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Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 2/15/2010 1:17 PM (GMT -7)   
Hi everyone:) I am just wondering how many of us have decided to use Medic alert? Just curious. I started Imuran (3 days ago) they suggested on the info sheet that I become a medic alert member while on this medication. Has anyone benefited greatly from the service? I always have to remind myself that, no, I'm not as invinsible as I like to think I am, and that really, it's useful to be prepared for the unexpected healthwise that helps. When I was filling out the application it astounded me just how many health conditions I had to add, when 5 years ago I just had epilepsy to consider. Oh how life changes.

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops
<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/15/2010 1:21 PM (GMT -7)   
I haven't even considered medic alert before reading your post. I likely should have something but I don't even have a bracelet to notify the medical ppl of my meds or diseases.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 2/15/2010 2:04 PM (GMT -7)   
I have a bracelet with Lupus on it, but I only wear it when traveling on an airplane or walking somewhere without id. Not quite enough meds here to consider a Medalert gizmo just yet.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/15/2010 4:01 PM (GMT -7)   
Actually we used medic alert on my brother when he was a lil one. He is diabetic. Saved his life a few times. I'm sad that he still doesnt do it, as it has proven good for him. He recently got drunk at a bar with some friends, despite my pleas of being careful, and his bloodsugar went through the roof. His friends sent him home by a cab, and well he jumped out of the cab while it was driving and fell into a coma in the road. The thing that saved his life is the paramedic to respond was his roommates father...go figure.
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 2/15/2010 8:20 PM (GMT -7)   
Wow!  That's about all that I can think when I hear a story like that.  I guess on my behalf I get concerned with what a first responder might do if I have a seizure, and also am on so many different drugs from the epilepsy and lupus at the same time.  I want people to know that asap.  I think that going on Imuran a few days back really made me think.  What if I'm not concious to discuss all my health problems, ya know?  I know it won't fix everything, but at least it's one extra voice, heh?
 
-Ellie 
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/15/2010 9:02 PM (GMT -7)   
I have a medic alert bracelet on my wrist because the paperwork suggest you use it if you use it if you use steroids. Not sure why. anyway I also have it because I am ill and I live alone so that is always a good idea.
 Des, I'm sorry that happened to your brother. Beer and taking responsibility just doesn't go together.

carol


Lupus lung, maybe, scleraderma maybe, another A/I maybe, Hang nail maybe. COPD
meds to many to fit in my 10 lines. but last count was 28.

 Jesus loves you and so do I!
 
 

Post Edited (okie) : 2/17/2010 5:36:39 AM (GMT-7)


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 2/16/2010 10:43 AM (GMT -7)   

Hi! Everyone,

I have a medic alert bracelet tag on my keychain, (keys are one of the first things police officers check), with a lupus bracelet, and use ICE on my cell phone. In Case of Emergency is programmed into my phone, first thing in Contacts, that explains I have lupus and am on a daily 5 mg dose of prednisone. I think most cell phones have this service and it doesn't cost anything extra. And cell phones are one of the first things the Emergency Medical System EMTs look for. And I don't leave the house anymore without it.

hugs, suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 2/16/2010 12:26 PM (GMT -7)   
What a great idea Sue!!! I am gonna add that to my contacts in my cell phone. I had never even thought of it :)! Thanks for the suggestion

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 2/18/2010 9:06 PM (GMT -7)   
As a First Responder/EMT- I just wanted to say that if you are considering a medical ID bracelot, make it big enough to read and stand out. Many people have these cute little bracelots that are actually passed off as "just jewerly" when we are looking for a clue as to why a person may be unresponsive. Someone had posted putting ICE on your cellphone, but we honestly don't go through your personal belongings for this information. If it's in your purse and we find you unresponsive with nobody around to ask your medical questions about, a police officer on scene may look in your purse to find identification and its hard to tell whether or not they will look at the numbers on your cell phone. My hubby is a police officer and I could ask him more on their protocol. Fortunately, when we do go to the scene of an unresponsive person there is usually someone around who can give us a brief medical history and can help us find the stuff we need to report to the hospital. I also live in a town of about 10,000, so most people doctor in the same clinic/hospital. If we can get a person's id then they usually have the information on file for the medical history.

It's always good to be prepared and have a plan in place. The ICE on the cellphone thing is fairly new I think, and it may only be a matter of time before we start this as a regular practice on scene.

