Do I have LYME or LUPUS? I don't know what to do. HELP.

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New Member

Date Joined Feb 2010
Total Posts : 12
   Posted 2/6/2010 2:31 PM (GMT -6)   
Please help me understand my lab results.
I have a positive ANA (homogenous pattern).
Elevated SEDRATE.
Positive LYME (by ELISA).
Positive EBV-convalescent stage.
Can I have LYME and LUPUS and MONO?
I have been sick for at least the last 5 years. The past 4 months have been the worst. My GP said it was Fibromyalgia and put me on Pristique w/o ever testing me- this was back in AUG 09. I am getting worse. Fever all the time 99.6 to 102. SOOOO TIRED. I can barely take care of my three kids. I have lost >20 lbs...down to 107 now. No appetite. Numb toes,fingers. Joint pain. Weak and painful muscles. The list goes on. I feel like I'm going crazy. I am depressed too. Please help me. I don't trust my GP to know what to do. Do I need a rheumatologist or an infectious disease doctor or both. What do you all think. You live with Lupus. You are more the expects.
Please help.
Cass - 37 yr old mom of three. 

Forum Moderator

Date Joined May 2005
Total Posts : 6931
   Posted 2/6/2010 2:55 PM (GMT -6)   
I recommend seeing a rhuematologist - those are the guys to see when you have a positive ANA - they deal with autoimmune issues.

One of the best ways to find a good one is to check to find the local chapter. Then contact the local chapter - the doctors who are on their board or who work with them in some way are the guys you want to pick from. The chapter will not give you a recommendation for one over the others, but if you go to a support meeting in your area you can talk to other patients and get some recommendations/ideas from them.

Let us know how it goes,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 2/6/2010 3:02 PM (GMT -6)   
Hi Cass, welcome to the forum. (((( Hugs )))))) I am sorry you are so sick, it sounds like you definitely need to see a rhuemy, ASAP! Lynnwood is right, check out your local Lupus chapter and see if you can find a doc that way. I pray you find some relief soon, we've all been where you're at and it's not fun. Just stay on top of things and take charge of your health, which is sounds like you are already doing. Take care and please keep us posted on how you are doing.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)

Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 2/7/2010 10:55 AM (GMT -6)   
Hi Cass! I agree with Stacie and Lynnwood, try to see a rhuemy as quick as you can! Welcome to HW and I wanted to tell you I really like your SN...labrat. LOL! I can relate to that so much!!!!

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 2/7/2010 12:04 PM (GMT -6)   

Welcome to the forum. Sounds like you really need a support group. Lynnwood's right -- you should get an appointment with a good rheumatologist as soon as possible. Personally, I'd get a new gp - preferably an internal medicine specialist to be your primary care doctor (pcp). Your gp sounds negligent to me if he didn't refer you to a rheumy, considering your lab results and symptoms.

Stick around and let us know how you do and if you're able to get in with a rheumy soon.

Hang in there. Hopefully a rheumy will get you back on track.


SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

New Member

Date Joined Feb 2010
Total Posts : 12
   Posted 2/7/2010 4:57 PM (GMT -6)   
Thank You All !!!
I'm not a very literate computer person and this is my first forum experience. Thank you for your support. I look forward to learning from you all. I'm sorry that you all are suffering but you sound like you are a strong and supportive group of people.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 2/7/2010 6:40 PM (GMT -6)   
I would also see a lyme specialist if I were you with a positive lyme test. Lupus and lyme can co-exisit and I think once you have mono you carry the antibodies and thus test positive but I cannot be sure. I would say yes you could have all three at once but that it would be rare. But I am not a medical professional so I just don't know for sure. Make sure any rheumy you see is a lupus expert not all are.

Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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