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susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 2/6/2010 2:51 PM (GMT -7)   
I went to the Rhuematologist & Neurologist.  Now I am waiting for an appt with a holistic MD to check all of my vitamins.
 
My symptoms are primarily:
weakness in arms, legs
numbness in arms, legs
strange sensation in arms and legs
traveling burning sensation all over my body
chronic fatigue
dizziness (on and off)
chronic sinuitis
 
Here are my results:
EMG upper/lower                         Normal
MRI of neck, lumbar and brain     Normal - with the exception of chronic sinusitis
caratid artery u/s                        Normal
Heavy Metal toxicity urine           Normal
Blood test                                   Low Vitamin D, Low B12, ANA, ACA, MTHFR gene
 
The rhuematologist ruled out lupus. 
 
The Neurologist gave me a boost of B12 shot, and I am supplementing with additional B12, and Vitamin D on top of my multi
Nuerologist wants to repeat my brain MRI in 6 months to check for brain lesions.
 
I am sooooooooooooooooooooooo confused.  I need to be patient I know and wait upon the Lord, but I honestly am having a hard time.  What is wrong and when will I get answers.
 
I have been battling this for 12 years on and off, but the newest symptoms (burning, which has been going on 3-4 months now).

Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Fibromyalgia, MFS or MS. 
Abnormalities:  Vitamin D deficient, B12 Deficient, +ANA, +ACA        MTHFR heterogenous gene A1298C
 
Rheumatologist ruled out lupus on 01/15/10

"Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go."  Joshua 1:9


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 2/7/2010 8:53 AM (GMT -7)   
Hey Susan! Sorry you are in limbo on getting diagnosed! I hope you get the answers you are looking for soon. How long do you have to wait to see the holistic MD? Are you on any medications to treat your symptoms?

Have you made a list and documented each time you get dizzy and each time you have the burning sensations going through your body? IF not, it might be a good idea to. So your doc can see how often they happen and when during the day they happen!!! Will be praying you get some answers!!!

susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 2/7/2010 2:13 PM (GMT -7)   
Thank you Amy! I appreciate your tip & prayer. :-)

Sue
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Fibromyalgia, MFS or MS. 
Abnormalities:  Vitamin D deficient, B12 Deficient, +ANA, +ACA        MTHFR heterogenous gene A1298C
 
Rheumatologist ruled out lupus on 01/15/10

"Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go."  Joshua 1:9

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