you, honey!

emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 2/5/2010 5:54 AM (GMT -7)   
((((Carol)))) I'm so sorry you're in hospital again. I hope the transfusion and lasix help. Gosh, that's an incredible amount of fluid to retain in 2 weeks. I'm praying for you sweetie. Love ya, Donna
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Rx: Cellcept, plaquenil, prednisone, celebrex, prozac, wellbutrin, klonopin, neurontin, ambien, lisionpril, actos, nexeum, simvastin, lomotil, cholestryramine, claritin, nasonex,  PRN: tylenol arthritis, flexeril, phenegren, vitamins, Acupuncture.  Donna 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/5/2010 12:22 PM (GMT -7)   
Hi All:

I just spoke to Carol and she sounds so much better. It's looking like she'll be able to go home tomorrow from the hospital. She said hello to everyone and she miss you all. Just wanted to pass on the good news.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/5/2010 4:50 PM (GMT -7)   
(((((((Carol)))))) Sending positive thoughts your way!! Please feel better!!!!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/5/2010 5:12 PM (GMT -7)   
Tks Barb for sharing the good news that Carol is doing better and will be going home tomorrow.
(((Carol))) I praying you continue to improve with each passing day and will be feeling much better soon.

Love, Babs

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 2/5/2010 8:41 PM (GMT -7)   
(((Carol))) I know I haven't been around and it breaks my heart to come and find this thread to see you are in such poor health ATM. I'm praying for you and very hopeful and encouraged to hear that you will be going home tomorrow. Keeping you in my prayers.

Love, Des
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007, Localized Scleroderma 2009, Raynauds 2009
 
Meds: Plaquenil 400mg/day, Pred 5 mg/day, Methotrexate 10mg/week, Arava 20/mg (what next???), Vicoprofen PRN, Flexeril PRN, Fiorinal PRN, Baby aspirin, Prenatal Multi, Vit E, B12, Fish Oil, Biotin, Calcium, Folic Acid


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/6/2010 9:29 AM (GMT -7)   
When I spoke with Carol yesterday she sounded like her old self again. She had lost 27 pounds in 2 days. The edema makes her miserable, as you can imagine.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

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