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mariette
New Member


Date Joined Dec 2009
Total Posts : 17
   Posted 2/24/2010 12:36 PM (GMT -7)   
Hi, just wondering, here in the UK the sun protection is quite expensive, so want to get the best.  If anyone can advise me that would be great.  At the moment I am diagnosed with RA and overlap syndrome/lupus/mctd.  I know when diagnosed you can get it on prescription.  At the moment its fluorescent lighting thats the problem, in the opticians room and the doctors my hands began to swell, and red patches appeared on the backs, also on my face and neck.  Should I use the suncream even now in winter? Thanks everyone, hope you are doing okblush
 
 
Mariette
 
 
dx- RA Sjogrens, Raynaud's carpal tunnel and overlap syndrome lupus/MCTD
 


harleybluz
Regular Member


Date Joined Sep 2009
Total Posts : 122
   Posted 2/25/2010 6:37 AM (GMT -7)   
I have to use a sunblock all year round. I don't like it but I get itchy bumps all over the exposed area if I don't. I don't break out from lighting like you. That has got to be really difficult and frustrating. Does a sunblock help with the lighting problem? I keep trying different sunblocks and found that the light sprays work best and give the best coverage. I've tried several different ones and they've all worked. Of course, I use a really high SPF, like 75. They say anything over 15 is useless but I beg to differ. Good luck. I know it can be expensive to keep trying different ones. Being allergic to the sun and with you the light is the worst.

This is no Social Crisis... Just another Tricky Day (The Who)

 


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 2/28/2010 3:54 PM (GMT -7)   

Hi!

You might want to check out the several lines of uv resistant clothing, like Coolibar.com, and invest in a nice long sleeve jacket, so you could reserve the lotions for the bare spots. I know what you mean about flourescent lights, but my skin rash gets worse with every sunscreen I put on. I really miss the sun. Could you have your desk moved closer to a window so your lights are off more. And I find sunglasses help alot.

suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


mariette
New Member


Date Joined Dec 2009
Total Posts : 17
   Posted 3/1/2010 1:36 PM (GMT -7)   
Hi harleybluz and suetoo, thank you for the help.  I will look at the clothing site, cant find anything like it in UK.  I dont work in an office, I take care of 2 babies for a job.  Its when I have my doctors visits that the lights affect me, and sometimes in different shops/stores.  I can feel it starting to throb and swell as I sit there.  Will definitely start to use more sunscreen, sounds silly as herfe in UK we are luck y get any sun!! even in summer its usually on around 73f - 75f.  thats during july-august.  Even now at home with normal lighting, my hands feel swollen and have a rash on them.  Thank you xtongue
 
 
Mariette
 
 
dx- RA Sjogrens, Raynaud's carpal tunnel and overlap syndrome lupus/MCTD
 

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