Wondering about kidney involvement? but not wanting it...just have questions.

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Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 2/27/2010 7:05 PM (GMT -7)   
So here's the thing. I know that a lot of you the use this website are suffering from kidney disease. I also know that it's a fairly 50/50 chance that people with SLE lupus are likely to get kidney involvement, or maybe it's even higher. I have not been told anything by my doctor that there were (plus 3) leukocytes found. Also I have noticed over the last week that my pee has been getting more concentrated and definately a bright bright yellow, and 'xcuse the crudeness, but hotter too. I also sometimes feel like I have lots to pee and then when I go the bathroom I barely go..I guess I'm just wondering what some of my online friends think about this? Should I just let things happen for now, and wait and see if more changes happen, or what? Should I even be concerned? Or just waiting and watching? Thanks for reading..just always find that I have tons of questions, and not near enough time to ask the doctors, ya know? Hope to hear from someone soon.

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 2/28/2010 2:32 AM (GMT -7)   
Hi Ellie, I wouldn't let anything unusual go without being checked out. What you have mention sounds very simalar towhat i have. It's not a real problem but I do  tend to get infections from it and that can be a problem. Sometimes I feel like I have to just set for ever twiddeling my thumbs trying to get somthing moving. My doctor ssaid alot of women have this problem and other women on here have mentioned it as well. It is possible you have what is called tipped bladder. yes you a dribble a little or push real hard just to make little progress. She says try to rock forward and backward and side to side trying to empty your bladder. It seems that our bladder tends to not empty all the way. which of course makes it stay longer and cause a darker color. There is also a possibility that your bladder is full to the top but because you have a problem you are only getting the very (overflow) to come out. I would suggest you should get it get it checked it. The may need to do an ultra sound. Your doctor may want to put you on a low salt or possibly lasix for awhile. Bt to answer your question I would not put it off. while is may not be anything at least you will know. and if it is possibly an infection or blockage or somthing they will be able to get it fixed. I'm not suggesting the every little thing needs a rush to the ER but this does suggest at least an appt to the doctors office.
let us know
hugs
carol
Lupus lung, maybe, scleraderma maybe, another A/I maybe, Hang nail maybe. COPD
meds to many to fit in my 10 lines. but last count was 28.

 Jesus loves you and so do I!
 
 


aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 2/28/2010 6:41 AM (GMT -7)   
Hey Ellie, I agree with Carol, you should deffianltly make a trip to the doctors. I have kidney involvement and I do not have any of the symptoms you described, it does sound like some sourt of infection, espcially about it being hotter!!! The symptoms I have for lupus nephritis to began with was coke or tea colored urine and it was foamy and going to the bathroom a lot at night. Please do make a call into your PCP to get that checked out!!!

MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 2/28/2010 1:15 PM (GMT -7)   
Hey! I agree with Carol and Amy. I also have renal involvement with Lupus. I am no doc, but it sounds like bladder more than kidney to me! It warrants a check up for sure. Let us know how you are!! Bless you , Judy

Lynnwood
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Date Joined May 2005
Total Posts : 7020
   Posted 2/28/2010 1:24 PM (GMT -7)   
It sounds more like a bladder infection to me as well -- but whatever it is, definitely have a doctor check it out. Things like this are not meant to be ignored (however much we often want to ignore them)!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 2/28/2010 4:04 PM (GMT -7)   

Hi!! Everyone,

One of my lectures from my immunologist, was that one of the goals of lupus meds was to protect the kidneys asap. Everytime I go to him, q 6 months, I pee in a cup. Everytime I go to my family dr., I pee in a cup. They do a quick check for sediment, cells and protein. I think one of the more serious signs of lupus nephritis, is foamy brownish bubbly urine. Once I spilled catecholamines, but my 24hr urine checked out. And one of the evidences of kidney failure is the inability to concentrate urine, so I worry when mine is light and I am not over hydrated. And for perimenopausal women, urgency, frequency or difficulty are some times, (and not to forget about the usual UTIs), connected to status post childbirth, menopause, and a check with the dr. is my vote.

hugs, suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 2/28/2010 8:41 PM (GMT -7)   
If your urine is getting more "colorful" it is because you are not hydrating enough.
 
Typical complications from lupus are proteinurea where your kidneys filter protein out of your blood and cause edema.  Urine will be more "frothy and bubbly" as a result.  Some patients have blood in their urine but it is usually not discernible with the naked eye.
 
If you suspect you have problems see a nephrologist as this condition is often easily treatable.
 
Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 2/28/2010 10:19 PM (GMT -7)   
Thank-you so so so so so so much from all of you that responded so quickly. If you can't tell, I'm appreciative:) I do plan on talking to my GP about it tomorrow. I have an appnt set up for prescription refills, but I think that I'll tag that on too. It hasn't gone away, and I've tried cutting coffee back and adding more water than usual. The thing is, that years ago I used to drink lots of water, and be a very active runner. I have kept that up and was keeping myself drinking about 2+ liters of water daily. I would drink about 1-2 cups coffee, and ate a very healthy low salt diet. Then, 2 years ago I actually passed out due to low sodium (they think) and then had 2 grand mal seizures. Since then it has been a fine battle to keep my salt in the regular range...hence I have been told by my GP to increase my salt intake, and am to drink no more than 2 liters of water daily in any form (juice, tea, etc...). I was keeping that up, but without adding lots of extra salted foods my sodium was not regulating..now it's been fine, but I've cut WAY back on drinking water..I drink about 1 1/2 liters p/day, no herbal teas, and no juice...just some water, and way more coffee (otherwise I just feel too hungry). I'm not a big fan of too much gatorade (just not my thing). So, that's a bit broader the storey. It makes sense that possible I could be a bit dehydrated, but I've been this now the same for almost 2 years...I have tried over the last few days to drink more water, and even added in some extra cups of herbal tea to see if it would dilute my pee...it's worked somewhat, but still I am not out what I think I should be, and it still seems to be more concentrated than normal. I will just have to see what my GP says. Oh, and also yesterday I noticed that I was spotting a bit of . Could be my endometriosis though...not totally sure on that one (shrugs, oh well, don't know everything). I am interested in hearing that it could be an infection of some sort. I did just start on Imuran 2 weeks ago..that's supposed to make me more suseptible to infections, right? Hmmmm...

