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arcgud
New Member


Date Joined Mar 2010
Total Posts : 10
   Posted 3/11/2010 1:45 PM (GMT -7)   
My sister is still in the hospital. She has lupus cerebritis. Got high dose steroids and most of her symtoms are gone now, except for the low blood counts. Her psychosis is almost gone now, but the doctors are saying that the lupus is still active. She has very fluctuating blood counts. In the last 24 hours, her WBC fell from 5 to 2.3 and she also had low RBC and platelet count. Doctors suggested that she must take Rituxan instead of Imuran (She has fever ans sideeffect when she used it for 2 days) and Cellcept. Is this a good choice? The insurance is not covering rituxan and we are also afraid of its sideeffects.

FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 3/11/2010 3:20 PM (GMT -7)   
I had a horrible reaction to Imuran. Cellcept is doing the trick. Hope your sister feels better.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/12/2010 1:00 PM (GMT -7)   
I would listen to your doctors. If insurance doesnt cover it, ask i Cytoxan would be better. It has the same side effects as retuxan but has been around a lot longer! I don't know if it will be an option since it will lower her WBC even more but just a thought!!! Let me know what you decide and if she does do retuxan please let me know how it goes as we will be adding that to my smorgus board of meds!!

arcgud
New Member


Date Joined Mar 2010
Total Posts : 10
   Posted 1/7/2011 4:27 PM (GMT -7)   
Thank you guys for all your help! Sorry for not taking time to post since so many months. My sister finally recovered completely after 6 months of flare up from Dec 09 until May 10. I am not sure what did the trick but thanks to the doctors at John Hopkins. They tried everything they could. Rituximab was rejected by her insurance but huge doses of prednisone and cellcept worked for her. Her butterfly rash is all gone too. Its a miracle.
 
My sister is now all better, going back to work. Now that winter started again, she is having little trouble on and off but she is way better than last winter.
 
Thanks for all your support! It is very much appreciated.
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