Hi Louise! Welcome to the forum. I'm so sorry you are dealing with these issues, that we are all so familiar with! Is the specialist a rheumatologist? If not, you really need to see one. If so, you may consider a second opinion. Even if a diagnosis can't be made at this time your symptoms need to be brought under control.
You will find a lot of very kind, informed people on this forum. Hang in there!! God bless you, Judy