Thanks again everyone, and I'll letcha know what my GP says.
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 3/1/2010 5:57 PM (GMT -7)   
So here's the update...my GP's wondering about a possible bladder infection (as some of you so wisely suggested). She tested my in the office, but is sending it away to the lab for further testing..Also being tested is my liver. She said that the bright yellow suggested possible liver involvement. So anyways, don't know fully yet, but I've been advised of drinking cranberry juice (not lots more water to keep my salt regulated), to get further work done, and if it's not gone in 2-3 days then start on antibiotic. Also she's thrilled that I have an appnt with my Gyno at the end of the week to check into the spotting. So there's the scoop. And yet another doctor appointment done. I think my GP's excellent.

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 3/1/2010 7:29 PM (GMT -7)   
Bright yellow can also mean you are taking too much Vitamin C !
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 3/2/2010 8:26 AM (GMT -7)   
Hi Lynwood. I take two vit C everyday. One in the morning and one in the evening. I take them with my iron tablets (4 p/day) to help absorb the iron. I've been doing it for a few years now though. MY GP did ask me if I've been taking any new vitamins, etc, and I said no. I really haven't done anything differently, except for adding the Imuran to my daily pills..I also did try to drink more water through herbal teas, etc, to see if that would dilute it. I'm kinda scared of drinking too much water though. Sounds silly I know, but the last few times I've done it my sodium has dipped way down..catch 22 as my GP says. Thanks though for the tip..it would be something to consider.

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/2/2010 8:49 AM (GMT -7)   
Imuran...how long ago was that added? Are you taking the generic azathiprine (SP)? I remember when I first started taking Imuran a few years ago, my urine turned very yellow!!! My rhuemy told me that it can be a side effect. I don't remember how long it lasted, I jsut remember it turning yellow, but once I got used to it, everythign returned back to how it was.

Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 3/2/2010 9:28 AM (GMT -7)   
Wow!  Interesting...my rheumy warned me of a few things, but not bright yellow .  I only started taking it a week ago Sat (Feb 13th) and have noticed the change in my for over a week now...hmmmm could be.  So you said that the yellowness went away?  'cause it was really really bright and it seems that the extra water I had yesterday seemed to help it some, but it's coming back, and it's not like I've stopped drinking water or anything, just not as much (as I'm not supposed to medically).  Imuran is so new to me, it could be. 
 
Thanks,
Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/3/2010 11:08 PM (GMT -7)   
I think I recall my urine being more yellow when I first started Imuran but now as long as I keep my fluids up it is pretty clear. I hope you find out soon about the possibility of a bladder infection as those left untreated can travel into the kidneys and cause havoc. I would do a follow up call to my doctor if I were you just to see what they have discovered.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 3/4/2010 10:57 AM (GMT -7)   
Hi Redrose:)  Thanks for the reply.  I totally meant to update this post, as I did get a call from my GP the very next day.  My sample tested negative for a bladder infection.  YEAH!!! Good news.  I really have no desire to go down that road.  I am, however, a firm believer in tackling a health problem asap so as to prevent it from getting worse...I am liking the suggestion that's been given about Imuran making my pee yellow.  It still off and on in the day goes to bright yellow color and a bit smelly...I am trying to drink more water, but it's a problem for me health wise.  I don't want to end up passing out due to low sodium.  I guess I'll just have to get used to it...it's not that big a deal (just coloring), but it did raise a flag for me and get my attention...as well as the stomach discomfort, pressure, and small pains.  I think that those are related to my endometriosis though.  It's hard to separate things though..that's what docs are for :)  Thanks again for your input.  My mind is at peace for now.
 
-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/5/2010 1:45 PM (GMT -7)   
Hey Ellie!! So glad to know you don't have a infection! I know that is a great relief. It was almost 3 years ago that I started taking Imuran but if I remember correctlty (haha) I think the yellow urine lasted about a month and then each time they upped my dose I had the same issue for about another month.

Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 119
   Posted 3/8/2010 12:29 AM (GMT -7)   
I don't know if you'll get this response post, but thanks for seconding the "yellow pee" from Imuran Amy. It makes complete sense when you think about it...mine's still bright yellow..and I've noticed a pattern now. It's been over 2 weeks of me noticing the color change. It seems to be worse about an hr after I've taken my Imuran in the morning and is bad for a bit, then gets lighter throughout the day, and then darker..I really do you think that you s have the answer for me bang on. Thanks so much. It's just weird is all...but nothing to worry about really..


-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

<FONT color=#008000>Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.

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