My personal medical ID bracelot is an italian charm bracelot. I have 2 medic sign, my blood type, Lupus, and taking Prednisone on it. I also have the fun charms that you would expect to have on an italian charm bracelot. I've ordered my special charms on e-bay. You can sometimes find places that will make special charms for medical reasons.
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


mariette
New Member


Date Joined Dec 2009
Total Posts : 17
   Posted 2/22/2010 10:11 AM (GMT -7)   
Hi, I have just ordered a medic alert bracelet, it is jewellery item, but it has three charms which stand out and give the relevant information regarding my meds, my D.O.B full name and contact number.  i was advised to wear one by my GP who thought as I am on pred anyone finding me ill would need to know.  The ICE number in the phone is a good one, lets hope it becomes well known, then it can be more useful.turn
 
 
Mariette
 
 
dx- RA Sjogrens, Raynaud's carpal tunnel and overlap syndrome lupus/MCTD
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/22/2010 11:44 PM (GMT -7)   
Oh yeah plus I have "Life alert" with the necklace that you push the button. you can hear it from anywhere in the house. In case I fall or have a heart attack or something. It think anyone should have one bt when you have a disease and you live alone I think it it is a good idea. Not to mention that medicare pays for it. You are only allowed to rent them but I couldn't afford to buy one anyway.
Lupus lung, maybe, scleraderma maybe, another A/I maybe, Hang nail maybe. COPD
meds to many to fit in my 10 lines. but last count was 28.

 Jesus loves you and so do I!
 
 


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/26/2010 2:59 AM (GMT -7)   
Hey Tammy,

I'm an ironic case, I have Way too many allergies and diagnoses, that it wont fit on any bracelet or necklace, etc. I'm awful to have as a patient, I'm either going into comas or blacking out (diabetic asthmatic). I'd keep you on your toes. I've tried hey lets drop to glucose level 33 and tell your nurse your going to take a nap (got yelled at told told not to go to sleep, my medical training recognized her frantic behaviour of me and how I cant go to sleep so I knew I had to stay up) and barely managed to stay up long enough to see my doctor and 3 nurses land in my room and shoving glucose in me. Lets see, another time I walked into the ER (barely) got as far as handing the guy in scrubs my inhaler and whoosh, I went unconscious. I guess he caught me, cuz when I came to I had a full team around me in the waiting room and I was in a wheelchair with oxygen, our vital stuff, and smelling salts being used. I was out long enough for respiratory to be in a room and ready with a nebulizer. I was also told I would of died 30 minutes later if I hadn't came in when I did. That was the next bus for me. So when you have a wise crack patient like me that has too much to write on a paper that tends to go unconscious no matter where (heck I've even managed to tell a city driver I was diabetic and to call 911 and instruct them I was low glucose right before I went in diabetic shock), in that case, what is the best course of action for me? How could I let you know without you guys going through my stuff that only takes up time and you only have the golden hour? Or in my case, minutes. I'm being a curious one
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 2/26/2010 8:28 AM (GMT -7)   
Smurfy,

My medic alert bracelet says simply "Lupus, Prednisone, See wallet card". The I carry a list of meds & doctors in my wallet....I can keep it updated!

I guess yours would say "diabetic" primarily....
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 2/26/2010 12:07 PM (GMT -7)   
Hey Smurfy!
 
In Wisconsin, we have "the vial of life"  what this is, is a form that you fill out with your medical issues and keep it in a large pill bottle in your frig.  You can get a sticker for your front door that says vial of life-and we know where to look for it.  You could also put that on your medical bracelot.  I'm not sure if all states  practice vial of life.  At least you could update this as often as you would need to.  Since you go unconcious often it seems, you may want to make a copy of your vial of life to carry with you.  We do the best we can on what we see and your vitals when we find an unconcious person.
 
You would be a total challenge for EMT's.  Lets hope that if you are ever unable to tell us whats going on that someone around you knows.  We'd probably just run you straight to the ER or be on the phone with Medical Control immediately in a situation like yours. 
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/26/2010 1:36 PM (GMT -7)   
I knew I would be a challenge, so I was smart and ask. The Vial of life seems like a really cool idea, I will do that. Thanks!
 
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/26/2010 2:40 PM (GMT -7)   
Smurfy, I saw something I think you might find useful, http://www.picturesongold.com/shop/medical_memory.html not recommending you buy from this site but there are other sites with similar solutions. I am considering getting one of these as soon as I have the extra money. My husband agrees it would be an excellent idea. The other idea I had was one of those little magnifier thingies that you send away and they type up all your information tiny and put it into a little plastic magnifier but I can't find them again and can't recall where I last saw them.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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